Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Withdrawal

lutonian

Recommended Posts

lutonian Newbie
lutonian
Posted

Has anyone suffered more than 2 months of gluten withdrawal?

 

I was diagnosed 2 months ago and still feel worse than ever, light headed, feeling dizzy, feeling weak and not being able to concentrate like I used to.

Although my stomach cramps and small intestine pain has gone I am wondering if I'd rather have them back compared to feeling so dizzy all the time.

I don't feel sick when I eat gluten it just caused pain in my small intestine. I had a liver scan, an mri scan all because I did not know I was a celiac and that

was over a 4yr period, started when I was 44!

 

I have been eating bread all my life most days which would not of helped although I recently read that I should not of gone cold turkey when coming off gluten

I should of weaned off gluten gradually, or so this top Celiac expert says. This is why I have had such a bad reaction in coming off gluten...but is this true?

 

I am wondering why I feel so bad after 2 months of being gluten free and why I feel so dizzy and light headed?

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Maybe you aren't eating a balanced diet? And your blood sugar is all over the place? Sometimes when people drastically change what they eat, they aren't getting the same fat, protein, fiber, etc. sometimes they get more ..... Sometimes less.

littleliffy Newbie
littleliffy
Posted

I got diagnosed about a month ago due to severe nausea, unexplained weight loss and lack of appetite. I went gluten free for a week and felt great. After a week, I started to feel exhausted, short of breath, weak and dizzy. I have seen slow improvement and very small. I took three weeks off work and now returned part time but I'm extremely exhausted after work. I'm hoping it has to do with gluten withdrawal and I hope to passes soon.

lutonian Newbie
lutonian
Posted
  • Author

I got diagnosed about a month ago due to severe nausea, unexplained weight loss and lack of appetite. I went gluten free for a week and felt great. After a week, I started to feel exhausted, short of breath, weak and dizzy. I have seen slow improvement and very small. I took three weeks off work and now returned part time but I'm extremely exhausted after work. I'm hoping it has to do with gluten withdrawal and I hope to passes soon.

I now think it might be something to do with a problem known as Gluten Antaxia which is the known as our immune system or anti bodies attacking our brain because of the withdrawal of gluten. If you read the link below it may be that we now have a new problem with a lack of blood flow going directly to the brain. 

Open Original Shared Link

 

It seems that most celiacs after going gluten free only have 2-3 weeks at most of feeling naff and dizzy yet mine has been 8 weeks with no sign of easing, I'm a bit concerned because each day I feel worse than the day before. Constant dizziness and a light headed feeling with aching legs and ankles. I wish I had not gone cold turkey I should of weaned of gradually and maybe this would of been different.

littleliffy Newbie
littleliffy
Posted

Interesting article. I had the aching legs for a few days but it went away. I hope it gets better for us. I think we need to be patient.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.