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Scared

NateJ

By NateJ
in Coping with Celiac Disease

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NateJ Contributor
NateJ
Posted

I went and had a ct scan with all the dye today. I don't know why i'm so cared of the results but i'm kind of freaking out.

I've had so many tests and things done in the past i'm not sure why this one is bothering me so much.

I've never hoped for IBS, but I am now.

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dani nero Community Regular
dani nero
Posted

No point in worrying yourself before you actually see the results. 

Hopefully it'll be ok :-) Don't worry, try to relax. 

bartfull Rising Star
bartfull
Posted

I just went back and read some of your previous posts so I could get an idea of what is going on with you. It seems you have been gluten-free for a couple of years now and you are sick again. I understand why you are worried, but maybe it's something as simple as a new intolerance you have developed. I'll be praying, crossing my fingers, and sending positive thoughts your way. (((((HUGS)))))

NateJ Contributor
NateJ
Posted
  • Author

thank you both.

I'm trying my hardest not to be a hypochondriac but the internet is evil and someone should take it away from me.

I'm going to play some games and walk my dog later to try and relax. This whole thing has me completely nerve racked.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Hey Nate

Hope the dog walking etc. helps.

We will be here if you need to talk it through when you get results, fingers crossed it will all be fine. You might find other answers about possible reasons, like additional intolerance - some of mine totally took me by surprise - dairy I kind of expeced, but corn and soy - seriously??

Hang in there

Mw

NateJ Contributor
NateJ
Posted
  • Author

I took it upon myself to cut out everything and see a dietician a couple weeks ago. and with little or no cheating I've eliminated everything with FODMAPS

but i'm still feeling horrible. Its frustrating.

I will for sure let everyone know when the test comes back, and hopefully you can all poke fun at me and tell me how I was worried about nothing.

I'm looking forward to it.

dani nero Community Regular
dani nero
Posted

Hang in there Nate and don't listen to those internet demons. They just want to make you worry and feel miserable. 

Just live normally, and every time you start thinking about this just tell yourself that worrying about it won't make time go faster, and won't help you go through your days until the appointment comes. Let it be business as usual until it's time to deal with this.

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mommy2krj Explorer
mommy2krj
Posted

Hugs to you. The waiting and not knowing is always the worst part. Always....especially if you've made Dr. Google your friend! That is one friendship you should cut off immediately! Hard though, I know.

Hope everything comes back ok and you can figure out something less sinister as the source of your problems.

NateJ Contributor
NateJ
Posted
  • Author

"CT scan was negative for mass, fluid, or signs of inflammation. Positive non obstructing kidney stone, no swelling of kidney noted. Continue plan for you to see GI specialist"

 

From my Dr this morning.

Good and bad I guess. But I'm taking it as good for now.

I'm sure the GI will want to probe further.

Now everyone can tell me how silly I was. :)

bartfull Rising Star
bartfull
Posted

HOORAY!! It IS good news. No cancer (I know that is what you were worried about), nothing but a kidney stone that isn't causing problems. Now, let's try to figure out if it is an additional intolerance. :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Sound like good news :D

 

Hope the FODMAPS goes well. Many of us have a range of other intolerances too, and cutting out those can make a world of difference.

dani nero Community Regular
dani nero
Posted

Oh congratulations :-) I'm happy to hear that it wasn't as bad as you thought it might have been. I think that you did a good job. You were aware that reading about possible diagnoses online would get you more paranoid than logic dictates, and you stopped yourself. Well done :-)

w8in4dave Community Regular
w8in4dave
Posted

At least it is something you can have taken care of!! Thank goodness!! It is never silly to worry! It is in us to worry!! Because WE know our bodies and know when there is something wrong. Never feel silly or stupid for worrying about a test! It is your health at stake! Goodness gracious , ease up on yourself a lil :) I am glad your ok! :) Huggz! And your dog got a good walk out of the deal! :) 

NateJ Contributor
NateJ
Posted
  • Author

Thanks everyone.

I'm still not feeling myself, but at least I'm functioning. Been on FODMAPS for two weeks now and I need minimal improvement.

I'm going to stick it out a little longer until I see my GI next week. Maybe they will have some suggestions about it.

The only soy i'm getting now is from Ensure shakes twice a day. But other than that I've had no peanuts, legumes, soy, lactose, gluten, or corn in over two weeks now.

And I think my weight may have finally bottomed out. I haven't lost any more in about a week. so crossing my fingers!

bartfull Rising Star
bartfull
Posted

That soy COULD be what is doing it. I can't tolerate even the slightest bit of soy. And just about ALL soy in the US is now GMO. Besides that, doesn't Ensure have a bunch of corn syrup in it?

NateJ Contributor
NateJ
Posted
  • Author

It does. But I haven't drank it for a long time and wasn't feeling any better, so I figure I need to get some type of nutrition since I cannot eat anything right now.

Or not much of anything.

I've asked before if anyone new of something better and never got any responses, so I'm stuck with this.

I will ask my GI about it next week probably. I imagine he has to have someone in a similar situation that just can't eat.

AlwaysLearning Collaborator
AlwaysLearning
Posted

Have you been tested for vitamin and mineral deficiencies? They often go hand in hand with gluten allergies and some don't seem to improve even if the digestive system has had time to heal.

Over-the-counter B12 tablets took care of my abdominal pain - in minutes after taking just one! But I did take it with OJ so who knows if folic acid played a part as well. And it doesn't last long.

I'm just starting down the road of figuring out my deficiencies and am far from getting all of the answers I need, but am super excited to finally have some relief after six years of pain and a new direction to investigate.

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