Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Interesting Things (Wheat Germ And Low Weight)


laura1959

Recommended Posts

laura1959 Apprentice

I guess I'll continue to post in this pre-diagnosis forum, since I probably will never have an official diagnosis.  

 

I thought I'd ask the group about a couple of things.  The first is wheat germ.  I used to love this stuff, but even back in the day I discovered that, when I'd eat it, I'd get terrible indigestion and stomach pain.  I never had this with other wheat products, just wheat germ.  So I stopped eating it entirely and probably haven't had any in 30 years.  Anyone else experience that with wheat germ before you realized you were GI/celiac?  

 

The second thing is kind of odd.  I was always very, very thin in my younger years.  We're talking 5'7" and 95lbs kind of thin.  No matter what I'd do, I could not put weight on, and I stayed this way into my late 30's or early 40's, at which point I finally began to gain (I quit smoking and went on an ice cream binge which, I swear, changed my metabolism).  Now, in my 50's, I struggle with weight gain like anyone else my age.  

 

I know that being very thin and unable to gain weight can be a sign of celiac, but why would it change all on its own without stopping gluten?  Any thoughts?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I think you answered your own question - your metabolism DID change, partly from age, and a good part from quitting smoking. Even if you aren't digesting your food and absorbing nutrients, sugar goes into your system almost instantly, along with all of its calories.

laura1959 Apprentice

Yeah, I understand what you are saying.  I just wonder-- does that happen to other people here before getting on the gluten-free diet?  Does the metabolism change with age and bring with it the usual weight problems even if you are celiac?  I guess I'm trying to tease out whether my inability to gain at a younger age might have something to do with gluten intolerance or if that is just coincidental.  Same with the wheat germ reaction.  Is there something about wheat germ in particular that makes it particularly heinous, like a high gluten content?   

cyclinglady Grand Master

I've been small my whole life until I got pregnant at 40.  Even though I only gained 26 pounds during pregnancy, I never lost the last 10 pounds.  I assume it's because 1) I breastfed forever and 2) I started perimenopause at age 41 (fat cells contain estrogen!).  Since then, my weight hasn't changed and I confess I still eat like a pig!   On the other hand, my hubby has been gluten free for 12 years.  He was heavy before and is still heavy now.  

 

I think you gave up smoking, got old :lol: , and gained weight (celiac or not!).  However, I think there's hope.  Start moving and count your calories.  I'm waiting to see if my weight increases as my healing continues (gluten-free for five months).  

burdee Enthusiast

Another common consequence of (or correlation with) celiac disease is autoimmune disorders.  One of those disorders is Hashimoto's thyroiiditis or low thyroid levels, which impair many metabolic functions. Common symptoms are fatigue, low blood pressure, low body temperature, difficulty losing weight, hair loss, and constipation.  Many docs overlook, misdiagnose or discount hypothyroid symptoms.  The usual test for hypothyroidism is a TSH level test.  TSH is a pituitary hormone which is inversely related to the amount of thyroid hormones in the blood.  However, the amount of thyroid hormone in the blood doesn't tell how much of those hormones actually enter the cells and regulate many metabolic functions.  So you could have a 'normal TSH level' and still have hypothyroid symptoms.  Also many docs and labs continue to use outdated TSH 'normal' ranges, which allows many people to go undiagnosed. 

 

Long story short:  Your metabolism could have slowed down because of hypothyroidism.

laura1959 Apprentice

Thanks, everyone.  It's probably the classic age-related weight gain.  The ice cream didn't help, either!  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.