Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Experience, New Member, Gluten Intolerant And A Lot To Learn


anjacherry

Recommended Posts

anjacherry Newbie

Hi all, i am new to this forum. I have been gluten free for a week now. i have suffered from bad constipation (to a point of bleeding) with the occasional explosion when eating certain food, really itchy skin, headaches  and bizarre mood swings and extreme tiredness and brain fog ever since i was a child until last week someone said to me it sounds like you are gluten intolerant. So i did some research and wow i am amazed, this seems to be the answer to all my heath problems for the last 35 years i used to think i suffer from spouts of depression but after only one week of going gluten free i feel fantastic, no bloating, no tiredness, no headaches, no dizzy spells, no belly aches, no mood swing, no toilet-problems no brain fog and my skin is much better. I eat very healthy now fresh fruit, veg, salads, rice and potatoes, fresh meat and gluten free bread (and biscuits). not had anything processed all week and don't really miss it that much.   The only downside is the hunger, not found a lot of quick snack solutions yet as sometimes the fruit just don't hit the spot but its early days and i still have a lot to learn about it all. I am surprised as to how disciplined i am, and my family has noticed a big difference in me. I have always had a very low sex drive but even this has started to increase, i read gluten can kill your sex drive if intolerant and i would really like to hear other peoples experience with this problem in particular. thanks for taking the time to read this fellow sufferers xx 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Greetings and thanks for the well wishes,

Have you any desire to get an official diagnosis?

You have had a positive response to the diet it seems!  That is great.

I had 30+ years of it too but feel better.

 

All the best in your new trek,

D

anjacherry Newbie

Hi, thanks for your reply. I am not sure if i want to go to the doctors with it. How is it diagnosed as i read somewhere its done by blood test and would mean going back to eating gluten in order for it to show up, is that right? I don't think i want to go back as i feel great now and cant wait for my body to properly heal itself . I think i will just carry on doing what i am doing for now and next time i am going to see my nurse to get my repeat for contraception i will mention it to her and see what she suggests. xx 

nvsmom Community Regular

You've only been gluten-free a week so if you test immediately, or add a couple of days of gluten eating, you should have an accurate test result - especially if multiple tests are run. The problem comes if you want to get tested a few months from now, then you would have to eat gluten for a couple of months for accurate testing... Nasty!

 

I'm glad you are feeling so much better already! Welcome to the board.  :)

anjacherry Newbie

thank you x

GF Lover Rising Star

Regarding the sex drive, feeling not death-like will increase the response to sexual intimacy :P  I have never seen any research that specifically links sex drive to gluten.  On another note, un-diagnosed Celiac Disease can contribute to fertility problems when and if you do decide to have children. 

 

Hope you do well.

 

Colleen

anjacherry Newbie

Hiya, and thanks for your reply, you are probably right its the way gluten made me feel that killed my sex drive. But that was one of the first things i found when i started researching gluten intolerance. On one  website some guy said how since going gluten free he cant stop flirting literally with any woman he speaks to lol and he even had gluten to test if it really is the gluten and the desire to flirt stopped.

I had no problem fallen pregnant, when we decided to try for a baby, but had trouble gaining weight throughout the pregnancy and she was born very small only 4lb8. perhaps that's why. :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mum in Norway Contributor

I have the same experience as you when it comes to the sex drive. For me, I think gluten has been effecting my hormons, and that has messed with my mood, my weight, my periods, skin, sexdrive and maybe some more things that I haven't noticed yet. I have never ever had  of totally regular periods where you know almost exactly the date in advance, and also I used to have about 4-6 weeks between them. But it was alwas like that, so I didn't think that much about it. But after going glutenfree, they became absolutly regular, to the date, with a normal 4 week cycle. And with that, my sexdrive showed up, and my husband is very happy :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.