Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brother Has Same Symptoms But Wont Adhere To Diet (Rant)


whitepine

Recommended Posts

whitepine Apprentice

So I've been on the gluten-free diet for about a year and a half now and my brother has had the same symptoms as me ever since I started to get sick 8 or 9 years ago. I've told him countless amounts of time that he needs to take the gluten-free diet into consideration and see if it helps him out.
So finally his girlfriend started him on the diet but the didn't take it too seriously even though they say that they are gluten free. They refuse to take any advice or consideration when I say, this is obviously not gluten free when it say in the ingredients that it contains wheat flour. It's very frustrating for me because while my time on the diet hasn't been that long compared to many many people, I do have a lot of information and experiences that I can share with him. But his girlfriend has suddenly become some expert in a matter of months because she read some stuff online about it.

So just about every week he complained about how sick he is and how he can't go a day without vomiting. A few days later its about how he saved money on buying 36 beers for him and his girlfriend and the cycle repeats. But when I ask him if he's gluten free he gets all mad at me and tells me that he is and acts like it was an obvious stupid question for me to ask.

It's very frustrating because it's honestly like watching a someone walk into a wall over and over again while asking everyone around them why it hurts and expecting sympathy for the bump on their head. My mother is also very sympathetic to him every single time, my brother is in his 30s now, but she brushes off any problem I have even though I am very strict on my diet and strict on my vitamins because I WANT to feel better. If I tell her I am not having a good day or week,  she immediately turns it into something about my brother. Honestly, I can't give him any sympathy because he refuses to actually help himself when he KNOWS he shouldn't eat gluten.

Anyway, I just had to rant that to people who may also feel as frustrated as I do sometimes about people who complain about their symptoms but refuse to take the illness seriously. I think if you take your illness seriously, you do everything you can to resolve it but you are still unwell, you are entitled to complain about it. If you slack off about it and then expect to be treated to an extended period of sympathy by everyone, well you're just crazy.

I would be more than happy to help him through the rough patches if he'd listen and take it seriously. ah well. such is life.






 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbrookes Community Regular

Your brother is a grown person. Leave him alone. He will make his own decisions. A psychiatrist friend of mine once told me that people will do whatever they want to do. If it becomes too painful for them (physically or emotionally) they will change. You can't make anyone change.

 

As for your mother's attitude, that seems to be a screwed family dynamic. Maybe you need more time with friends and less time with family.

I have no idea why this is underlining or how to stop it.

Gemini Experienced

I am afraid that what mbrookes said is the ugly truth...there are some people who just cannot be saved and, as hard as it is for you, you need to forget about helping them.  I have the same problem with my family.  I have a double celiac gene and that means it is on both sides of my family.  I am loaded with people with tons of medical problems, all related to Celiac, and none of them ever listened to me.  I gave up when I reliazed that they are stuck deep in the denial pit with no way out.  Is it frustrating beyond belief?  You betcha!  But I just do my own thing and am now healthier than all of them combined.  Hard to believe that people would choose to remain sick so they can eat a donut but there you go.....it is what it is.

 

Concentrate on your own good health and recovery and let them do what they want.  However, if they ASK for help, then feel free to help them with gusto but until they ask, forget about it...they will only drive you crazy.  :rolleyes:

AlwaysLearning Collaborator

I so feel your pain. When I went gluten free and realized all of the little things that it "cured", I immediately realized that my entire mother's side of the family was exhibiting symptoms with just a few exceptions.

But I did limit the number of them that I told about my suspicions about their health. My sister was the first person I told ... and she responded to our telephone call by sending me a nasty, accusatory email the next day complaining that I had made her feel badly. All I told her was to do her own research because it is linked to many of the things she suffered from. Granted, she did end up going gluten free, but man, talk about shooting the messenger.

I have a close friend who is gluten-free but when he started, there wasn't much information available so he wasn't doing very well despite being at it for several years. When I told him that not all vodka was gluten free, he flat out told me I was wrong and got pissed at me. But I don't think that was so much because he didn't like being told he was wrong as losing yet another thing that he found pleasurable. 

So yeah, I learned early on to keep my mouth shut ... though if anyone asks at the next family gathering, I will soooooo mention the symptoms that I know that they share when listing any of the things that just magically disappeared and how great I feel after going gluten-free.



 

blessedmamaofmany Newbie

the only thing that got my brother and parents on board, was an actual Celiac diagnosis, with gene test.  I have both the celiac gene AND the gluten sensitivity gene.  Once I told them the results, my brother and mom FINALLY agreed to go gluten-free.  I'm hoping my dad is right behind.  

srall Contributor

Kindly say your piece, then leave it up to the other person. 

 

When I was 42 I went gluten (and dairy and corn) free after many years of symptoms, but 2 years of rapidly failing health.  I watched my younger brother suffer from the same health issues and be diagnosed with diabetes at age 40 but refuse to even consider going gluten free (His gastro tested him for celiac, and he had negative tests so he was told that gluten wasn't an issue).  Well,now he is 42.  I just saw him a couple of weeks ago and he finally decided to go paleo to feel better after doing all of his "own" research about the subject.  So maybe 42 was the magic age for my family.

 

I have a feeling that your brother may get fed up and explore what he needs to do to feel better on his own.  I had people (not doctors, just concerned friends) screaming "You have celiac" at me for a year and I just told them they were nuts.   When I was at the point I was crying "uncle" I was ready to listen.  I hope your brother gets there.

howlnmad Newbie

You can lead a horse to water but you can't make it drink.

Obviously he enjoys being uncomfortable and sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



w8in4dave Community Regular

yup I agree with the others. Maby one day he will be in such misery he may come to you and ask. But if you push it you may just push him away. As for your mom , just tell her you cannot talk to her about his health because it bothers you that he doesn't care for himself.

 

My friends tell me how poud they are of me. The Dr. Tells me not to eat Gluten so I don't. All there is to it! Or I should say , trying my darndest not to!! lol  

bellalunarena Newbie

Oh my, OP, I understand your frustration, but in a different way...My MIL, when I was telling her about my celiac dx, said "I am bloated and my side hurts, maybe I have celiac disease too". She's one of those people that whenever someone around her is sick, she suddenly thinks she has whatever they have too.

 

"Celiac disease...that means I'll have diarrhea when I eat pasta, right?" She asks. I explain what celiac disease is, and I say "If you have celiac disease, you can say adios to 95% of what you eat, at least, the way you make it. Breaded cutlets, your homemade pasta, your rolls...you'll need to find a different way to make it." Her face turned green and two days later she informed me that it was not celiac disease, but merely gas.

 

*facepalm*

w8in4dave Community Regular

LOl "Facepalm" hahaha Love that!! Yes I was a bread maker!! Noodle maker! Ughhh 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    4. - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    CC324
    Newest Member
    CC324
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.