Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

GDLions

Recommended Posts

GDLions Rookie

My son has been diagnosed with Celiac and he is getting glutened.  Best I can tell, it is coming from his 1st grade classroom at school.  Everyone is aware of his Celiac, there are doctors notes/diagnosis on file, we have met with the teachers, nurse and principal but there no 504 in place.

 

Here is the problem, I believe.  The students eat snacks everyday in class.  They do this while sitting in the front of the class on the floor, they are allowed to walk around eating, and to snack through out the day whenever they need.  According to the teacher about 90% of the students have gluten snacks.  There is one student who carries crackers with her most of the day setting them down on shared tables and leaving crumbs behind.  The students rotate through out the day to different tables, all of which have had someone eating gluten at them at some point during the day, without being cleaned. 

 

We take every precaution with my son's snack and hygiene in the classroom.  He brings his own food, he eats at his desk, he lays a paper towel down to place his snack on, he washes his hands before he touches his food, he always brings his lunch and his lunchroom hygiene is very good as well. 

 

I think he is getting glutened from all of the crumbs and snacks laying around the classroom.  Have any of you had any issues with this or dealt with the teachers/administration regarding classroom snacking problems?

 

Thanks for any advice you have.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lisalamitie Newbie

I have never heard of a classroom where the kids can eat all day long and carry food around with them. Sounds very distracting. How are they doing their work if they are eating all day long? Is this just in this classroom or is that permitted through out the school? If its just that classroom Id ask to switch teachers. If its a school rule then Id meet with principal and explain how this could be harmful to your son and others with different allergies. Perhaps you can be the voice of change.

mom2aaeande Newbie

I'm new to the diagnosis (just received the definitive results on Dec 4th) and we aren't gluten-free quite yet.  Slowly transitioning and trying to get everyone on board.  But this is what worries me the most.  My child is in preschool.  So I will be following this thread closely.

GDLions Rookie

I'm new to the diagnosis (just received the definitive results on Dec 4th) and we aren't gluten-free quite yet.  Slowly transitioning and trying to get everyone on board.  But this is what worries me the most.  My child is in preschool.  So I will be following this thread closely.

I have two boys with Celiac...1st grade and pre-school.  We were just diagnosed in July of this year.  My younger son was much easier to deal with in the classroom, I think in part because his class was much smaller (6 kids vs. 26).  He had the same issues with snacks and getting glutened.  We had all children wash their hands when they got to school, during snack/lunch time each child had to sit at the table to eat in the same spot each time, wash their hands when they were done, and the tables were all cleaned after the children were finished.   This seemed to take care of the problem for my youngest.   His teacher has been amazing, checking with me before she uses ANYTHING in class that might contain gluten and being super vigilant about keeping cross contamination down.  We were hoping it wasn't going to be as big of a problem in 1st grade....we were wrong.  Getting a classroom of 26 kids is a bit harder to change than 6 pre-schoolers.  They have a whole science curriculum that centers around meal worms...who live in some kind of gluten food/bedding.  It is all over the classroom.  I felt bad telling them they couldn't do it, so we tried it and I think we made it through that one okay, but this snack thing is another story.  The teacher already seems a bit overwhelmed with various other things in class and trying to educate several teachers, nurses and other staff is a bit daunting.  I am sure we will both figure it out, it just can be overwhelming at times!!!!    

dilettantesteph Collaborator

It is really hard to protect your child from other peoples food while at the same time making things as normal as possible.  You need to work with the teacher to figure it out.  My son sometimes has to work at his own desk space a bit away from all the food.  Sometimes he will ask people sitting near him to wait until later to eat.  It really depends on individual circumstances.  

 

Often we realize that it is something in his diet and not the school situation that is making him sick.

StephanieL Enthusiast

Why do they walk around all day with food? That just sounds strange on so many levels.

We have a no food in the classroom policy for my DS. He has other allergies as well. They had snacks in K but not this year. They had the kids go out into the hall at a little table 3-4 at a time to have snack and they washed hands when they came back into the class. The entire class washes when they come in in the morning and after lunch/recess.

Iis there a reason they don't want to give you a 504? I would really push for one as it can be critical going forward (and I hear for college they are actually really important!).

Hugs. It's hard to protect them from things others don't see as a danger.

deb445 Rookie

My little guy (now grade 2) has had a rough go of it at school too. Glutened at least once a month. September alone had him sick 3 times. We seem to be doing ok now - 3 months symptom free! And this in a classroom that does candy rewards. (Don't get me started). He has had to become a bigger advocate for himself, (easier when they get older) and washes his hands several times a day. He is motivated :)  Norwex cloths are also great for packing in snack bags, and wicking away potential contaminants. (...and no, I'm not a distrubutor). This is the longest he has gone without getting sick at school EVER. (...and now I'm knocking on wood). 

 

I can attest to success with the cloths and frequent hand washing.

 

Best of luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      1

      Dizziness after eating green beans?

    2. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      4

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    3. - EndlessSummer posted a topic in Food Intolerance & Leaky Gut
      1

      Dizziness after eating green beans?

    4. - Sheila G. commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      4

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - ShariW replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748

    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
    • EndlessSummer
      I only notice recently every time I eat green beans the roof of my mouth gets slightly itchy and I get extreme dizziness.     I get shaky and sweaty and it last for an hour or two before it goes away. I’ve been allergy tested in the past for food allergens only two came back positive (both in the tree-nut family) nothing in the legumes.   (I do have a celiac disease diagnosis, the reason I was food allergy tested was because I ate a walnut and my lips swelled up)  I decided to test this out to be sure so I ate a couple of cooked green beans last night within 15 minutes I was spinning, my shirt drenched in sweat. My heart racing.   I’m not sure what this is, I do have issues with others vegetables  as my stomach doesn’t seem to tolerate them. Even when they’re cooked I just can’t digest them but they never made me as dizzy and sweaty as the green beans.    anyone else experience this?
    • ShariW
      I have found that in addition to gluten, I am sensitive to inulin/chicory root fiber. I wondered why I had gastrointestinal symptoms after drinking a Chobani yogurt drink - much like being glutened. Happened at least twice before I figured out that it was that chicory root fiber additive. I do not react to ordinary dairy, yogurt, etc.  For the holidays, I will only be baking gluten-free treats. I got rid of all gluten-containing flours, mixes and pastas in my kitchen. Much easier to avoid cross-contamination that way!
    • Scott Adams
      It's great to hear that your gluten-free journey has been going well overall, and it's smart to be a detective when a reaction occurs. Distinguishing between a gluten cross-contamination issue and a reaction to high fiber can be tricky, as symptoms can sometimes overlap. The sudden, intense, food poisoning-like hour you experienced does sound more consistent with a specific intolerance or contamination, as a high-fiber reaction typically involves more digestive discomfort like bloating or gas that lasts longer. Since the protein bar was the only new variable, it’s a strong suspect; it's worth checking if it contains ingredients like sugar alcohols (e.g., maltitol, sorbitol) or certain fibers (inulin/chicory root) that are notorious for causing acute digestive upset, even in gluten-free products. For your holiday baking, your plan is solid: bake the gluten-free items first, use entirely separate utensils and pans (not just washed), and consider color-coding tools to avoid mix-ups. Additionally, store your gluten-free flours and ingredients well away from any airborne wheat flour, which can stay in the air for hours and settle on surfaces. Keep listening to your body and introducing new packaged foods one at a time—it’s the best way to navigate and pinpoint triggers on your journey.
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.