Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Graduation Party

txgal748

Recommended Posts

txgal748 Apprentice
txgal748
Posted

So' we went to a graduation party Saturday for the daughter of some friends.  Before going to the party I had a salad just in case.  Now, I don't keep my celiac disease a secret but people that don't deal with it everyday do not know how all consuming celiac disease is.  I was diagnosed with breast cancer 5/09/2012 and then I was diagnosed with celiac disease 5/21/2012.  Frankly, the celiac disease is there every moment of every day.  My breast cancer tumor was 8mm, estrogen and progesterone positive(Thank God).  My treatment was lumpectomy, radiation treatment, and tamoxifen for 5 years.  The January  mammogram showed no evidence of disease, next mammogram is in June.  So, even though I worry about recurrence on occasion I feel like I don't have to worry as much about this than the celiac disease.  I do worry about other cancers because of the celiac disease.

 

Anyhow, I was very happy nobody noticed I did not eat any pizza. It was a relief my friend did not have to make a big deal about me not being able to eat pizza and trying to find something I could eat.  I greatly enjoyed being able to visit with all of my former neighbors and watch the teenagers play in the water.

 

I just wanted to share this with yawl because you understand better than anyone else.

 

Good Night

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

So' we went to a graduation party Saturday for the daughter of some friends.  Before going to the party I had a salad just in case.  Now, I don't keep my celiac disease a secret but people that don't deal with it everyday do not know how all consuming celiac disease is.  I was diagnosed with breast cancer 5/09/2012 and then I was diagnosed with celiac disease 5/21/2012.  Frankly, the celiac disease is there every moment of every day.  My breast cancer tumor was 8mm, estrogen and progesterone positive(Thank God).  My treatment was lumpectomy, radiation treatment, and tamoxifen for 5 years.  The January  mammogram showed no evidence of disease, next mammogram is in June.  So, even though I worry about recurrence on occasion I feel like I don't have to worry as much about this than the celiac disease.  I do worry about other cancers because of the celiac disease.

 

Anyhow, I was very happy nobody noticed I did not eat any pizza. It was a relief my friend did not have to make a big deal about me not being able to eat pizza and trying to find something I could eat.  I greatly enjoyed being able to visit with all of my former neighbors and watch the teenagers play in the water.

 

I just wanted to share this with yawl because you understand better than anyone else.

 

Good Night

You made it though a social night, with many hidden burdens, and you MADE IT.!  Every day will be better, step by step.

 

We can walk you though your travels with Celiac and it's not as nearly daunting as the road you have already faced.  I can assure you of that! :)

cyclinglady Grand Master
cyclinglady
Posted

Good for you!!!!!

GlutenStinks15 Explorer
GlutenStinks15
Posted

Good for you! (as I echo cyclinglady)  :D

 

I definitely feel a sense of accomplishment getting through a social occasion unscathed. One of my coworkers is retiring and we're going a pot luck for her - so I'm bringing gluten free chicken taquitos from Trader Joe's (they love them in my office - don't even realize theyre gluten free) and gluten free cupcakes from Trader Joe's. These cupcakes are phenomenal!

 

Have a great day.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.