Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accurate Information

gilligan

By gilligan
in Coping with Celiac Disease

Recommended Posts

gilligan Enthusiast
gilligan
Posted

Did anyone see the Katie Show today?  She had a Dr. Hyman from the UltraWellness Center on the show as a guest.  I question two things that he said: 1)  when you lick envelopes, it's the gluten that's making the "stickiness"  and 2) that testing is available for gluten sensitivity although it's not that reliable.  Aren't envelopes gluten free, and I thought there wasn't any test for ncgs?

 

I wasn't really sure where to post this, so that's why it's under this category.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Years ago  envelopes  contained  gluten but  haven't  heard  of any  lately....NCGS,,,, they are  working  on  testing  , ... Not sure  who  Dr Hyman is....lots  of  inaccurate   info  floating  around..... one  chews  it up  , spits  it  out  &  there  it  is......I  don't  swallow everything  Dr Oz  comes out  with  either!

IrishHeart Veteran
IrishHeart
Posted

(1) "Tonya Muse, senior vice president of the Envelope Manufacturers Association, states that adhesives used on envelopes do not contain gluten.There are actually only a few envelope glue manufacturers in the US. National Starch & Chemical, a New Jersey company, is one of the largest adhesive suppliers in the world. A company spokesperson says it makes its glue from corn, which is gluten free"

 

P.S. I lick envelopes to seal them and I am fine.

 

(2) At this time, there are NO valid tests for gluten sensitivity.

 

from the center where Dr. Fasano, a leading celiac researcher works:

 

"Although researchers at the Center for Celiac Research are working to develop tests for gluten sensitivity, currently there are no definitive blood tests for the condition."

Open Original Shared Link

 

(3) The internet is full of opinions and wild speculation--about gluten and other things. Choose wisely.

gilligan Enthusiast
gilligan
Posted
  • Author

Thanks for the responses.  I was sure he was wrong on those points, but I've never really heard a doctor on tv talk about gluten before, so I was shocked when he made those statements.  I had a little time so I looked him up - 

 

"Mark Hyman, MD is an American physician, scholar and author. He is the founder and medical director of the UltraWellness Center and a columnist for The Huffington Post. Hyman is a regular contributor to the Katie Couric Show."

 

Get your facts straight, doc!

IrishHeart Veteran
IrishHeart
Posted

Thanks for the responses.  I was sure he was wrong on those points, but I've never really heard a doctor on tv talk about gluten before,

 

 

As I understand it, Dr. Oz talks about it all the time and he is equally adept at giving wrong info. :) 

notme Experienced
notme
Posted

As I understand it, Dr. Oz talks about it all the time and he is equally adept at giving wrong info. :)

the last time i was privy to his spew, he was working the angle that gluten free would miraculously make you lose weight.   lolz - i am sitting here at 119 lbs (up from 97 lbs 3 1/2 yrs ago when i was dx'd)  struggling to gain more.  what a load of crap..............  <_<

NoGlutenCooties Contributor
NoGlutenCooties
Posted

The way I look at it is if they were such great doctors then they would be way too busy to do a TV show.  They're there for entertainment value.  Once in awhile they may say something valuable, but I don't trust them to know much about much of anything important.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

the last time i was privy to his spew, he was working the angle that gluten free would miraculously make you lose weight.   lolz - i am sitting here at 119 lbs (up from 97 lbs 3 1/2 yrs ago when i was dx'd)  struggling to gain more.  what a load of crap..............  <_<

I hear ya on that one, Arlene!  I was 94 at diagnosis 9 years ago and now am 110 or 112....on a fat day.  I do weight training so that will account for some of the calorie burn but gain a lot of weight after diagnosis?  Not for some of us.  There are other factors at play also but I have to work it to gain.  Not so crazy about gaining anymore as I am sick and tired of replacing clothes that do not fit.  It's getting expensive!  <_< I've done that twice already.

Gemini Experienced
Gemini
Posted

The way I look at it is if they were such great doctors then they would be way too busy to do a TV show.  They're there for entertainment value.  Once in awhile they may say something valuable, but I don't trust them to know much about much of anything important.

Well said!  :)

notme Experienced
notme
Posted

(hm.  my quote button is acting up :(  ) 

 

gem, I hear ya!  I got a closet full of clothes, all different sizes (NONE too big, though)  pants are my biggest misery, namely jeans.  my daughters go shopping with me with one hand over their face in embarrassment.  they know, at some point, I am going to go up to the sales girl and accuse them of changing the sizes (size ONE?  that shouldn't even be a size - then I saw size ZERO :blink: )  I finally got a pretty good fit with the American Eagle artist jeans (and they were even long enough!  yay!) and now, since I am getting a little meatier, if I wear a belt with them, I get sciatica.  <_< LOLOLZ I can not win!.  I ripped the butt out of two pairs.  (WHAT??!)  the zippers broke on every single pair I owned (that fit, at the time) jeans are the bane of my existence.

 

and, yes, cooter, I agree with you.  I have only seen my doctor wear makeup one time, and that was for charity.  he also wore a dress <hilarious!)  entertainment is their game.  right up there with jerry springer, lolz. ^_^

 

although, <on the today show, dr fancy nancy reported a story about an outbreak of measles in southern California.  vaccinate your children, people!  this disease has been, what, two generations eradicated?   there is a reason it hasn't been killing children:  vaccination.  :mellow:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    2. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    5. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748
    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.