Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recommendation For Severe Cases?


neal

Recommended Posts

neal Rookie

I have known for two years or so that wheat is messing me up, but I would start eating it again after I started feeling better and kind of forgot about it. Plus I like to believe that the body can somehow heal itself of anything. Or that maybe God is looking out for me. Three weeks ago my appendix ruptured, but I was so used to having pain in my abdomen, that I waited 3 days before letting someone drag me to the hospital.

iv antibiotics/opiates for a week/ antibiotic pills and vicodens for another

so here I am kind of feeling like I am about to die, and not to sure that I don't want to.

similar to many here, my life has been a study in pain

I know the appendix is attached to the small intestines, which are where the celiac gnomes hang out and trash stuff. Any thoughts on a relationship there?

The lady at the healthy store recommended l glutamine to help restore the lining

 

i take some probiotics that I know help, and

pancreatin

 

any other suggestions other than the obvious strategy of avoiding the glutoids

 

I have not been clinically diagnosed, there seems to be little point in that

I have researched all this celiac business, so I know the basics of it pretty well. 

 

I do not want to die from eating toast< that would be so lame


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

 

 

I do not want to die from eating toast< that would be so lame

 

 

OMG!  We have a new Celiac Motto!  I love it!

kareng Grand Master

In all seriousness. I'm not sure what you have a severe case of? Seems like if it was related to gluten, you would stop eating gluten. Since you have been eating gluten, why not just get tested? Maybe if you had a diagnosis you would take eating gluten-free seriously?

seraphim Contributor

I'll second this...I didn't know the ins and outs of celiac when I went gluten free and I wish I did know because though I have some signs of possible celiac..i really don't have an official diagnosis other than gluten intolerant. Looking back I wish I had because I certainly don't have the guts to gluten myself for an endoscopy now. I felt too horrible. And it SUCKS to wonder. Even though the protocol is the same I still wonder especially with the other issues that creeped up for me after that made me wonder if I had intestinal damage. I think it sounds like you should just go gluten free if it spares you pain anyhow? I had pains since I was about 8 or 9. I'm now 30. I went gluten free at 29. 20 years of pain..not knowing ANYTHING about wheat issues....it just wasn't worth it. Too many nights on the toilet. Doctor only ever suggested lactose intolerance. It just sounds to me it's worth figuring out. I say request a test for sure!

w8in4dave Community Regular

Yes I feel you should get tested, so you don't think in your head " Well I have never been diagnosed so I will eat it!" so if you get tested and diagnosed then you know you will be better at sticking with it!! Just get it done!! And listen to your Drs. SO you don't die eating toast!! 

Olive Oil Newbie

I have known for two years or so that wheat is messing me up, but I would start eating it again after I started feeling better and kind of forgot about it. Plus I like to believe that the body can somehow heal itself of anything. Or that maybe God is looking out for me. Three weeks ago my appendix ruptured, but I was so used to having pain in my abdomen, that I waited 3 days before letting someone drag me to the hospital.

iv antibiotics/opiates for a week/ antibiotic pills and vicodens for another

so here I am kind of feeling like I am about to die, and not to sure that I don't want to.

similar to many here, my life has been a study in pain

I know the appendix is attached to the small intestines, which are where the celiac gnomes hang out and trash stuff. Any thoughts on a relationship there?

The lady at the healthy store recommended l glutamine to help restore the lining

 

i take some probiotics that I know help, and

pancreatin

 

any other suggestions other than the obvious strategy of avoiding the glutoids

 

I have not been clinically diagnosed, there seems to be little point in that

I have researched all this celiac business, so I know the basics of it pretty well. 

 

I do not want to die from eating toast< that would be so lame

I have been taking l-glutamine for about 2 months now (1000 mg/2xday).  A few days in, my appetite improved and I have gained some weight back.  I've heard that colostrum is helpful as well so that may be something to look into.  

 

On the appendix, my sister had hers rupture coupled with extreme endometriosis about 7 years ago.  She was 19 at the time.  She has not been diagnosed with Celiac disease; however, it seems likely.  I have been diagnosed.  I would definitely say the appendix issues could be related to Celiac disease.  

 

I am sorry you are in so much pain and hope you find some relief.  I agree with your toast sentiment :)  Reminds me of the ad the Australian Metro system put out about railway safety:  

 
notme Experienced

lolz - that is hilarious - it even has 'toast' in it :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

.  

 

I am sorry you are in so much pain and hope you find some relief.  I agree with your toast sentiment :)  Reminds me of the ad the Australian Metro system put out about railway safety:  

 

 

That is toooo funny!   And that little song is stuck in my head now!

neal Rookie

My two questions are:

 

Could untreated celiacs lead to a ruptured appendix?    

 

and: 

 

Are there any other measures (in addition to abstaining from wheat) I can take to speed my recovery?

 

I am currently five days off gluten, though I did have some corn products that seem to have fouled things up a little.

 

I am taking:

 

L-glutamine.....seems to be helping

probiotics......definately helps

pancreatin...... seems to help

 

I will look into colostrum!   thank you all for the response!

neal Rookie

And thanks for the video
:)

notme Experienced

i don't know if your appendix was caused by gluten eating, but sooooo many things that were wrong with me cleared up when i was diagnosed and went gluten-free (kicking and screaming, i might add!!  i was in denial til it almost killed me)  

 

have you read the newbie 101 thread on here?  it's got alot of info you might find helpful.  most of us quit dairy in the beginning, if there's damage to your intestines you won't be able to digest it and it will slow healing.  keep a food journal if something is making you react and you can't figure out what.  good luck and watch out for deadly toast  ^_^

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.