Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!


cinda

Recommended Posts

cinda Rookie

I am so frustrated. For the second time in two weeks I have gotten sick, and for the life of me I can't figure out how. Granted I am pretty new at all this. I am reading labels, and printed off the forbidden list. I have been being so careful. I have used pam cooking spray and it has never bothered me before. I read the label. Did i miss something? My husband thinks it is because I am still detoxing and I went 7 hours without eating anything, by then the headache was there. The fuzzy head, and bad bad tummy, so sick, I had to lay down. Seems each time is more intense than the last. I took 2 ibuprofen without even thinking. I got sicker. Yes I had eaten by this time. Even drank a half of a coke thinking my Blood sugar might be low. It is the same symptoms everytime.. just more intense. I was so sick to my stomach and woosy I could barley crawl into my bed from the couch. The only difference is i dropped 2 pounds and I'm not bloated this morning. The usual after effects are there I feel hungover and groggy and so sore, everything hurts, light headache waiting to come on full force. Any advice would be wonderful.

cin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

How long have you been gluten free? For some people it takes a while to feel better. For me it took 8 months to get back to normal... however I did have improvement well before the 8 months.Some people may see an improvement sooner than that and some it may be longer.

Have you changed things such as perfumes, hairsprays, soaps, shampoos, makeups, nailpolish, and things like that which can easily get into your digestive tract?

If you would like some lists I have you are welcome to email me and I can send them to you. Some of the lists are very extensive and make life alot easier.

cinda Rookie

I'm into my third week now gluten-free. So basically I might be still kind of detoxing? I haven't switched makeup, hairspray or perfume, I'm trying to be very careful. I use dove soap and I wash my hands constantly. I do feel so much better already. Such a huge improvement. I guess that is why it seems I get sicker. It is so much more intense. My dietician told me it will take up to six weeks for the gluten to get out of my system. I thought tho since I have been feeling so good it would continue.

I would love any lists you have that would help me. I am in my learning phase still. Hubby says "mourning phase" lol. I just hate being that sick and not really being able to place it. It is so frustrating.

Thanx

cin

KaitiUSA Enthusiast

You should consider switching makeup and products as well because traces can easily get into your system.

The lists I send may be able to help you out a bit with that.

It can take alot of time to feel better depending on how much damage is done and other things so you have to give it time.

SherriRoy Newbie

I hate to put a damper on things, but your symptoms may take a lot longer to go away. I've been doing it for two and a half years and I have never improved on the diet. Although to give you a boost, i'm the only one that I've heard not been helped on the diet. Give it time, and try to be patient.

Did you get rid of all your old pots and pans? even cleaning with soap can still leave gluten imbeded in the surface of them. New spatullas everything...go all the way if you can. With the celiac diet I find you do go hungry a lot. There is a lot less fiber and carb that feel like they take up room in your body. You'll get used to that I guess.

As to labels, one of the things that caught you might be sensative to are additives. For some reason celiace get more sensative to food...especially a lot of the chemicals they use to preserve them. Just a suggestion..maybe try to elliminate a few to see.

I hope things get better. I swear everything is a test of patience, but I believe you will be benefitted.

I hope I will one day too:)

Sherri

bluelotus Contributor

I noticed you all mentioned perfume - what perfumes are gluten-free? I have changed my hair products, etc, but not perfumes. hmmmm. sorry for the sort-of change in subject.

As mentioned by everyone else, be careful of contamination. Even foods that don't list gluten as an ingrediant may not be gluten-free . There are definitely plenty of examples (like OceanSpray's trail mixes), but I know KatiUSA has posted a list of companies elsewhere that declare all gluten containing ingrediants. You should also consider emailing/calling all companies of foods you eat regularly to double check their contamination policies.

Bette Explorer
I have used pam cooking spray and it has never bothered me before. I read the label. Did i miss something?

The Pam spray caught my attention. I just pulled some out to use today, it was the "All Natural- Extra Virgin Olive Oil" and was perplexed and decided not to use it because the second ingredient listed says " grain alcohol". I haven't had time to try and verify if this is gluten free or not, but grain alcohol sounds suspicious. Can anybody recall if this has been verified?

I am going on my 6th month gluten-free, and I also started getting very sick with your same kind of symptoms,especially after about the 2nd-3rd week gluten-free. It does get better, but I react now with more intense symptoms when I have been glutened. I know I am on the right track, but now I have other intolerances that are cropping up. Hang in there ;)

Bette


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Pam's fine.

It's corn.

cinda Rookie

thanx everyone for all your help... i'm trying to hang in there and be positive... headache finally went away.. i don't want it back so i'm gonna try harder.... helps to know i'm far from alone... everyone on here is so nice .... and the help is awesome!! and kaiti thanx again for the lists.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748

    Juliane
    Newest Member
    Juliane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.