Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update On "drunken" Symptoms In 3 Year Old.

D-borealis

Recommended Posts

D-borealis Rookie
D-borealis
Posted

Purely by accident, I believe I have discovered what was causing my daughter's drunken symptoms explained in a previous post. OATS.  We had been having certified gluten free oatmeal every morning for quite some time, and then just happened to run out. 3 days after not eating it for breakfast I realized the loopy behavior seemed to be diminishing. We are going to give it more time to see if things continue to improve, but I am quite hopeful that this is the ticket, and my daughter is one of those 20% of celiacs that also reacts to oats. I hope this discovery can help someone else that someday might experience the same, so I wanted to update.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

thanks!

dilettantesteph Collaborator
dilettantesteph
Posted

Glad you figured it out.  I am also sensitive to oats.

w8in4dave Community Regular
w8in4dave
Posted

Wow!! Even Gluten Free oats huh? Good to know! What brand are they? I am glad to hear you figured it out!! 

D-borealis Rookie
D-borealis
Posted
  • Author

Wow!! Even Gluten Free oats huh? Good to know! What brand are they? I am glad to hear you figured it out!! 

I've used two brands one is prOatina and one is the Bob's red mill, both are certified gluten-free however apparently 20% of celiacs react to oat protein in and of itself and I think that is what's going on here.

mommy2krj Explorer
mommy2krj
Posted

I'm glad you may possibly have it figured out. It stinks that it's another food you have to cut....but awesome that it isn't something more serious.

Adalaide Mentor
Adalaide
Posted

So glad it isn't something more serious. The possibilities with those symptoms were positively scary! And hey, there are worse things to live without than oats. It's doubtful that she'll remember her oatmeal mornings and there are other hot cereals she should be able to have if you want to keep giving her hot cereal with winter fast approaching. (Or already here depending on where you live.)

 

A lot of people (me included) like Bob's Mighty Tasty Hot Cereal, although to be honest I'm not sure on whether or not it's oat safe because of possible CC. A quick email or call should be able to let you know. And there is a ton you can do with grits to make it appealing to kids her age.

 

Anywho, gratz on figuring it out and on it being something so minor and not a major medical issue. That is such great news. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Juliebove Rising Star
Juliebove
Posted

Interesting!  Due to a mistake on my part, I now know that oats make me itch all over.  gluten-free or otherwise.

tommysmommy Newbie
tommysmommy
Posted

Amazing. Glad you figured it out. Some days I feel like life is a jigsaw puzzle, if you keep looking - eventually the pieces will fit.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748
    Pesto
    Newest Member
    Pesto
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.