Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Pathology Report--No Marsh Level


ema2013

Recommended Posts

ema2013 Newbie

I have my pathology report, and there is no mention of Marsh level.  Is this normal?  It does say, under final diagnosis, "severe mucosal lesion, consistent with celiac disease".  I thought all reports had to list the Marsh level.  There is a microscopic description on it though.  I'm new to celiac disease and am trying to figure this stuff out.  My GI was no help at all, other than to say "quit eating gluten".  Thanks for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Hi there!

 

No, Marsh Scale is rarely mentioned until the biopsies are level Marsh III.  This is because the first two stages can be attributed to things other than Celiac Disease.

 

Does this report mention "lymphcytes", "villi" or "crypts".  Sadly, there are many variations offered by pathology labs which can make it tough to understand their meaning.

 

I don't know your history, but if you have positive blood work, deficient nutrients, familial history of celiac or symptoms associated with celiac it is indeed time to remove all gluten from your world now that your biopsy is complete.

 

Good luck and let us know if you have more questions :)

ema2013 Newbie

Hi there!

 

No, Marsh Scale is rarely mentioned until the biopsies are level Marsh III.  This is because the first two stages can be attributed to things other than Celiac Disease.

 

Does this report mention "lymphcytes", "villi" or "crypts".  Sadly, there are many variations offered by pathology labs which can make it tough to understand their meaning.

 

I don't know your history, but if you have positive blood work, deficient nutrients, familial history of celiac or symptoms associated with celiac it is indeed time to remove all gluten from your world now that your biopsy is complete.

 

Good luck and let us know if you have more questions :)

I've been anemic for years (am 53).  The bloodwork was positive and the GI insisted on a colonoscopy and endoscopy.  The microscopic description on the pathology report says:  "Very few villi are visible, and these are significantly blunted.  For the most part, the biopsies superficially resemble colon.  Surface epithelium and crypt epithelium are remarkable for a noticeable lymphoid infiltrate, but lymphocytes are not present in large numbers.  The lamina propria has increased numbers of lymphocytes, plasma cells, and probably eosinophils, with congestion of superficial capillaries.  Included muscularis mucosae and scant submucosa are unremarkable." 

My GI just said I had celiac and to quit eating gluten.  I guess I'm a little OCD; I would like to try to understand more about what I have.

GottaSki Mentor

I've been anemic for years (am 53).  The bloodwork was positive and the GI insisted on a colonoscopy and endoscopy.  The microscopic description on the pathology report says:  "Very few villi are visible, and these are significantly blunted.  For the most part, the biopsies superficially resemble colon.  Surface epithelium and crypt epithelium are remarkable for a noticeable lymphoid infiltrate, but lymphocytes are not present in large numbers.  The lamina propria has increased numbers of lymphocytes, plasma cells, and probably eosinophils, with congestion of superficial capillaries.  Included muscularis mucosae and scant submucosa are unremarkable." 

My GI just said I had celiac and to quit eating gluten.  I guess I'm a little OCD; I would like to try to understand more about what I have.

 

There is absolutely no doubt, you have celiac disease -- welcome to the club...I'll ask the official greeter to get the super decoder ring in the mail ;)

 

Ok...joking aside -- the description provided from the report is absolutely describing celiac disease.  Why they did not reference the Marsh Scale is interesting.

 

I'm sorry your GI simply said you have celiac and quit eating gluten -- sadly this is far better advice than many doctors out there provide.  You have come to the right place to begin your new gluten-free life.  Let us know if you have any questions.

bartfull Rising Star

Welcome! I think the first thing you should do is go to the coping section here and read the Newbie 101 thread. Be sure to click on all the links provided in the various posts in that thread. Keep a pen and paper handy to jot down any questions that arise, then come back and ask away. :)  

cyclinglady Grand Master

I am 52 and I was anemic. I requested a colonoscopy since all my friends were getting one! GI mentioned celiac and I was shocked. My husband has been gluten free for 13 years and I thought, "What are the odds that both of us have gluten issues?" Blood test mildly positive and my biopsy revealed severe damage. It has been a year and my anemia has resolved. I did fracture a vertebrae doing nothing three months after my celiac disease dx (osteoporosis), so I would recommend a bone scan.

Welcome!

moosemalibu Collaborator

Welcome!

 

Your biopsy results are definitely a Celiac description. Coupled with the blood work and anemia that pretty much screams classic case. My biopsy results were not as clean and straight forward as yours appear.  The blunted villi, smooth appearance and infiltration of eosinophils is what they generally look for as hallmark histology. Definitely check out the newbie threads.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,862
    • Most Online (within 30 mins)
      7,748

    gannonunderwood
    Newest Member
    gannonunderwood
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suze046
      Hey! I’m recently gluten free and yes I really struggle with alcohol now. I haven’t really drank in 2 months as it just made me feel awful the next day in terms of stomach ache mainly. I’ve had a couple of glasses of white wine here and there (mainly low sulphate) but every time it gives me a gut ache. I think it’s because but guy is so damaged from my journey to discovering my gluten intolerance and hopefully this will improve but honestly I’m just not bothered about having a drink now. I can’t even touch Prosecco or champagne I think the bubbles really upset me! 
    • Suze046
      That is helpful thank you I hadn’t thought of that! 
    • Awol cast iron stomach
      I just wanted to share my support for you. Rant away. We all know that, and have experiences like that at some point. I am sorry for that very unpleasant, and emotionally isolating reminder of your medical condition. Which always is exacerbated by the hunger. I will admit many of my family friends, and coworkers found it easier to exclude me than to accommodate me. I also have to be very strict with cross contamination so in hindsight they did me a favor.  The sting however can often still be unearthed when I read experiences like yours.  I am sorry you had that occur. I hope you, and the coworkers can find the easy more accommodating experiences again after this unfortunate incident. Best wishes. 
    • Awol cast iron stomach
      "...hemorrhoids, constipation and diarrhea" . Heard of indeed. Experienced too. In hindsight, I can remember from age 2 having, and trying to convey my issues. I went 38 years misdiagnosed. So yes one can have these issues. I did have to go back on gluten for a gluten challenge. I failed that challenge and 6 days in they give me permission to stop, and I proceed with my scopes as scheduled. Post those 6 days I had gained 13 intolerances. I had to remove many foods, and reintroduce them back in. Nine years later I have two that remain gluten, and corn. I found it helpful to follow a whole foods diet. I also found autoimmune (AIP) protocol diet/recipes, and Paleo diet/recipes helpful. I still enjoy many of those homemade version recipes. I still continue to make my own salad dressings even if I can find a gluten-free store bought version. Fresh taste best to this palate now.  I did give up many grains I was off many and reverted to coconut flour and almond flour as work arounds .  I still remember the first time my gut experienced the reintroduction of quinoa. It wasn't sure if it wanted to flare or not. In 30 minutes it reported back ok this will pass. Many foods were removed post gluten challenge for me for 2 years and 4 months. At the 2 year 4 month mark is when my body said ok let's eat again, but don't ever feed me gluten again! I wish you the best.   
    • Scott Adams
      if you have already learned that Gluten is the cause of your symptoms, of course there is no need to add it back into your diet— your decision could save you a lot of needless suffering. One thing to consider is that if you do have celiac disease, your first- degree relatives may also need to get screened for it, because, like diabetes the disease is genetic, although many of its triggers seem to be environmental factors. You may want to consider getting a genetic test for celiac disease, so you can at least warn your relatives if it turns out that you do carry a celiac gene.
×
×
  • Create New...