Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pre-Diagnoses Questions

My3LittleEs

Recommended Posts

My3LittleEs Newbie
My3LittleEs
Posted

Hi, My name is Lori and I am trying to figure out what is going on with my 3yr old daughter, and I am of course driving myself nuts researching while I wait for her test results. I am going to write up a list of her symptoms and see if any of this sounds familiar to anyone. I was led here by multiple internet searches that keep steering me towards Celiac disease. Thank you in advance for your help. Even if this does not sound like Celiac can anyone point me in another direction?

 

 >The main symptom that triggered the concern has been the loss of 4 baby teeth with 2 more that are currently loose. She will not be 4 until almost June and she has lost all of them since Sept 2013. The teeth do not show any signs of decay. They just get loose and fall out. She lost all 4 of them with in 5 months. 

 

>2nd symptom is chronic stomach pain. She complains of stomach main every day and has for a couple of months. She is currently taking Zantac to see if that helps but so far it is not. She has occasional diarrhea but nothing that was causing me real concern.  

>She has asthma. She was diagnosed over a year ago and other than a couple of months here and there she is never really under control. She has had basic allergy testing which came back positive for dogs, dust mites and mold. 

>She has not gained hardly any weight in close to 2 years. On the other hand she is tall for her age but very skinny. Just no weight gain to speak of. 

>She is very clumsy. She can fall down leaning against a wall. She has always been accident prone. 

That is everything I can think of for now. I feel like I am missing something, I will add anything I think of. We are currently waiting on her blood work, urinalysis etc. We are also being told to see a Hematologist.

The reason I am here is because when I search for early tooth loss and other combinations of symptoms Celiac keeps popping up. 

Last Friday her pediatrician ordered the following tests:

Complete Blood Count with Diff

Comprehensive Metabolic Panel

Thyroid Stimulating Hormone

Urinalysis Microscopic if Indicated

Vitamin D, 25 Hydroxy Total

XRay Bone Age Study (Xray of her Left hand)

Calcium/ Creatinine Ratio Random

Do any of these symptoms really fit with Celiac Disease? Does any of this sound familiar. Thank you in advance for your help. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Welcome Lori and little one!

 

Yes, all of those symptoms can be associated with Celiac Disease and she should have a complete celiac antibody panel.

 

Request written copies of all her labs.

 

If gluten is an issue you may see low nutrients in the CMP, Calcium or D panels.  Sometimes there are indicators on the CBC as well...but not always.

 

Hang in there Mom and keep asking questions!

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Welcome to the Forum!

 

I agree with GottaSki that your daughter's symptoms defininitely fit Celiac and she should have the full panel of blood work done.  And while I don't have kids myself, I just wanted to add that I believe testing in young children can be trickier than it is in adults because they may not be old enough to have produced enough antibodies for them to show up on the tests in the numbers that would appear for an adult.  So even if the tests come back "inconclusive" or a "weak positive", you may want to ask that the doctor do the endoscopy to check for villi damage just to be sure.

 

Good  luck and let us know how you make out.

My3LittleEs Newbie
My3LittleEs
Posted
  • Author

Thank you both. I also want to add that she has had a red rash on her buttocks all winter that I thought was dry skin. Now I see that is another symptom. I will be glad to be on the other side of this testing so that we can get started on whatever needs to be done. 

bartfull Rising Star
bartfull
Posted

These are the tests you should ask for:

 

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EMA IgA

total serum IgA control test

 

There are also tests for the genes involved, although not everyone who has the genes gets celiac, and some people WITHOUT the genes do.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Pear Bread

      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour ...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Amiah's blog entry in Amiah
      2

      Help!!

      I agree with Trents' reply. In addition ... Your post does not say what you did with your child's diet after the blood test and prior to the endoscopy. Usually the Dr advises a "gluten challenge" prior to the test so that the inflammation is more pronounced and easier to see. On the other hand, if they didn't mention this, you may have reasonably restricted...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Doctors
      12

      Second chance

      @Jmartes71, I understand how frustrated you feel. I have been disappointed with the medical system myself. Have you read my story in my blog? What can we do to help you get better? Nutritional deficiencies are common in Celiac disease. Have you been checked for vitamin and mineral deficiencies? Which supplements are you taking?
    4. Mari
      - Mari replied to Jmartes71's topic in Doctors
      12

      Second chance

      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married. How to Request Copies of Medical Record from Kaiser Permanente...
    5. trents
      - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,683
    • Most Online (within 30 mins)
      7,748
    Alaena
    Newest Member
    Alaena
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Pear Bread

      By Aretaeus Cappadocia · Posted

      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour 1 cup sugar 1 ½ teaspoon baking powder 1 teaspoon baking soda 3/4 teaspoon salt 1/4 teaspoon ground nutmeg 6 tablespoons cold butter 3 large eggs, room temperature 3/8 cup buttermilk (1 tsp white vinegar + 3/8 cup milk) 2 teaspoon vanilla extract 1 ½ cup finely chopped ripe pears (1-2 med/large pears. You could peel them but I don't) Directions (optional) cut butter into pats, place on saucer in the refrigerator while prepping other ingredients In large bowl, combine flour, sugar, baking powder, baking soda, salt and nutmeg. (I use a whisk to mix) Cut in butter until mixture resembles coarse crumbs. (I use pastry blender) Combine eggs, buttermilk and vanilla (I use same whisk); stir into flour mixture just until moistened. (I use a mixing spoon) Fold in pears. (mixing spoon) Spoon into 2 greased 5 x 8 inch loaf pans Bake at 350° for 35-40 minutes or until toothpick inserted in center comes out clean. Cool for 10 minutes before removing from pans on to wire rack. Allow to cool completely. Not sure how long you can keep this at room temperature because it gets eaten quickly
    • knitty kitty
      Second chance

      By knitty kitty · Posted

      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      Second chance

      By Mari · Posted

      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      Test interpretations

      By trents · Posted

      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Test interpretations

      By knitty kitty · Posted

      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.