Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Allergy And Now Calcium Supplements

seraphim

By seraphim
in Related Issues & Disorders

Recommended Posts

seraphim Contributor
seraphim
Posted
  • Author

Just opened the link..about to read but wanted to say now that i think about it.....i used the washroom while at the allergists as did my husband and in both the bathrooms we were in they had air freshener...this is a place for asthma and allergies. When we went into her office for consultation..even though the sign said no food or drink...there were crumbs on our chairs. Nothing said about perfumes and a woman came in bathed in it. The nurse who took my blood pressure had a strong mint gum she was chewing. Would these be bad signs? Because we didn't know what to think.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


seraphim Contributor
seraphim
Posted
  • Author

Interesting read I gotta say but scary confusing. I don't know what to think. Either way i should stay away from milk at least for now IF it's an intolerance but...between that cramping and the foot swelling. What do you make of that? I gave up dairy a year ago because i figured it might be a problem...was dizzy etc. But no cramping at that time not until i tried it again.

 

I was also going to get skin pricked with lip gloss that caused me issues to see if i am actually allergic to it...i assume that's different from pricking for food though?

kareng Grand Master
kareng
Posted

Open Original Shared Link

 

This is the most recent (I believe). It talks about when to test and so on.

Thanks for that link. A very good resource. I'm learning a lot from it.

notme Experienced
notme
Posted

Just opened the link..about to read but wanted to say now that i think about it.....i used the washroom while at the allergists as did my husband and in both the bathrooms we were in they had air freshener...this is a place for asthma and allergies. When we went into her office for consultation..even though the sign said no food or drink...there were crumbs on our chairs. Nothing said about perfumes and a woman came in bathed in it. The nurse who took my blood pressure had a strong mint gum she was chewing. Would these be bad signs? Because we didn't know what to think.

you probably need a good in-patient evaluation.   has anyone else suggested this to you?   in a controlled environment, where you won't come into contact with all these contaminants.

seraphim Contributor
seraphim
Posted
  • Author

No they haven't. Seems ridiculous anyone would have to go to such lengths I dunno why they couldn't just run the place better than that...it's an allergy specialist I mean...SHEESH! I went to see her originally about my lipgloss reaction but she decided to send me for food and environmental panels and while i was in the waiting room one of my reactions happened. It could have been a coincidence I guess because that happened on and off for weeks even when i was at home. But there was a lot coming our way in there I have to say. Because I have a possible salicylate intolerance they exist in smells as well and at the time i thought the red apple lipstick lip gloss may have overflowed my load that my body could handle and so i was reacting to everything. Now I'm not sure. No idea.

seraphim Contributor
seraphim
Posted
  • Author

By reactions I mean intense prickly itching on my fingers causing me to rub them together and a couple fingers swelling slightly. Same reaction I had with the lipgloss. And like the swelling on the bottom of my foot with the milk.

1desperateladysaved Proficient
1desperateladysaved
Posted

Aside from celiac I have a dairy allergy that's considered to be moderate on my blood test. I don't know about intolerance i just know i'm allergic. I was wondering if anyone else here has an ALLERGY to dairy and takes NOW food supplements? They said it's gluten and dairy free on the calcium carbonate powder i'm taking...i'm unsure at the moment but i wound up introducing calcium powder and turnip into my diet at the same time. I know that's a bad idea and i'll be testing this out one and a time over the next week or so. Either way...I'm just concerned the calcium powder might be an issue. Before i found out i have a dairy allergy i tried a small bit of butter and wound up with IBS like cramping....the past few days i've had that again. I'm leaning more toward the turnip for one reason or another but i need a calcium powder with no additives..completely mineral based..dairy and gluten free due to a possible salicylate intolerance on top of all of this. Over all i've felt physically better aside from occasional cramping maybe once a day. I dunno what to think but I'm concerned because allergies are serious business. they say they have good manufacturing practices and i used glutentox to test the calcium powder as low as 5 ppm's and it was fine..so I'm hoping the dairy is just as safe? I don't know much about allergies...so if anyone can be of any help? I would assume even intolerant people might be able to answer this question since casein intolerance you can be extremely sensitive to an allergen. I really need a calcium powder that's also salicylate free so i'm hoping it's just the turnip. Or neither.

I recall my Functional Medicine nurse being happy when I admitted to ignoring the advice my doctor gave me 25 years ago to take calcium supplements.  I tried, but they made me sick.  She was happy, because she told me the calcium supplements can make celiac symptoms worse  I think that may be something for you to consider.

 

My calcium is quite high, now.  I am gluten free about 18 months.  I am dairy free.  I have been using nuts for flour.  I am not sure what all is causing my levels to go up, but I know that absorbing nutrients is a BIG HELP!

