Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleepovers?


Denine

Recommended Posts

Denine Newbie

My 10 yo daughter is supposed to go to a sleepover this weekend.  I was OK with it, but now I am not sure.  She was dx'd in January and has been doing great.  However, we were staying at a hotel for a softball tournament and I thought I did everything in my power to avoid any problems, but she ended up with a stomach ache all 3 mornings.  This is the first time she has had a stomach ache since going gluten-free.  The mom of the friend says she is gluten intolerant and can manage the disease for one night. My concern is the cross contamination.  My daughter doesn't know about the sleepover yet.  I don't know what to do.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

How about you send her food?

Denine Newbie

I figured I am already going to have to for breakfast.  She gets tired of taking sandwiches everywhere.  It wouldn't be so bad if it was just one girl, but there will be others that my daughter doesn't know.  She will have to explain why she is eating different.  That is fine for her friends that she sees all the time, they get it.  It is hard for the first time.  We are all still so new to this.

shadowicewolf Proficient

I figured I am already going to have to for breakfast.  She gets tired of taking sandwiches everywhere.  It wouldn't be so bad if it was just one girl, but there will be others that my daughter doesn't know.  She will have to explain why she is eating different.  That is fine for her friends that she sees all the time, they get it.  It is hard for the first time.  We are all still so new to this.

 

 

Can you get the menu for that night perhaps and possibly send a long a gluten free equivalent of the item that will be served?

cyclinglady Grand Master

As long as you feel comfortable that your daughter KNOWS which foods are safe for her, I'd encourage her to go.  I'd also send snacks for everyone and skip dinner.  I typically send a big bowl of homemade popcorn, fruit or gluten-free cookies (that's all I bake) for sleepovers or Girl Scouts since we have a girl who's allergic to milk and nuts (and the hosting parents are always appreciative).  If that girl's at my home, we serve only safe foods for her so that she doesn't feel different.   

 

You could also  pack her favorite box of cereal (hummm, Rice Chex) and then her favorite yogurt/fruit  for breakfast that she could share.  

 

Just be sure that the hosting mom is aware of potential cross contamination and lots of hand washing is done.  

 

I'm sure your daughter's new friends will be compassionate!  

nvsmom Community Regular

I would send food too. gluten-free chips/nachos, maybe some fruit, some muffins for the next morning... I find that as long as I send enough food for everyone, no one cares if me or my kids is not eating everything else.

come dance with me Enthusiast

My 10 year old has only been on a couple of sleepovers and only with close friends of ours.  I send a take away container with a lid and a fork with easily reheatable food so they only have to heat it in the microwave and give it to her in that container.  For breakfast, I send one of the bowls with the lids with the right amount of cereal in it, and she takes a So Good soy milk popper to put on the milk.  She also takes her own spoon for that.  I send snacks in zip lock bags like pop corn, Leda and Orgrand brand biscuits, and if I send dessert, it's an individual tub of coconut ice cream or similar, also with her own spoon for that.  I also send a couple of sandwiches in Smash containers.  Most of it fits in her lunch box except for her dinner and her breakfast.  When we travel we take our own pre-made food with us, usually frozen left overs because that's the easiest thing to take, and depending on how long we're going for I'll often take a box of cereal but sometimes if it's only for a weekend I'll take the bowls with the lids.  We're going to stay with a friend for 5 days, from this Thursday so I've been cooking extra of certain meals, and because of the length of time, I'll take a full box of cereal and a 1L UHT milk for breakfasts.  Once we get there I'll buy bread, Nutellex and some type of spread.  To wash them, I take our own dishwashing wand with the dishwashing liquid in it.  That way there's no room for mistakes.  This friend is really good anyway, my daughter has been diagnosed for a few years now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



justa Newbie

Is it possible at the softball event she just had a virus?

I can't comment on the sleepover but maybe there was no messup at the event and she was just sick?

Not being sarcastic but that could happen too, gluten-free doesn't stop virus. I'm new so I am wondering myself here.

blmoreschi Apprentice

I had the same thought about the virus. We are new to this also - my 11 year old was just diagnosed in April.

 

She has been to two sleepovers since then, and it has worked well both times. Mainly because I trusted the moms. And both times she took a big bag of Angie's kettle corn with her, because all of her friends love that and she likes to share. And she took a box of rice chex so that they could have pancakes and not worry about her. We are blessed to have wonderful friends (and friends' moms) who "get it". The first mom had done gluten-free for their family for about a year to try to deal with behavior issues for her son, so she got it. They were having tacos, and we went over everything that was being served, even brands of potato chips.The second mom is actually MY internist - and her husband is gluten intolerant. When I contacted her when the party invite came in she told me she had already ordered a gluten-free cake from someone who has a celiac family member, and that they were going to do a cookout and she would have Udi's buns. When I got there, I broached the issue of grill contamination, and she had never thought of that. They ended up cooking my daughter's on foil.

 

This works because (so far) my daughter isn't that sensitive. It sounds like you are in the same situation - so I say send her! We can't wrap them in a plastic bubble, and I think this age is particularly a hard age to be diagnosed. They are just getting more social and don't want to be seen as different. At the same time, there have been a few events where my daughter has said "no way, I'm not going" because she knows it won't be a good food situation for her. But at the same time, if she really wanted to go we would have made it work.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.