Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ah!


NateJ

Recommended Posts

NateJ Contributor

seemed like as good a top title as any.

I'm giving myself a nervous breakdown over this stupid scope tests. I cannot force myself to take the prep meds for my test tomorrow. Every instinct i have is screaming not to take this horrible crud. I've had 4 of these and they never find anything wrong or conclusive or even constructive to say except quit smoking or follow up in 6 months.

I starve myself to the point of exhaustion and have been through every poke prod needle xray scan scope humiliation and embarassment they can dream up and I'm still right back where i started. Underweight, sick, depressed, and at the end of my rope with all of this.

I do not like this GI doctor and don't feel comfortable with him. I'm just over it and want to be able to feel normal again.

 

Idk what i would do without this forum. I hate that others suffer with all of these ailments and it drives me crazy thinking about how most suffer needlessly and without less support than we have.

 

Can you tell i'm overwhelmed by all of this?

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Having just done the prep a few weeks ago for a combo colonoscopy & endoscopy with biopsy of my entire GI tract, a test for h.Pylori and polyp removal (amazing what we reveal on her...ahem....) , I can say "I hear you", but

I did it because it was necessary and without it, I'd have no knowledge of my status/prognosis.

 

 

I know it's not exactly the most fun thing to do (and I have had to do it many times in the past, so I get the "poking, prodding thing" ) but if this helps the doctor figure out what else may be going on inside your intestinal tract, well, you may want to just suck it up (or down, in this case) and have him take a look.

 

Good luck. Just think, in 48 hours, it will all be in your rear view mirror. Hang in there.

notme Experienced

this is one of those times i would personally take some xanax - i get all spun up - ugh, i feel for you, buddy.  i don't take but like 1/3 of the dose i am prescribed to fly/travel, but it takes the (unnecessary!  and i can tell myself all day and all night 'you are worrying over nothing') edge off the anxiety.  and helps my guts not to turn to goo <my gi was going to prescribe me some to calm my nerves/help my guts to not spaz out when i stressed but i told her, no thanks i already have some lolz :) 

 

i have been putting off my endo/otherendo scope/follow up and all that until this fall - although i did have my blood/vit levels/etc checked (not any antibody testing, although the dumb guy said he would do it) i am currently between gi's - we just got a brand new hospital in town and i was hoping a group from knoxville would open an office nearby.  no dice.....  so, do i go back to the group i wasn't really impressed with?  or find a better one in knox vegas (which is a farther drive, waaaayy too close to all the shoe stores and such, and now will include lunch................  hmmmmmmm.................... )

emilykay405 Rookie

I agree with you 1000%. I am so tired of being poked, prodded and marinated. My Mom joked that they only thing they haven't done is cook me yet...this was before I got the results back from my colonoscopy and my answer was, "They may yet, depending on what they found..."

 

I'm also really tired of getting the eye roll from co-workers. Yes, I miss work. No, I'm not out galavanting around slaying dragons and looting ogres. I have a special schedule that allows me 3 days off during the week. I can't get it through my bosses head that some appointments cannot be changed or moved on a whim. And some are urgent enough that I can't wait until they have an appointment to fit my schedule. Not to mention I need at least one day that doesn't include appointments to just recharge from all of it.

 

Whew. Sorry about that..been in a funk for a week about all this nonsense. That being said, I try to put a smile on my face and joke with all the nurses to brighten their days as much as possible. Eventually I'll have a full weekend to do normal things (and feel like doing them...) but until then I take the advise of a fish named Dory, "Hey there, Mr. Grumpy Gills. When life gets you down do you wanna know what you've gotta do?...Just keep swimming. Just keep swimming. Just keep swimming, swimming, swimming. What do we do? We swim, swim."

w8in4dave Community Regular

Only thing is to get answers they need to poke prod and do other dastardly things to us! Sometimes they find it sometimes they don't! Hopefully they find it sooner than later!! 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,004
    • Most Online (within 30 mins)
      7,748

    Daffodil
    Newest Member
    Daffodil
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.