Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mental Health Crises: What Else Might Be Wrong?


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

Anyone know of someone having a mental health crises and later it was found that they had a physical illness?  What physical illnesses/defects can mascarade for mental illness?

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SkyBlue4 Apprentice

Don't know if this qualifies as a crisis really but my son has PANS/PANDAS (autoimmune reaction to an infection) that causes anxiety/OCD as well as Tourette Syndrome overnight. He literally went to bed one night and woke up a different kid. We rushed him to the ER thinking he must have meningitis or something. It was scary.

IrishHeart Veteran

D

 

Do you mean besides celiac, righ? because that surely causes what appear to be mental health issues like depression and anxiety as many of us can attest.

 

let's see,  a few could be:

uncontrolled diabetes

endocrine and metabolic disorders

lyme disease

severe Vitamin deficiencies , like omega 3s and essential fatty acids, amino acids

anemia

a stroke, lupus, mono, and Parkinson's disease

Pain relievers, tranquilizers, birth control pills, antihistamines, muscle relaxants, and several other pharmaceuticals can mess with your head.

food additives, chemical sensitivities

heavy metal poisoning

candida albicans

hormonal imbalances

sleep deprivation

a brain injury, blow to the head, etc.

food intolerances, histamine intolerance and allergies

Pseudobulbar affect (PBA)
 

and I might add: a visit from an annoying mother-in-law could trigger total madness in some folks ...Just sayin

1desperateladysaved Proficient

Wowie,  I am guessing the doctors didn't check for all of that before administering their drugs.  In fact, I know they didn't.  I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors.  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?  I doubt it, but I gotta try.

 

How to win friends and influence doctors without going totally bonkers yourself?  Sometimes I feel like D is trying to take on the whole medical establishment single handedly!  For this lady, I have to try.

 

Thanks for the ideas, it gives me more ideas of what questions I should ask.  I need all the amo that I can get.

kareng Grand Master

Wowie, I am guessing the doctors didn't check for all of that before administering their drugs. In fact, I know they didn't. I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors. I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes! I agree that celiac can make you sort of bonkers! The one in crises also had a trigger event having not been the same since back surgery 5 or so years back. She may have been checked for celiac, but may have low IgA and IgG. She has had kidney problems and thyroid issues in the past. Sigh. She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere? I doubt it, but I gotta try.

How to win friends and influence doctors without going totally bonkers yourself? Sometimes I feel like D is trying to take on the whole medical establishment single handedly! For this lady, I have to try.

Thanks for the ideas, it gives me more ideas of what questions I should ask. I need all the amo that I can get.

Just a couple of thoughts. She isn't low on IgG, but can be low on IgA. her doctors can't discuss her case with you without her permission. You might be able to make some suggestions to her or her family?
1desperateladysaved Proficient

Just a couple of thoughts. She isn't low on IgG, but can be low on IgA. her doctors can't discuss her case with you without her permission. You might be able to make some suggestions to her or her family?

Thanks, the nurse I talked to got clearance for me.  I just basically asked questions about what care she was getting.  I am hoping for some influence in the situation in a gentle way!

 

I did read about one person who claimed low igG, so that is what made me think of it.  My IgG level is not high, so I have been wondering.

IrishHeart Veteran

  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?

 

 

 

but "celiac genes" do not determine celiac. You know this by now.

She may have selective deficiency of IgA, but they test for that when they do the celiac panel .

Sometimes, someone becomes stressed and the body has low seratonin levels. That would also cause mental health issues.

If she does not really respond to SSRIs, which are often prescribed for depression, then perhaps it is another medical condition that is the underlying cause.

 

Good luck with talking to medical personnel. I suspect they will nod and say "uh huh" and walk away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

but "celiac genes" do not determine celiac. You know this by now.

She may have selective deficiency of IgA, but they test for that when they do the celiac panel .

Sometimes, someone becomes stressed and the body has low seratonin levels. That would also cause mental health issues.

If she does not really respond to SSRIs, which are often prescribed for depression, then perhaps it is another medical condition that is the underlying cause.

 

Good luck with talking to medical personnel. I suspect they will nod and say "uh huh" and walk away.

Yeah, alas that is all true. 

IrishHeart Veteran

Yeah, alas that is all true. 

Believe me, Diana...I understand how frustrating it is to watch someone you care about go downhill and not even take any suggestions

from you about what could help. .

 

All you can do is be supportive, offer ways to help if she goes gluten-free (despite negative celiac panels) and be a friend.

 

As we often say on here, you can lead the horse to water.... 

kareng Grand Master

Thanks, the nurse I talked to got clearance for me.  I just basically asked questions about what care she was getting.  I am hoping for some influence in the situation in a gentle way!

 

 

 

You said this lady didn't want your help.  This nurse should be fired for talking to you about a patient's care, especially mental health issues!  As a person who worked on and with Health Information Laws for many years, I'm upset about this.  However, when your friend is better, she will be able to sue the hospital or doctor and this nurse for a lot of money.

 

 

Its possible her issues have nothing to do with Celiac - in fact, because only about 1 % of the population have Celiac, its really likely there is a different reason.

frieze Community Regular

Open Original Shared Linkn"

while this link isn't specific to this issue, if you research the doc involved you will find much of interest.

and Irish, the OP did mention a potential inciting event....and that the person involved hadn't "been right" since.

Open Original Shared Link

interesting, according to this a lack of niacin may actually contribute to developing

 

celiac.Open Original Shared Link

might this explain the occasional person who seems to tolerate gluten after long term healing?

1desperateladysaved Proficient

Believe me, Diana...I understand how frustrating it is to watch someone you care about go downhill and not even take any suggestions

from you about what could help. .

 

All you can do is be supportive, offer ways to help if she goes gluten-free (despite negative celiac panels) and be a friend.

 

As we often say on here, you can lead the horse to water.... 

Yes, again.  Been there and done that and expect to do it again.

D

  • 2 weeks later...
Loey Rising Star

Wowie,  I am guessing the doctors didn't check for all of that before administering their drugs.  In fact, I know they didn't.  I am not in control (It is not me) but I am going to be asking questions which I hope may help the doctors.  I happen to know the lady involved in the health crises and her one child has celiac genes both 2DQ2 and 2DQ8 genes!  I agree that celiac can make you sort of bonkers!  The one in crises also had a trigger event having not been the same since back surgery 5 or so years back.  She may have been checked for celiac, but may have low IgA and IgG.  She has had kidney problems and thyroid issues in the past.  Sigh.  She doesn't really want my ideas, but maybe my talking to the medical personnel possibly will get somewhere?  I doubt it, but I gotta try.

 

How to win friends and influence doctors without going totally bonkers yourself?  Sometimes I feel like D is trying to take on the whole medical establishment single handedly!  For this lady, I have to try.

 

Thanks for the ideas, it gives me more ideas of what questions I should ask.  I need all the amo that I can get.

She's lucky to have you in her corner! Sometimes meds (for depression or any med) can cause depression. So can being sick for a long time. Keeping you in my thoughts & prayers!

Healing (((hugs))),

Loey

1desperateladysaved Proficient

She's lucky to have you in her corner! Sometimes meds (for depression or any med) can cause depression. So can being sick for a long time. Keeping you in my thoughts & prayers!

Healing (((hugs))),

Loey

Thanks, that means a lot.

D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,497
    • Most Online (within 30 mins)
      7,748

    sturfninja
    Newest Member
    sturfninja
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.