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Supplementation

AmandaD

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AmandaD Community Regular
AmandaD
Posted

Hi there - got my blood test results back and found out I have a very mild Vitamin D deficiency; also had my bone scan and had a normal reading.

I'm wondering how you all get your extra vitamin D -- I'm not a big milk drinker. My doc wrote on my report that I should take 2 400IU tablets of D a day...any recommendation on a brand..?

And, did any of you have D deficiencies?

Thanks so much, again!

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Lisa Mentor
Lisa
Posted

Me... Dr. said low in D, daugher (chemist) says go out and get some sunshine -- full of vit. D. Try a cal. suppliment with V-D. That might help. Caltrate with D, I THINK is gluten-free, or Centrum with D is gluten-free. ---will have to check on that, with the Delfi Product List....but I do think it's ok. But, please verify.

Rachel--24 Collaborator
Rachel--24
Posted

I don't know if I was deficient or not because my HMO doesnt test for these types of things....they are the worst and also employ the worst doctors around. I was seeing an ND for awhile....she asked me if I felt better when I'm in the sun. I was amazed she was asking me this and I told her I did...I told her I always felt tons better immediately after going outside. I asked her how she knew this. :huh:

She told me I probably had vitamin deficiencies (based on my symptoms) and improvement of symptoms in the sunlight indicates Vit D deficiency. I never knew that...but if I stayed indoors all day I felt tons worse...I *needed* the sunlight.

Carriefaith Enthusiast
Carriefaith
Posted
I'm wondering how you all get your extra vitamin D
I take a multivitamin plus I drink blueberry smoothies made with soy milk.
jpsych Newbie
jpsych
Posted

My doctor recommended OsCal with vitamin D. Does anyone know if its gluten free?

Blueberry smoothies rock!

AmandaD Community Regular
AmandaD
Posted
  • Author

Thanks for all of your suggestions - I'm going to check and see if Oscal is gluten-free. RACHEL- it's absurd that your doctor does not check for vitamin deficiencies - that practice should totally be ashamed of themselves!!!! HMO's, I've heard, can really be crappy!!!

My doctor recommended OsCal with vitamin D. Does anyone know if its gluten free?

Blueberry smoothies rock!

<{POST_SNAPBACK}>

Rachel--24 Collaborator
Rachel--24
Posted
  HMO's, I've heard, can really be crappy!!!

<{POST_SNAPBACK}>

Yes, I learned the hard way. :(

I'm going to switch plans when it comes up in November. I need to find a good doctor though. If anyone knows of a good doc in Bay Area CA....let me know. :)

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tarnalberry Community Regular
tarnalberry
Posted

I get my vit D through:

* fortified beverages (soy milk/orange juice)

* vitamin supplement (Rainbow Light Food Based Calcium - 100IU D3 (25% of DV, and D3 is the more absorbably form, 500mg calcium (50% DV), 250mg magnesium (63% DV, the appropriate ratio with calcium for better absorption, and one of the minerals that often lacking in celiacs when it comes to bone health)

* daily, unprotected sun exposure (no sunblock for the 10-15 minutes (summer, length varies on skin color))

* a varied, healthy diet

WRowland Newbie
WRowland
Posted

In general, food based is best, with supplementation as needed. It may be more than Calcium/Vitamin D.

Check out www.nutritiondata.com. Start with ND Quick Start and go from there.

I was already taking supplements for my bones, but realized that I was doing well for some things, but really needed a vitamin E supplement after using this site.

Jenn2005 Contributor
Jenn2005
Posted

CarrieFaith

Would you mind sharing your Blueberry Smoothie recipie? I would like to try something like that for my husband. He is also casein intolerant so when you said you used soy milk it got me thinking.

Thanks,

Jennifer

Siobhan Rookie
Siobhan
Posted

My Dr suggested Ostelin 1-2 a day to boost my low Vit D levels.

kevsmom Contributor
kevsmom
Posted

Currently I am taking Spring Valley Natural Calcium with Vitamin D. The dosage I take is only 125 I.U. I don't know if they make a higher dosage, or maybe they have just Vitamin D in a higher dosage without Calcium. If not you could make a whole meal out of it to get 800 I.U. :D That sure sounds like a lot of Vitamin D!

Before that I was taking CVS brand. I don't remember what the dosage was.

lizzy Apprentice
lizzy
Posted

hi all i teke vit b12 and multivits too gluten free of course but am not certain if i need to take more b12 as i have a neurolical problem and this vit does help me but i take too one more than the recommended doses but dont know if am over taking it, i read that healthy people should take just one but am not healthy so i am taking too to make sure i get enough to my nerve cells , does anyone else take alot of b12 liz

elisabet Contributor
elisabet
Posted
hi all i teke vit b12 and multivits too gluten free of course but am not certain if i need to take more b12 as i have a neurolical problem and this vit does help me but i take too one more than the recommended doses but dont know if am over taking it, i read that healthy people should take just one but am not healthy so i am taking too to make sure i get enough to my nerve cells , does anyone else take alot of b12 liz

<{POST_SNAPBACK}>

Hi Liz,

What type of vit b12 do you take?

lizzy Apprentice
lizzy
Posted

hi all the vits i take are made by nature made and are gluten free i get them from the local supermarket and they not too expensive on your pocket liz

Jnkmnky Collaborator
Jnkmnky
Posted

Sunlight. Get out more. It's great. Also, there's been some studies linking MS to vitamin D defs. They say that people living in more southly regions have WAY less MS and attribute it to the higher doses of Vit. D. Get out and bask in the sunlight. Now you can justify it as medically necessary!

lgleeson Newbie
lgleeson
Posted
hi all the vits i take are made by nature made and are gluten free i get them from the local supermarket and they not too expensive on your pocket liz

<{POST_SNAPBACK}>

lgleeson Newbie
lgleeson
Posted

I am taking B-12 by Country Life and they say on the label they are gluten-free. Right now I am taking 3000 mcg sublingually (under the tongue for better absorption). I am taking a high dose, because I, too, have neurological symptoms. It has helped immensely. You can't take too much Vitamin B-12. You will just pee out the extra. (not the case with all vitamins).

tarnalberry Community Regular
tarnalberry
Posted
Sunlight.  Get out more.  It's great.  Also, there's been some studies linking MS to vitamin D defs.  They say that people living in more southly regions have WAY less MS and attribute it to the higher doses of Vit. D.  Get out and bask in the sunlight.  Now you can justify it as medically necessary!

<{POST_SNAPBACK}>

I definitely agree with that one! (Though, now that I moved somewhere where there isn't enough light to do this for a number of months out of the year, I can't 'practice what I preach' year round. :-( ) Sunlight, without sunblock, for a short time every day is good for many reasons, and D is just one of them. It's more problematic in winter, in the northern hemisphere, since many latitudes don't get enough sunlight for sufficient D production, but that's all the more reason to get in your sun-time during the summer! (D is stored in the body.)

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
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      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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