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Question For The Ladies!


Celiacandme

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Celiacandme Apprentice

Currently just over 5 months gluten free with some symptoms getting worse during healing process. Also new symptoms which might be related to rheumatology.

 

 

Out of curiosity, did anyone else notice symptoms being much worse just before your monthly cycle arrived or also perhaps around the time your body was trying to ovulate? If so, did that get better with time? Did this happen to you after going gluten free? Which kind of symptoms were worse for you during that time?


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VASpider Newbie

I actually always had really bad GI symptoms around the time my period would start. I just chalked this up to 'hormone changes' but now I know the gas & constipation (ugh) were due to celiac and somehow just got worse around that time. 

LauraTX Rising Star

I have celiac and lupus and mentioned to my rheumatologist that when I an PMSing everything just gets a little worse.  He said inflammation increases at that time and especially with lupus patients (lupus is an inflammatory disease) that is not uncommon.

nvsmom Community Regular

Every month I get back pain (often sciatic), migraines, fatigue, and some D. It's a bit better than it used to be, but not by a huge amount. I get the same symptoms, minus D but with cramping around ovulation... on the bright side it made timing trying to conceive pretty easy.  LOL ;)

 

I did not notice any monthly effect on my arthralgias.

kirstenB Newbie

Let me say that the first year is the roughest. The first year after going GlutenFree I glutened myself a lot & reactions were tenfold compared to before diagnosis. I also started to get cold sores on a regular basis near my period that I always had to stave off, which didn't happen previous. Have you been tested for vitamin & mineral deficiencies? That's a huge problem during the healing process cause body may not be absorbing from food or of you are taking supplements. I started getting vitamin B shots and taking rest of what I needed with dropper vitamins underneath my tongue. Also make sure you're getting enough zinc n vitamin D as well. Plus there are a wealth of fruits, veggies and herbs that help w/inflammation & the arthritis. Walnuts, lemon, asparagus, garlic & cauliflower are just a few. Have you tried an elimination diet? Sugar, dairy, soy, corn, etc...

Celiacandme Apprentice

Kirsten - I'm pretty much down to plain meat, fruits and vegetables. I was told tonight that recent blood work confirms that I also have lupus. So this could be why. I've been beyond diligent with my diet. I have been tested for deficiencies and was tested for more earlier this week. We'll see how they look. My Vit D was real low in the fall as well as my iron. Both have improved.

NoGlutenCooties Contributor

My entire digestive system has always cleaned itself out during the first two days of my period.  I always figured it had to do with all the muscle contractions going on in the area and being that everything is sort of connected... the bowels just kinda got in on the action too.  (Almost like a monthly spring cleaning.)  My sister is the same way and she doesn't have Celiac (that she knows of anyhow).  My OBGYN (a few different ones actually) have always said that this is normal and very common.  But then again... doctors say that about a lot of things that may be common but aren't in fact "normal".


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    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
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