Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iv Nutrient Therapy


bluedove

Recommended Posts

bluedove Newbie

Despite eliminating gluten, dairy and legumes I have been coping with fatigue and mood issues. I am working with my family doctor but recently began seeing a naturpathic doctor who has placed me on IV nutrient therapy and a further 3 week hypoallergenic diet to search for other food intolerances.

1) has anyone tried IV nutrient therapy (Myers cocktail) and was it successful?

2) how often do people get sick throughout the year? Do I have to become ocd and turn into a major pita to avoid cross contamination

3) any ideas on how to treat CC muscle pain\neuropathy when CC happen? Missing 2 days of work each time is causing problems with my employer. I thought I was doing well this year :(

Allergic rhinitis and chronic sinus 2010 (no longer an issue since gluten-free and DF)

celiac disease & lactose intolerance- 2011

No legumes- 2013

*Supplementing daily with D,C,zinc, complex B, calcium citrate, L-glutamine powder, and will be adding flax oil, hmf powder probiotic, phytosine, and have weekly IV therapy for another 4 weeks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I'm assuming your real doctor re- tested your Celiac antibodies and they have gone back to normal? He has tested your thyroid? He has blood tested to see what things you are lacking - like vit D, iron, ferritin, B12, etc?

bluedove Newbie

Thank you for your reply. Thyroid screen appears normal. Ferritin was at 29 in December- am taking an iron supplement as well. My skin arms, legs and scalp are often itchy but I don't have any sores or DH that I can see.

bluedove Newbie

Whoops- and yes, the antibodies have returned to within normal ranges

kareng Grand Master

Not sure why you would have an IV if something if your levels are all good?

1desperateladysaved Proficient

It sounds like you can't afford to have problems with cross contamination.  Preventing problems is the very best way to solve it.  Eat foods you prepare away from contamination worries.  Once you are ill you kind of have to wait it out.  Some people say that extra fluids helps once you are glutened..

 

I actually can't remember the last time I was ill.  Oh, yeah it was about a year ago.  I have had troubles with gluten, is that what you mean?  Mostly, I need to function straight through anything like that.  Brain fog and fatigue pretty much aren't an excused absence in my line of work.  Motherhood.

  • 1 year later...
CaliSparrow Collaborator

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Why would asking valid questions be "running off" the OP?

squirmingitch Veteran

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F

How do you know the op was "run off"? Plenty of times people ask questions & then just disappear - it doesn't necessarily mean they were run off.

notme Experienced

Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy.

Grade: F

ohhhhhhhhhhhh kaayyyyyyyyyyyyyyyyy.......................???  i don't see your point, but, wow, thanks for letting us know nearly a year later.   ;) 

ravenwoodglass Mentor

If that was true then the thing to do would have been to contact Scott. At the time. I don't see what your purpose is posting that a year later. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,952
    • Most Online (within 30 mins)
      7,748

    SY8
    Newest Member
    SY8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.