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Started With Stomach Spasms & Internal 'throbbing' Again!

flowerqueen

By flowerqueen
in Coping with Celiac Disease

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flowerqueen Community Regular
flowerqueen
Posted

I was diagnosed almost 2 years ago, after being ill for some time and recently received a report saying my gut is healing well after further biopsies.

 

However, recently I have started with stomach cramps again, and 'throbbing' in stomach & lower down - the 'usual' trips to the bathroom etc.   I have started keeping a food journal again, but I'm mystified.  I have IBS as well, and can't tolerate dairy, I also have diabetes.  So I am going between blaming gluten, accidental dairy, not enough fibre and intolerance to sugar.  I have had problems with Metformin and have reduced it down to one a day, but my doctor will blow a gasket if she finds I've stopped taking it altogether plus my glucose will go through the roof.

 

Has anyone else had a similar problem, and has it sorted itself out?  I remember before I was diagnosed with Coeliac disease having a problem with something contaminated with milk, but didn't realise what it was that was making me ill until a supermarket store wrote to us to inform us of some accidental contamination they had found with dairy.  Fortunately for me at the time, I had a store loyalty card and that is how they knew we had purchased the product.

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surviormom Rookie
surviormom
Posted

Spasms, throbbing, and gurgling are common these days with me, I bloated up over something.  My guess in this instance is too much sugar and an over run of bacteria, but I take my probiotics every day, so I am not sure.  I could have had an accidental CC.  As I type this my intestines are talking, so yeah, it happens.  

flowerqueen Community Regular
flowerqueen
Posted
  • Author

Spasms, throbbing, and gurgling are common these days with me, I bloated up over something. My guess in this instance is too much sugar and an over run of bacteria, but I take my probiotics every day, so I am not sure. I could have had an accidental CC. As I type this my intestines are talking, so yeah, it happens.

Thank you, you have just reminded me that I used to take probiotics, but in recent months have stopped. For some reason, it hadn't occurred to me - this can happen when you have lots of health issues. I shall recommence to see what happens.
answerseeker Enthusiast
answerseeker
Posted

Your certain your not getting cc'd? My gurgling has completely stopped as well as the spasms since going gluten free but if I get cc'd or have dairy it comes right back!

flowerqueen Community Regular
flowerqueen
Posted
  • Author

Your certain your not getting cc'd? My gurgling has completely stopped as well as the spasms since going gluten free but if I get cc'd or have dairy it comes right back!

I'm being open minded about everything at the moment. I am keeping a food journal to see if anything shows up on that.

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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      Trip to Anaheim/Disney

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      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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