Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Arthritis

riemad

By riemad
in Coping with Celiac Disease

Recommended Posts

riemad Newbie
riemad
Posted

Just wondering if anyone has issues with arthritis that has been diagnosed with celiac? I am fairly new to the celiac, but the arthritis has become a bigger issue since being gluten free for several months. I am going to be tested for rhematoid arthritis next week, but in the meantime I can barely move my hands, fingers are extremenly swollen and sore. Also, since starting gluten free I have gone from one extreme to the other in the bathroom, couldn't stop going to now cannot go. Any advice on either subject? Thanks in advance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

There are many of of around here with arthralgias caused by celiac disease. It's an annoying yet pretty common symptom, and sadly is often one of the last to improve on a gluten-free diet.. Rheumatoid arthritis can co-occur with celiac disease as they are both genetically linked autoimmune diseases. I have a cousin with celiac disease and her brother has RA, and I was pretty convinced that I had celiac disease and lupus or RA because of my pain... You'll hear more stories like that.

 

You probably need to give your symptoms more time to resolve. It can take a few months to a couple of years.  Hang in there, and welcome to the board.

exseitanist Rookie
exseitanist
Posted

A diagnosis of osteoarthritis in my neck was made a few years ago, providing a physical cause for decades of crippling migraines.  My celiac diagnosis came 2 years after the arthritis diagnosis and I imagine the celiac-related digestive problems contributed to the arthritis development.

cristiana Veteran
cristiana
Posted

The bathroom problem: a common problem post recovery it seems.  The advice I have been given is to drink more liquids, eat more fruit and vegetables and exercise more.   I guess the next bit of advice might be worth checking with your pharmacist or health care provider but I found that the magnesium supplements I took post-recovery helped things.  I wasn't aware of this until I stopped taking them! If the C. is severe despite these measures it might be worth checking with the doctor that something else isn't amiss. 

IrishHeart Veteran
IrishHeart
Posted

I was DXed with osteoarthritis (1999) long before celiac (2010). Unfortunately, autoimmune diseases often  travel in packs.

 

Make sure you are getting enough fiber to keep things moving and try to walk and keep your joints mobile by exercising. Yoga is great for arthritis as are pool exercises. 

 

 

Try mixing  aTBLS of flaxseed meal in 16 oz. of water every day, take probiotics and eat more fiber like quinoa, brown rice, dark green leafy veggies.

 

If the chronic constipation comes with other symptoms (fatigue, puffy face, serious fatigue) make sure you have your thyroid checked.

 

Hang in there, healing takes time. Let us know how the testing turns out.

gilligan Enthusiast
gilligan
Posted

Just wondering if anyone has issues with arthritis that has been diagnosed with celiac? I am fairly new to the celiac, but the arthritis has become a bigger issue since being gluten free for several months. I am going to be tested for rhematoid arthritis next week, but in the meantime I can barely move my hands, fingers are extremenly swollen and sore. Also, since starting gluten free I have gone from one extreme to the other in the bathroom, couldn't stop going to now cannot go. Any advice on either subject? Thanks in advance.

My hands are swollen and hurt, also!  I realize this is an older thread, but I have the same question as the original poster. So, this is a celiac symptom?  This has only been a problem with me for the last few months.  I was diagnosed last Aug. and it has not been an awful year, but after two rounds of meds for SIBO, I have to say that things are turning around rapidly for me, except that now my hands ache. Can expect this to go away, or does it resemble RA more?  I don't have a gi appt. again until mid July, so any help would be appreciated. 

SoLacey Newbie
SoLacey
Posted

My hands were swollen and hurting too but I was diagnosed with carpal tunnel and thoracic outlet syndrome not arthritis.  My hands hurt so much for a while that I couldn't address an envelope.  It seems to cause an inflammatory response that could explain a lot of different aches and pains. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.