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Pre-Diagnoses Questions

My3LittleEs

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My3LittleEs Newbie
My3LittleEs
Posted

Hi, My name is Lori and I am trying to figure out what is going on with my 3yr old daughter, and I am of course driving myself nuts researching while I wait for her test results. I am going to write up a list of her symptoms and see if any of this sounds familiar to anyone. I was led here by multiple internet searches that keep steering me towards Celiac disease. Thank you in advance for your help. Even if this does not sound like Celiac can anyone point me in another direction?

 

 >The main symptom that triggered the concern has been the loss of 4 baby teeth with 2 more that are currently loose. She will not be 4 until almost June and she has lost all of them since Sept 2013. The teeth do not show any signs of decay. They just get loose and fall out. She lost all 4 of them with in 5 months. 

 

>2nd symptom is chronic stomach pain. She complains of stomach main every day and has for a couple of months. She is currently taking Zantac to see if that helps but so far it is not. She has occasional diarrhea but nothing that was causing me real concern.  

>She has asthma. She was diagnosed over a year ago and other than a couple of months here and there she is never really under control. She has had basic allergy testing which came back positive for dogs, dust mites and mold. 

>She has not gained hardly any weight in close to 2 years. On the other hand she is tall for her age but very skinny. Just no weight gain to speak of. 

>She is very clumsy. She can fall down leaning against a wall. She has always been accident prone. 

That is everything I can think of for now. I feel like I am missing something, I will add anything I think of. We are currently waiting on her blood work, urinalysis etc. We are also being told to see a Hematologist.

The reason I am here is because when I search for early tooth loss and other combinations of symptoms Celiac keeps popping up. 

Last Friday her pediatrician ordered the following tests:

Complete Blood Count with Diff

Comprehensive Metabolic Panel

Thyroid Stimulating Hormone

Urinalysis Microscopic if Indicated

Vitamin D, 25 Hydroxy Total

XRay Bone Age Study (Xray of her Left hand)

Calcium/ Creatinine Ratio Random

Do any of these symptoms really fit with Celiac Disease? Does any of this sound familiar. Thank you in advance for your help. :)

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GottaSki Mentor
GottaSki
Posted

Welcome Lori and little one!

 

Yes, all of those symptoms can be associated with Celiac Disease and she should have a complete celiac antibody panel.

 

Request written copies of all her labs.

 

If gluten is an issue you may see low nutrients in the CMP, Calcium or D panels.  Sometimes there are indicators on the CBC as well...but not always.

 

Hang in there Mom and keep asking questions!

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Welcome to the Forum!

 

I agree with GottaSki that your daughter's symptoms defininitely fit Celiac and she should have the full panel of blood work done.  And while I don't have kids myself, I just wanted to add that I believe testing in young children can be trickier than it is in adults because they may not be old enough to have produced enough antibodies for them to show up on the tests in the numbers that would appear for an adult.  So even if the tests come back "inconclusive" or a "weak positive", you may want to ask that the doctor do the endoscopy to check for villi damage just to be sure.

 

Good  luck and let us know how you make out.

My3LittleEs Newbie
My3LittleEs
Posted
  • Author

Thank you both. I also want to add that she has had a red rash on her buttocks all winter that I thought was dry skin. Now I see that is another symptom. I will be glad to be on the other side of this testing so that we can get started on whatever needs to be done. 

bartfull Rising Star
bartfull
Posted

These are the tests you should ask for:

 

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EMA IgA

total serum IgA control test

 

There are also tests for the genes involved, although not everyone who has the genes gets celiac, and some people WITHOUT the genes do.

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      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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