Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Doc Ordered Another Ttg Test

moosemalibu

Recommended Posts

moosemalibu Collaborator
moosemalibu
Posted

So I've only been gluten free since October 25th after my biopsy was performed. Will 6 weeks be a good indication of how I'm doing as far as antibodies go? I thought that antibodies could be elevated for quite some time (years even) after going gluten free...?

 

What's done is done. I already went and had my blood drawn for that plus a fasted lipid panel.

 

Jamie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Why don't you show your doctor information from celiac experts?

Open Original Shared Link

moosemalibu Collaborator
moosemalibu
Posted
  • Author

Why don't you show your doctor information from celiac experts?

Open Original Shared Link

 

Yeah.. that is what I thought.. Sigh. I get a totally new doctor in the new year with Obama Care discontinuing my old insurance so I get to find a whole new doctor to train (or not train.. maybe a good thing).

kareng Grand Master
kareng
Posted

Yeah.. that is what I thought.. Sigh. I get a totally new doctor in the new year with Obama Care discontinuing my old insurance so I get to find a whole new doctor to train (or not train.. maybe a good thing).

At least you will know not to get upset.

They discussed a study at ICDS, the point of the study isn't the interesting part right now. What was interesting is - they took Celiacs with negative TTGs. Fed them teeny tiny ( more than the 20 ppm though) amounts of gluten for 2 weeks. There TTGs didn't go positive. But 2 weeks later, after everyone went back to gluten-free food, the TTGs were positive. The point being - your TTG might rise for a while after you start eating gluten-free.

moosemalibu Collaborator
moosemalibu
Posted
  • Author

Very interesting, indeed. Thanks for sharing, Karen.

KCG91 Enthusiast
KCG91
Posted

Just from anecdotal experience - due to moving countries I got the results of my first blood test and went gluten-free for three weeks. I then had to eat gluten again for a week prior to another blood test. Both tests read the same despite the three weeks 'off'.

 

Going on the above and what I've seen elsewhere, that gluteny week might not have really affected my antibody levels at the time the blood was taken (GP had it half right then!) and presumably they didn't drop during the three weeks off? 

IrishHeart Veteran
IrishHeart
Posted

Not sure why he is ordering the test at this stage at all. Totally pointless.

 

It takes 6 months for major healing to occur, so what's his reasoning? 

 

Do not let this stress you out, okay--no matter what the test results say. They may still be elevated, but

that's not an indicator of anything (you are not messing up, you do not have refractory sprue, you do not have some other disease) You are just still healing, hon.

 

Makes no sense to me. (shaking my head) 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


moosemalibu Collaborator
moosemalibu
Posted
  • Author

Yay... another test to pay for that I did not need. Fantastic.

eers03 Explorer
eers03
Posted

I am one year out and my blood serum antibody markers plummeted from being gluten-free.  My TTG is still pretty elevated.  However, I am IGA Absent.  I was told that with IGA deficiency it can take longer than the average Celiac to have my tissue antibody markers begin to decline.

IrishHeart Veteran
IrishHeart
Posted

Yay... another test to pay for that I did not need. Fantastic.

well, he may have his reasons, but I'd love to hear what they were. (I am curious that way) LOL

you know...that  why? why? why thing you and I share?

 

Ask him nicely to tell you? 

NoGlutenCooties Contributor
NoGlutenCooties
Posted

*&#$ doctors... :angry:

moosemalibu Collaborator
moosemalibu
Posted
  • Author

well, he may have his reasons, but I'd love to hear what they were. (I am curious that way) LOL

you know...that  why? why? why thing you and I share?

 

Ask him nicely to tell you? 

 

Oh - I will ask him. Never fear. I'll report back when I get the call or email.

moosemalibu Collaborator
moosemalibu
Posted
  • Author

OK so I got my results back and a message from my doctor. He indicated that my titers were still elevated but had reduced from previous. He gave me access to the results. So... comparably they have reduced quite a bit. That at least is good to see. He said that he would like to re evaluate again in 2 months. I replied and sent him the link that Karen provided. He really has been a very good at listening and taking my concerns seriously. So I imagine if I didn't have to switch insurance he would have been a really good GI doc. He's a younger doctor so I feel like he may have been easier to talk to. Oh well.

