Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worst Episode Ever


Brit6181

Recommended Posts

Brit6181 Newbie

I was diagnosed with celiac almost two years ago. I have been very careful to avoid gluten, but have been contaminated a few times. I always got horrible intestinal pain, but I would take something to sleep and feel better the next day. I was "glutened" a week ago and have been in intense pain pretty much ever since. Sharp stabbing pains all over the abdomen with occasional radiation to the chest and back. Has anyone else experienced this??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

Sometimes you may have something else going on and blame it on the celiac.  I would go see your doctor, or if the pain is really really bad, go to the emergency room where they can do imaging and get quick results.

dilettantesteph Collaborator

I have not experienced this and would second the recommendation to go to the doctor or even the emergency room.  I usually notice an improvement within 24 hours of removing the source of gluten contamination.

Joe0123 Contributor

The pain radiation to your back and chest is concering and makes me think the gallbladder might be involved.  I definitely think a visit to the doctor is necessary.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Great Value Veggies cannot be trusted.

    2. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    3. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    4. - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

    5. - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,440
    • Most Online (within 30 mins)
      7,748

    cindylou1957
    Newest Member
    cindylou1957
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
    • trents
      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      THANKS again!!!
    • trents
      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.