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Suddenly Have Gluten Sensitivity?

lostinpa

By lostinpa
in Related Issues & Disorders

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lostinpa Newbie
lostinpa
Posted

I have been tested twice for celiac disease and both times my blood work came back negative..I have MS and thyroid problems. I ended up doing the radioactive iodine to kill my thyroid.  I have iron deficient anemia as well.  The anemia only started about a year ago. I had an endoscopy to see if I was bleeding internally.  The only thing that showed up was my stomach lining was red and inflamed.The doctors said that was from my use of Motrin for the last 8yrs.  Never a mention of gluten sensitivity.  Can you all of a sudden be gluten sensitive or was I born with it?  

 

I am so confused about this...

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notme Experienced
notme
Posted

me too!  why do you think you have gluten sensitivity?  celiac wouldn't show in your stomach, it would show in damage to your small intestine.  have you had an endoscopy?

lostinpa Newbie
lostinpa
Posted
  • Author

Yes I had an endoscopy and a colonoscopy.  The reason I might have a sensitivity to gluten was from the suggestion from my neurologist.I have had stomach issues my entire life.  Nausea, constipation, stomach pain....

mamaw Community Regular
mamaw
Posted

did  they  take  several biopsies  when  you  had the  endo done? I too am  thyroidless  from RAI...plus  several other  autoimmune  disorders...it  appears  once  your  get  one  autoimmune  more  follows.....

You  can develop  sensitivity   at  any  time...

There  are  many  who only  have  anemia  &  docs  put  hem on a gluten-free  diet....

Lost  in pa...... I'm  from  western Pa.....(Pittsburgh area)

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Can you all of a sudden be gluten sensitive or was I born with it?  

 

Welcome to the Forum LostInPA -

 

You're born with a predisposition for Celiac - the predisposition for it is genetic.  But that doesn't mean that you will necessarily get it.  Some develop the disease very early in life - pretty much as soon as they are given solid foods that contain gluten.  Others don't develop it until very late in life.  Some develop it after a traumatic event (i.e a serious illness, pregnancy, etc.).  Some have intense symptoms and some have no symptoms at all.

 

(FYI... about 1/3 of the population has at least one of the genes identified as predisposing you to Celiac.  Only about 1% of the population actually has it.)

mommida Enthusiast
mommida
Posted

A gluten free diet has been shown in some studies to be helpful for auto-immune diseases.  (In basic terms..  the gluten protein chain is more complex,  choosing a simple diet is easier for an already stressed body~ so eliminating extra stress in the gut enables the body to be healthier.  The usual suspects for food intolerance/allergies are well known as the top 8 allergen list) 

 

I have known an MS sufferer who went on the gluten free diet as a last line of defense (she could no longer afford her medications).  She has had an amazing turnaround in her health.  She has also decided to avoid sugar among other allergens.  Her doctor now really stresses to patients that changing their diet is part of treatment plan that works.

 

If you have had testing for Celiac/intolerance completed you can start the diet.  Welcome to the board!  Any questions feel free to ask.  Peruse old posts by all means, but if you need to ask questions, it might be best to start a new thread.

sarahdea Rookie
sarahdea
Posted

Yes. My gluten-insensitivity seems to have been triggered by pregnancy. I am very new to gluten-free lifestyle.  Like you, I have thyroid problems. I have to pay down my existing medical bills before I get the endoscopy test to get more difinative results...  But for me, the bottom line is, how do I FEEL. This gluten thing hit me all of a sudden, and I just felt terrible after eating: I mean debilitating gut pain!   When I cut out gluten, I stopped having excruciating pain! And now that I have cut out dairy, my other GI issues seem to have calmed down as well.  

 

So, IMO, doctors and tests ARE important, but as Celiac and NCGI are only treatable by diet, change your diet and see how you feel. :)

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kareng Grand Master
kareng
Posted

Yes. My gluten-insensitivity seems to have been triggered by pregnancy. I am very new to gluten-free lifestyle.  Like you, I have thyroid problems. I have to pay down my existing medical bills before I get the endoscopy test to get more difinative results...  But for me, the bottom line is, how do I FEEL. This gluten thing hit me all of a sudden, and I just felt terrible after eating: I mean debilitating gut pain!   When I cut out gluten, I stopped having excruciating pain! And now that I have cut out dairy, my other GI issues seem to have calmed down as well.  

 

So, IMO, doctors and tests ARE important, but as Celiac and NCGI are only treatable by diet, change your diet and see how you feel. :)

If you go gluten-free, there is no point in other celiac tests - blood or endo. You will have to go back on gluten for a few months to get an accurate celiac test. It's best to get tested before you go gluten-free.

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    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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