 

So not a complete waste I guess. It actually makes me feel better to see them going down.

IrishHeart Veteran
IrishHeart
Posted

Then, can I get a woot woot for missJamie yo?! woot woot!

moosemalibu Collaborator
moosemalibu
Posted
  • Author

Then, can I get a woot woot for missJamie yo?! woot woot!

 

Thanks Irish!! I am beyond happy to see some progress. :D

nvsmom Community Regular
nvsmom
Posted

Woot*Woot!   :D

 

Glad they are coming down already. :) I'm one whose tTG test took forever to come down. My last test was at about 15 month gluten-free and it finally had almost hit normal BUT I had started steroids so I'm sure that did something to the results.... The members on here helped me with my patience.  LOL

moosemalibu Collaborator
moosemalibu
Posted
  • Author

Woot*Woot!   :D

 

Glad they are coming down already. :) I'm one whose tTG test took forever to come down. My last test was at about 15 month gluten-free and it finally had almost hit normal BUT I had started steroids so I'm sure that did something to the results.... The members on here helped me with my patience.  LOL

 

Must be a recurring theme to start out with zero patience! LOL Here's to your numbers coming down and staying down real soon!

:) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      35

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      My TMJ ended when I lost a middle lower molar. I had an amalgam filling from youth (1960s) that failed and the tooth broke. I had what was left pulled and did not bother to replace it. My bite shifted and the TMJ went away. I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    2. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      ttg iga high (646 mg/dl) other results are normal

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point...
    3. Wheatwacked
      - Wheatwacked replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      ttg iga high (646 mg/dl) other results are normal

      So, since total iga 646, was high , was tTg iga even tested? It is not uncommon to test negative for antibodies and even biopsies to still have Celiac Disease. Many on this forum have gone 10 years testing negative and surviving multiple misdiagnoses before finally being diagnosed as celiac. If trial GFD after all the negative tests are concluded...
    4. Wheatwacked
      - Wheatwacked replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Fiber Supplement

      If you don't like prunes, Figs are rich in fiber, with 3-5 dried figs providing about 5 grams.
    5. Wheatwacked
      - Wheatwacked replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Fiber Supplement

      edited after your post: "one cup of canned prune juice has 707 mg of potassium, while half a cup of dried prunes has 635 mg... whole prunes provide more fiber and fewer calories per serving." - google When I complained of constipation due to my BP meds my doctor recommened prune juice without hesitation, When I bother to eat Prunes or plums it...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,342
    • Most Online (within 30 mins)
      7,748
    Mariebelle
    Newest Member
    Mariebelle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
    • Wheatwacked
      ttg iga high (646 mg/dl) other results are normal

      By Wheatwacked · Posted

      So, since total iga 646, was high ,  was tTg iga even tested? It is not uncommon to test negative for antibodies and even biopsies to still have Celiac Disease.  Many on this forum have gone 10 years testing negative and surviving multiple misdiagnoses before finally being diagnosed as celiac. If trial GFD after all the negative tests are concluded brings improvement, will you continue to eat gluten and suffering since the doctor says you are not sick? Your list of symptoms, mostly unrelated to each other, certainly fits the pattern of celiac disease.  Do you really have nine different diseases, all with cause unknown?  
    • Wheatwacked
      Fiber Supplement

      By Wheatwacked · Posted

      If you don't like prunes, Figs are rich in fiber, with 3-5 dried figs providing about 5 grams.
    • Wheatwacked
      Fiber Supplement

      By Wheatwacked · Posted

      edited after your post: "one cup of canned prune juice has 707 mg of potassium, while half a cup of dried prunes has 635 mg... whole prunes provide more fiber and fewer calories per serving." - google  When I complained of constipation due to my BP meds my doctor recommened prune juice without hesitation,  When I bother to eat Prunes or plums it works.   I think the fruit is better for you than the juice for addition nutrients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.