Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow... How Long For Results?


appletree729

Recommended Posts

appletree729 Apprentice

I'm so happy to report that I'm finally getting my endoscopy done tomorrow!  I don't know what it will show - if I'm true celiac or not - but I'm giving up gluten regardless.  I've had a nice several weeks of chowing on all the best gluten-laden foods I could find and now I'm ready ;)

 

Anyway - how long until you get the biopsy results?  Is it just a few days to a week, or is it longer?  Will the doctor be able to tell me anything immediately after the procedure about how things looked?  Like are there any clues that are visible with the scope or is it all from the lab afterwards?

 

I'm actually having a colonoscopy done at the same time and am quite nervous :P  I'm nervous because of the logistics with taking care of my 4 kids and making sure everybody is where they need to be tomorrow and safe while I'm not available, how my milk supply will handle the 24+ hours without food (I'm nursing a baby), and nervous about how I'm actually going to handle going that long without food without fainting :P  I've got plenty of juices and things that I'm allowed to have though, at least until tomorrow morning.

 

anyway - I'm doing this mostly for my kids anyway - we have so many weird GI issues going on with them, we have the double DQ2 genes and low IgA in the kids.  I figured that it might help explain some things if I do end up having celiac - there might not be so much mystery behind their conditions...

 

I'm a rambling worry-wart right now!  Sorry!  am anxious to get this done and get the test results!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

It depends on the doctor.

 

Most damage is microscopic. So unless the damage is really bad, visible damage probably won't be seen.

GF Lover Rising Star

I'm so happy to report that I'm finally getting my endoscopy done tomorrow!  I don't know what it will show - if I'm true celiac or not - but I'm giving up gluten regardless.  I've had a nice several weeks of chowing on all the best gluten-laden foods I could find and now I'm ready ;)

 

Anyway - how long until you get the biopsy results?  Is it just a few days to a week, or is it longer?  Will the doctor be able to tell me anything immediately after the procedure about how things looked?  Like are there any clues that are visible with the scope or is it all from the lab afterwards?

 

I'm actually having a colonoscopy done at the same time and am quite nervous :P  I'm nervous because of the logistics with taking care of my 4 kids and making sure everybody is where they need to be tomorrow and safe while I'm not available, how my milk supply will handle the 24+ hours without food (I'm nursing a baby), and nervous about how I'm actually going to handle going that long without food without fainting :P  I've got plenty of juices and things that I'm allowed to have though, at least until tomorrow morning.

 

anyway - I'm doing this mostly for my kids anyway - we have so many weird GI issues going on with them, we have the double DQ2 genes and low IgA in the kids.  I figured that it might help explain some things if I do end up having celiac - there might not be so much mystery behind their conditions...

 

I'm a rambling worry-wart right now!  Sorry!  am anxious to get this done and get the test results!

Just settle down :lol:  Everything will be right with the world when you finish your procedures.  Just think, after tomorrow you can start feeling better regardless of the results.  The Doctor may or may not say anything after the procedure.  Biopsies usually take around 1 - 2 weeks for results.  Let us know how it all goes. :)

 

Colleen

Renaye Contributor

I am having an upper and lower gi procedure on Wednesday.  Eating bland stuff today.   I am also having gi trouble but have already had a negative biopsy before.  Good luck!

 

Renaye

appletree729 Apprentice

Thanks for the responses everyone :)

 

Just got home - things went really well and my doctor said that everything looked great, and that he doubts I have celiac, but of course we need to wait for the test results, so we shall see!

 

He took 7-8 biopsies so I feel like if there is damage there, it's likely to be found with so many!  Happy that I don't have to do this again, at least for a long while.  

 

Going gluten free now even if the results come back negative...  he said 1-2 weeks for results...

shadowicewolf Proficient

Thanks for the responses everyone :)

 

Just got home - things went really well and my doctor said that everything looked great, and that he doubts I have celiac, but of course we need to wait for the test results, so we shall see!

 

He took 7-8 biopsies so I feel like if there is damage there, it's likely to be found with so many!  Happy that I don't have to do this again, at least for a long while.  

 

Going gluten free now even if the results come back negative...  he said 1-2 weeks for results...

 

The small intestine is about 15 to 32 feet in length. It is very possible to miss damage.

GF Lover Rising Star

Glad everything went well.  :D

 

Colleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



appletree729 Apprentice

"The small intestine is about 15 to 32 feet in length. It is very possible to miss damage."

 

lol - I know.  I just meant that I was happy that he took so many biopsies because I know that is important.  Not sure if there are many doctors out there that take more than 8 biopsies...

 

In any case, if there is damage, I hope it's picked up on the biopsies that were done!  

appletree729 Apprentice

Well, got the results today and everything came back normal..  so no celiac disease.  I should be happy, right?!  But oddly, I'm actually disappointed.  This would have been a manageable, not so serious diagnosis with an easy solution that didn't require medication.

 

Oh well.  Mystery still remains as to the cause of my abdominal pain, brain fog and all the other complaints. Or maybe this is just the way I'm supposed to feel and it's 'normal'.  That would suck!

moosemalibu Collaborator

It depends on the doctor.

 

Most damage is microscopic. So unless the damage is really bad, visible damage probably won't be seen.

 

I haven't gotten my biopsy results back but just wanted to add that my endoscopy showed gross abnormality of mucosal atrophy. So sometimes there is visible damage. But I am assuming my biopsy will be consistent with my serology test results and be positive for celiacs.

love2travel Mentor

"The small intestine is about 15 to 32 feet in length. It is very possible to miss damage."

 

lol - I know.  I just meant that I was happy that he took so many biopsies because I know that is important.  Not sure if there are many doctors out there that take more than 8 biopsies...

 

In any case, if there is damage, I hope it's picked up on the biopsies that were done!

Actually, a celiac doctor in Canada said at a lecture I attended to request 11+ biopsies and even at this seemingly high number it could still be missed. She looks at biopsy reports completed by other physicians herself and said a low percentage are done and/or read correctly. But at least yours took 8, rather than a paltry 2 or 3.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.