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- DanteZaffar replied to MelissaClinPsyD's topic in Coping with Celiac Disease5Refractory Coeliac Disease research to reduce anxiety
Does this require proof of having refractory celiac? I’ve been gluten free for a couple months but still feel miserable but I’m not sure if its refractory celiac disease. -
- trents replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1EGD with flatten mucosa
Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific... -
- HeloIP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1EGD with flatten mucosa
For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afrai... -
- Joel K posted a topic in Meet Up Room0Caribbean Sailing with Celiac
Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year. Most likely in the US and/or British Virgin Islands, though other islands may also be considered. Doesn't have to be the same people and doesn't have to be only... -
- Joel K posted a topic in Board/Forum Technical Help0
Forum Rules
Greetings! I'd like to post a request for interest in an event I'd like to set up. But before I do, I'm wondering what the rules for posting in the forum are. Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance.
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By DanteZaffar · Posted
Hello, I’m only 20 and recently got diagnosed with celiac disease. I’ve been gluten free for around 2-3 months now but still feel miserable with bouts of gi symptoms that can come and go. I’m not sure what I’m doing wrong since I’ve cut back on a lot of food and eat more Whole Foods alongside using my own plates and such to avoid possible sites of cross continuation. Recently my gi symptoms seemed to have gotten better but now I’m having a tension headache and some bouts of anxiety which were characteristic of my state when I first started out in the gluten free diet. Am I doing something wrong for these symptoms to come and go randomly??? Or is this normal for the healing process to be so random. I’m scared that I might have unresponsive celiac or refractory even though it would be highly unlikely… -
By DanteZaffar · Posted
Does this require proof of having refractory celiac? I’ve been gluten free for a couple months but still feel miserable but I’m not sure if its refractory celiac disease. -
Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific to celiac disease as a follow-up so, in case he/she does, don't start a gluten-free diet until that blood draw is done.
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For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afraid they’ll tell me the test is negative and then I’ll be right back where I started. Any insights on these findings would be helpful. Thank you.
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Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year. Most likely in the US and/or British Virgin Islands, though other islands may also be considered. Doesn't have to be the same people and doesn't have to be only experienced sailors. But everybody would have to be willing to share in the charter, provisioning, and running expenses, in participating in sailing the yacht, and sharing in the work of living on board for a week or two at a time. This would be a good opportunity to travel safely, foodwise, as all food on board would be provisioned as gluten free. Of course, I realize many with celiac disease concurrently have additional food interaction issues and we would have to plan around these as well. But the main concern and commonality among all hands is celiac disease. We might have some meals ashore as well, and so planning the restaurants out would certainly be a part of our discussions on the trip. The modern yachts will range from 40 to 60 foot long and we'll have berths for six to ten persons, including myself. Since chartering is such a big deal in the Caribbean, we will need to reserve a boat well in advance. So firm committment to the venture would need to take place early once the process begins -- often up to a year in advance. I will have more details once we get some interest. I am a retired ship captain after 48 years at sea, having sailed also in many traditional and modern schooners and a few yachts. I last chartered a 52 foot sloop out of Road Town, Tortola, in the BVI in April 2025, and am course certified in ASA-101, 103, & 104. My USCG Master license for Oceans was finally retired in 2022 and no longer active. I live in Manchester, New Hampshire and work as a Myoskeletal Alignment Therapist with a clinic in Bedford, NH. If you have any interest in chartering with me, please let me know.
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