 

D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

I'm glad the link is helpful to some of you.  It's a thick read but I think it sums things up pretty nicely, now if all the Dr's would just read it ;) 

 

As for the office...Yeah...you would think an office dealing with allergies would be a little more keen on keeping patients safe but unfortunately they are like any other office.  We've been through 6-7 allergists and they are all pretty much the same. They do clean down the rooms before though but that doesn't help in the waiting areas.  

 

I get skin reactions from cutting squash. It's strange and crazy but something in them cause me a bad skin reaction. I can eat them fine though so who knows.  There is also something called oral allergy syndrome that you may want to check out for lip issues like you mentioned. 

seraphim Contributor
seraphim
Posted
  • Author

That's the weird thing though...it did nothing to my lips but my fingers and feet got swellings and i got hives. Then they kept coming back every so many days after the initial attack for about 3 weeks. It happened about 20 minutes after using the lip gloss. Sure has me scratching my head.

IrishHeart Veteran
IrishHeart
Posted

 

As for whether I have celiac....I don't know if I do..i think i do based off what i've been going through and that gluten was definitely an issue before i cut it out. But IrishHeart you told me in private messages ages ago that i didn't have celiac.Flat out "you don't have celiac hon" Which could be true but you don't know anymore than I do.And again i felt defensive. I could be celiac and just not have an official diagnosis. And perhaps this is what you meant but you need to pick your words more carefully.

 

 

 

And you need to be very careful about selecting certain words from a long conversation and painting me in a bad light. I was out of town for a few days and just read this post and feel it necessary to respond to your remarks.

 

I think it is unfair of you to say that this is all that I said to you because it makes it sound like I just randomly private messaged you and told you "you don't have celiac, hon".

 

What actually occurred was ......you asked my opinion about salicylates and an elimination diet and other things after  25+ exchanges over a few days  I tried to help you sort it all out and very patiently went over all the things you said doctors told you and what your test results were.

I gave you many links to many reliable sources, didn't I? Your own doctors do not think you have celiac.

 

You've never been to a gastroenterologist, your celiac panel was negative and you did not have a biopsy done.

 

You said you were diagnosed by fecal fat testing and I said

 

Based on that "You do not have celiac, hon".

 

here it is-- right here--copied from my saved messages:

 

You do not have celiac, hon.

It is not diagnosed by fecal fat testing, sorry.

 

What's wrong with saying that? It's the truth!.

 

 

So, if you are going to talk openly on a thread about what I may have said to you, be sure to tell the whole story, please, rather than make me appear to be so uncharacteristically rude and judgmental and using personal messaging to diagnose people. I do not do that.

 

You can't twist things to make you appear to be "picked on". I find this to be a bit of a slam on my character, truth be told.

seraphim Contributor
seraphim
Posted
  • Author

Wasn't implying that you didn't help me at all. And I never had a celiac panel done. Therefore may I just be gluten intolerant yes. I can't say I have celiac but I nor you can say I don't either. We don't know. I didn't pick or choose anything. You can say i might not have celiac. You cannot say "you do not". I've never had testing. And when did I say my doctors don't think I have celiac? My doctor has celiac disease down on his system based off of me, symptoms and enterolab. I didn't ask him to. I also told you that at the time. I also never said it was just fecal fat testing. I said that showed malabsorption and i had antibodies in the feces according to enterolab.

StephanieL Enthusiast
StephanieL
Posted

:unsure: So if you and your Dr. think you may have Celiac, why haven't you had the testing done?  

seraphim Contributor
seraphim
Posted
  • Author

Because I'd been gluten free already and too sick I didn't think at the time that it mattered. It was long before I ever learned a lot more about it and how you can't test properly after the fact. I couldn't fathom stuffing my face with gluten with how sick i was so I never did the gluten challenge. The official diagnosis isn't important to me now. The outcome is the same in this instance.

StephanieL Enthusiast
StephanieL
Posted

Ahhhh.  Did you ever think about the genetic test? If you do/plan on having kids I would want to know for that reason alone if I was passing on the genetics so I would know what to look for. 

 

seraphim Contributor
seraphim
Posted
  • Author

I'm doing  23andme test at the moment which is genetic testing but I have no idea if they look for celiac genes. What would I request for a blood test for that?

ValeriaZ Rookie
ValeriaZ
Posted

 

  Except, allergies are not the same as food intolerances and we have told you this many, many times.

 

this is from the MAYO CLINIC:

 

Milk allergy or milk intolerance?

It's important to differentiate a true milk allergy from milk protein intolerance or lactose intolerance. Unlike a milk allergy, intolerance doesn't involve the immune system.

 

 

 

Hahaha. Mayo know best and everything in such subtle and unexplored issue as allergy and intolerances...

 

My son NEVER tested positive for allergy to gluten or milk or soy but he is horribly "intolerant" to them - in his case this is an autoimmune response in form of nephrotic syndrom (proteinuria)

Just wondering where Mayo would classify this

StephanieL Enthusiast
StephanieL
Posted

It would be an intolerance.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    2. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    4. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    5. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.