Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Second Guessing My Gluten Problem...


taynichaf

Recommended Posts

taynichaf Contributor

I've only been gluten for about a week now...but ask the other times I tried going gluten free I would feel starving and very sleepy...now I'm still just my normal exhausted self..my arm is like limp just from holding some clothes.. How long did it take you to feel better?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salax Contributor

At least a good 6 months gluten free and casien free before I started really feeling better. Slowly but surely it gets better the longer your off it.

gatita Enthusiast

Eight months for me. And sooo worth it. But boy, it was a bumpy ride! Hang in there!!

taynichaf Contributor

how did you know to go casein free?? Is that just lactose?

nvsmom Community Regular

For me, it took a few weeks for some GI symptoms and migraines to improve. For other symptoms like fatigue, and pain.... well, I'm one year in and still waiting.  LOL :rolleyes:

 

You'll probably need to give it until Xmas, or even longer, before all your symptoms clear up.

 

I went entirely dairy free in my second month gluten-free (I believe). Once I was gluten-free, it became much easier to notice how dairy gave me stomach aches so that made it simpler. Someone also mentioned how dairy can contribute to acne, and that was further incentive to drop it.  i just had icecream twice last week and I did not get a stomach ache from it (yeah!) but my skin is acting up again (boo!), so from this I am guessing that I am no longer lactose intolerant (after 1 year gluten-free) but my body doesn't lile something in the dairy so I get spots.  I'll stay mostly dairy free.

Ksee Rookie

I came off gluten, not convinced it was my problem, but after only a few days my digestive problems had improved so much it came clear. I can't say when these problems started, they were so insidious. It was only with partial relief I realized how much pain I had been in.

I am learning as I go along what symptoms may be due to gluten but I would imagine, depending on the damage, some problems will take longer and some may be permanent. 

There is no reason now to cry over the past, so I try not to think about what my life could of been if someone had recognized this before my autoimmune pituitary destruction, and damage to my eyes, among other problems. 

To answer your question, how long depends on how sick you were I suppose. 

Make sure to write all this down so you can remind yourself later how much you don't want to have to do it again.

taynichaf Contributor

For me, it took a few weeks for some GI symptoms and migraines to improve. For other symptoms like fatigue, and pain.... well, I'm one year in and still waiting.  LOL :rolleyes:

 

You'll probably need to give it until Xmas, or even longer, before all your symptoms clear up.

 

I went entirely dairy free in my second month gluten-free (I believe). Once I was gluten-free, it became much easier to notice how dairy gave me stomach aches so that made it simpler. Someone also mentioned how dairy can contribute to acne, and that was further incentive to drop it.  i just had icecream twice last week and I did not get a stomach ache from it (yeah!) but my skin is acting up again (boo!), so from this I am guessing that I am no longer lactose intolerant (after 1 year gluten-free) but my body doesn't lile something in the dairy so I get spots.  I'll stay mostly dairy free.

I noticed dairy gives me stomach aches too! I'm going to go dairy free for awhile starting now... ha.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taynichaf Contributor

Thanks for the replies! I was actually only gluten free for 4 days when i posted this :} Some symptoms are slowly improving though.. I just want this depression completely gone!... NOW! But i'm trying to be patient..

nvsmom Community Regular

My mood felt worse (withdrawal) before it felt better. Days 4-20 were my worst. Hang in there if it doesn't get better this month.

Fire Fairy Enthusiast

I was already depressed prior to the first month so my MD put me on an anti-depressant the same day he told me to go gluten free once it managed to get absorbed I was a lot better. It still sucked though because I was diagnosed at the start of November and had to deal with telling the family at family get togethers, which in my family revolve around food.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,587
    • Most Online (within 30 mins)
      7,748

    michaelf31
    Newest Member
    michaelf31
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.