Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only Scope To Dx?

EverKiy

Recommended Posts

EverKiy Rookie
EverKiy
Posted

Ok I had my doctors appointment this morning and without even bringing up celiac but just listing off my symptoms the dr brought up being tested for it along with looking at a couple other things, but suggests doing both a colonoscopy and endoscopy so we hit both areas at the same time and check for the few other things she thinks are a possibility.... She suggests we do the scope but not the blood work right now due to the cost to me, she's had a lot of people show a false negative and I've been mostly gluten free since Monday cause I had a couple teeth pulled and can't eat much (in which time my stomach hasn't really been feeling upset)

So I'm being refurred to a gi doc and will go from there.. Now should I get the blood work done as well or just wait and see what the scope says? My drs appt with her pediatrition is tomorrow afternoon so well probably get the blood work for her but I guess that depends on what her doc thinks, she's also got an appt with a paediatric gi but not till august tho but that was put in a few months ago cause I wanted her sent to the children's hospital cause no one here could give me answers..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

I was diagnosed just by biopsy because my blood tests were negative but I gather that I'm the exception. As long as you have insurance you should do the blood work imo. It can't rule it out, but it can't hurt either. They can just do it the same time as your biopsy, no biggie. Having not really eating much for 2 days wouldn't have changed the results. It's great to be getting everything checked for what's up, but what I can't figure out is why the doctor immediately jumps to "lets run over $1000 worth of invasive tests.... no, we don't need to do $100 blood test because it'll cost you too much." This reasoning just completely baffles me and makes less than no sense.

BlessedMommy Rising Star
BlessedMommy
Posted

^Yeah, that exactly.

 

I would do the blood test. 

EverKiy Rookie
EverKiy
Posted
  • Author

I'm in canada so the scopes are free for me but the blood work costs 160$ cause it's not covered. But if you all think I should get the blood work as well I can just give my dr a call and get them to order it without an issue

EverKiy Rookie
EverKiy
Posted
  • Author

Alright I book my daughters appt for the blood panel for tomorrow after noon and her dr is check thyroid and vitamins as well so she only has to get blood taken once cause she hate needles it'll cost me 125$ so not as bad as what my dr said I'm gonna get hers done now and then I'll go a head and ask my dr to order it for me as well for later this month when I'll have the extra money to get it done

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748
    Nina J
    Newest Member
    Nina J
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.