Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplementation

AmandaD

Recommended Posts

AmandaD Community Regular
AmandaD
Posted

Hi there - got my blood test results back and found out I have a very mild Vitamin D deficiency; also had my bone scan and had a normal reading.

I'm wondering how you all get your extra vitamin D -- I'm not a big milk drinker. My doc wrote on my report that I should take 2 400IU tablets of D a day...any recommendation on a brand..?

And, did any of you have D deficiencies?

Thanks so much, again!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Me... Dr. said low in D, daugher (chemist) says go out and get some sunshine -- full of vit. D. Try a cal. suppliment with V-D. That might help. Caltrate with D, I THINK is gluten-free, or Centrum with D is gluten-free. ---will have to check on that, with the Delfi Product List....but I do think it's ok. But, please verify.

Rachel--24 Collaborator
Rachel--24
Posted

I don't know if I was deficient or not because my HMO doesnt test for these types of things....they are the worst and also employ the worst doctors around. I was seeing an ND for awhile....she asked me if I felt better when I'm in the sun. I was amazed she was asking me this and I told her I did...I told her I always felt tons better immediately after going outside. I asked her how she knew this. :huh:

She told me I probably had vitamin deficiencies (based on my symptoms) and improvement of symptoms in the sunlight indicates Vit D deficiency. I never knew that...but if I stayed indoors all day I felt tons worse...I *needed* the sunlight.

Carriefaith Enthusiast
Carriefaith
Posted
I'm wondering how you all get your extra vitamin D
I take a multivitamin plus I drink blueberry smoothies made with soy milk.
jpsych Newbie
jpsych
Posted

My doctor recommended OsCal with vitamin D. Does anyone know if its gluten free?

Blueberry smoothies rock!

AmandaD Community Regular
AmandaD
Posted
  • Author

Thanks for all of your suggestions - I'm going to check and see if Oscal is gluten-free. RACHEL- it's absurd that your doctor does not check for vitamin deficiencies - that practice should totally be ashamed of themselves!!!! HMO's, I've heard, can really be crappy!!!

My doctor recommended OsCal with vitamin D. Does anyone know if its gluten free?

Blueberry smoothies rock!

<{POST_SNAPBACK}>

Rachel--24 Collaborator
Rachel--24
Posted
  HMO's, I've heard, can really be crappy!!!

<{POST_SNAPBACK}>

Yes, I learned the hard way. :(

I'm going to switch plans when it comes up in November. I need to find a good doctor though. If anyone knows of a good doc in Bay Area CA....let me know. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

I get my vit D through:

* fortified beverages (soy milk/orange juice)

* vitamin supplement (Rainbow Light Food Based Calcium - 100IU D3 (25% of DV, and D3 is the more absorbably form, 500mg calcium (50% DV), 250mg magnesium (63% DV, the appropriate ratio with calcium for better absorption, and one of the minerals that often lacking in celiacs when it comes to bone health)

* daily, unprotected sun exposure (no sunblock for the 10-15 minutes (summer, length varies on skin color))

* a varied, healthy diet

WRowland Newbie
WRowland
Posted

In general, food based is best, with supplementation as needed. It may be more than Calcium/Vitamin D.

Check out www.nutritiondata.com. Start with ND Quick Start and go from there.

I was already taking supplements for my bones, but realized that I was doing well for some things, but really needed a vitamin E supplement after using this site.

Jenn2005 Contributor
Jenn2005
Posted

CarrieFaith

Would you mind sharing your Blueberry Smoothie recipie? I would like to try something like that for my husband. He is also casein intolerant so when you said you used soy milk it got me thinking.

Thanks,

Jennifer

Siobhan Rookie
Siobhan
Posted

My Dr suggested Ostelin 1-2 a day to boost my low Vit D levels.

kevsmom Contributor
kevsmom
Posted

Currently I am taking Spring Valley Natural Calcium with Vitamin D. The dosage I take is only 125 I.U. I don't know if they make a higher dosage, or maybe they have just Vitamin D in a higher dosage without Calcium. If not you could make a whole meal out of it to get 800 I.U. :D That sure sounds like a lot of Vitamin D!

Before that I was taking CVS brand. I don't remember what the dosage was.

lizzy Apprentice
lizzy
Posted

hi all i teke vit b12 and multivits too gluten free of course but am not certain if i need to take more b12 as i have a neurolical problem and this vit does help me but i take too one more than the recommended doses but dont know if am over taking it, i read that healthy people should take just one but am not healthy so i am taking too to make sure i get enough to my nerve cells , does anyone else take alot of b12 liz

elisabet Contributor
elisabet
Posted
hi all i teke vit b12 and multivits too gluten free of course but am not certain if i need to take more b12 as i have a neurolical problem and this vit does help me but i take too one more than the recommended doses but dont know if am over taking it, i read that healthy people should take just one but am not healthy so i am taking too to make sure i get enough to my nerve cells , does anyone else take alot of b12 liz

<{POST_SNAPBACK}>

Hi Liz,

What type of vit b12 do you take?

lizzy Apprentice
lizzy
Posted

hi all the vits i take are made by nature made and are gluten free i get them from the local supermarket and they not too expensive on your pocket liz

Jnkmnky Collaborator
Jnkmnky
Posted

Sunlight. Get out more. It's great. Also, there's been some studies linking MS to vitamin D defs. They say that people living in more southly regions have WAY less MS and attribute it to the higher doses of Vit. D. Get out and bask in the sunlight. Now you can justify it as medically necessary!

lgleeson Newbie
lgleeson
Posted
hi all the vits i take are made by nature made and are gluten free i get them from the local supermarket and they not too expensive on your pocket liz

<{POST_SNAPBACK}>

lgleeson Newbie
lgleeson
Posted

I am taking B-12 by Country Life and they say on the label they are gluten-free. Right now I am taking 3000 mcg sublingually (under the tongue for better absorption). I am taking a high dose, because I, too, have neurological symptoms. It has helped immensely. You can't take too much Vitamin B-12. You will just pee out the extra. (not the case with all vitamins).

tarnalberry Community Regular
tarnalberry
Posted
Sunlight.  Get out more.  It's great.  Also, there's been some studies linking MS to vitamin D defs.  They say that people living in more southly regions have WAY less MS and attribute it to the higher doses of Vit. D.  Get out and bask in the sunlight.  Now you can justify it as medically necessary!

<{POST_SNAPBACK}>

I definitely agree with that one! (Though, now that I moved somewhere where there isn't enough light to do this for a number of months out of the year, I can't 'practice what I preach' year round. :-( ) Sunlight, without sunblock, for a short time every day is good for many reasons, and D is just one of them. It's more problematic in winter, in the northern hemisphere, since many latitudes don't get enough sunlight for sufficient D production, but that's all the more reason to get in your sun-time during the summer! (D is stored in the body.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    2. Scott Adams
      0

      Gluten-Free Cantonese Steamed Fish with Ginger, Scallions, and Sizzling Oil

    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    5. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.