Kratom

[grodeylocks]

Ok, first question. Been gluten free for three years with symptoms still lingering. I am very strict with my adherence. I did smoke though but recently quit. Could this be the reason for my lingering symptoms?

Secondly, I recently started taking kratom for my symptoms and it seemed to help for a month or two but now am not sure if it is. Has anyone used kratom before and if so did it help cope or make you far worse?

Thirdly, has anyone had amazing success with the scd diet or gaps diet or would you recommend following a low fodmap diet instead?

Thank you

[SMRI]

Were you officially tested for Celiac or a gluten allergy?  If not, maybe it is something else, not gluten related, causing your problems?  Have you had any other testing done to see what might be the root cause?

[grodeylocks]

Celiac ELISA assay was negative as was test for dermatitis herpetiformis. I get a rash that is most likely dermatitis herpetiformis that breaks out on elbows, left shoulder area, back of knees, or right thigh. Always in one of the spots however usually not all together. The rash seems to have the same onset and duration as dermatitis herpetiformis and I've noticed when I have it my symptoms flair majorly especially neurological and psychiatric type symptoms. I am pretty sure it's this as the testing can be unreliable. Never had an endoscopy though. I definitely improved significantly when going gluten free however it is my enough. I have cut out all major stomach irritants and follow something that resembles a paleo diet. I smoked American spirits and wonder if those may have stopped my Progress though have since quit. I wonder if there's other diets aimed toward autoimmune diseases I may try.

Also, colitis runs in my family so perhaps I have that concurrently, as I've been having mucus in my stool, though I seem to have one bowel movement around the same time every day with no real intense pain. Most troublesome is the persistent fatigue, anxiety, depression, and sexual problems I face. I also am having ui issues though infection has been ruled out and kidneys are working normally according to blood test. My rbc count, hematocrit, and hemoglobin were slightly low. Also my tsh was at 5.5 but my t3 and t4 were normal. About a year ago I took tyrosint lowest dose possible for 3 months and it made me sickly and hyperthyroid so I think my throws is ok. Also no sign of antibodies to the thyroid. I wonder if there's is a diet geared towards bowel function I can try. I think it's possible I may also have colitis but can't ever seem to get seen by a specialist. I have no insurance and go through a county program that's garbage. I need help!

[SarshMcGding]

On 7/18/2014 at 10:37 AM, grodeylocks said:

Celiac ELISA assay was negative as was test for dermatitis herpetiformis. I get a rash that is most likely dermatitis herpetiformis that breaks out on elbows, left shoulder area, back of knees, or right thigh. Always in one of the spots however usually not all together. The rash seems to have the same onset and duration as dermatitis herpetiformis and I've noticed when I have it my symptoms flair majorly especially neurological and psychiatric type symptoms. I am pretty sure it's this as the testing can be unreliable. Never had an endoscopy though. I definitely improved significantly when going gluten free however it is my enough. I have cut out all major stomach irritants and follow something that resembles a paleo diet. I smoked American spirits and wonder if those may have stopped my Progress though have since quit. I wonder if there's other diets aimed toward autoimmune diseases I may try.

 

Also, colitis runs in my family so perhaps I have that concurrently, as I've been having mucus in my stool, though I seem to have one bowel movement around the same time every day with no real intense pain. Most troublesome is the persistent fatigue, anxiety, depression, and sexual problems I face. I also am having ui issues though infection has been ruled out and kidneys are working normally according to blood test. My rbc count, hematocrit, and hemoglobin were slightly low. Also my tsh was at 5.5 but my t3 and t4 were normal. About a year ago I took tyrosint lowest dose possible for 3 months and it made me sickly and hyperthyroid so I think my throws is ok. Also no sign of antibodies to the thyroid. I wonder if there's is a diet geared towards bowel function I can try. I think it's possible I may also have colitis but can't ever seem to get seen by a specialist. I have no insurance and go through a county program that's garbage. I need help!

Have you explored a sensitivity to short chain carbohydrates? If you tested negative for Celiac, but find relief from eating gluten free, that might be why, and why you still have symptoms. Apples, for instance, are gluten free, but have short chain carbohydrates. 

[EpicMoma]

I have been using Kratom for a couple years to help with symptoms. It is the only thing that helps me. Without Kratom, I will literally spend my day running back and forth to the restroom. 

[Scott Adams]

The problem with Kratom is that it is linked to liver damage, so the risks of using it far outweigh the benefits. This is from the Mayo Clinic:

https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-20402171 

[LCAnacortes]

If you are still having symptoms - consider keeping a food diary.  I am finding that now that gluten is gone, my body doesn't like dairy. Oh joy....

 

[EpicMoma]

8 hours ago, Scott Adams said:

The problem with Kratom is that it is linked to liver damage, so the risks of using it far outweigh the benefits. This is from the Mayo Clinic:

https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-20402171 

I truel.ly do not believe it Big pharma does not want people taking something that makes them lose money. I need more studies to show me actual evidence.

[Scott Adams]

The Mayo Clinic is not "big pharma," and certain unregulated supplements can have negative side effects, and many have been known to cause injury. It's important to mention that this particular one does have risks associated with it.

[EpicMoma]

10 hours ago, Scott Adams said:

The Mayo Clinic is not "big pharma," and certain unregulated supplements can have negative side effects, and many have been known to cause injury. It's important to mention that this particular one does have risks associated with it.

 I get that it's important to mention the risks. What I also know is there have not been enough testing  to know exactly what the risks are. Some people attack Kratom because it's an unknown. I have been using it for three years now. I can honestly say I am not addicted. I do not go through withdrawals if I don't take it. The only side effects I have had are due to my own error. If I take to much, it can make me nauseated. You can have bad side effects from taking to much Tylenol. Such as liver damage. 

[MommaBear82]

Hepatotoxicity DOES happen with kratom. It happened to my husband. He turned yellow with jaundice and his urine became brown. This was only after taking it three times. I know because I was the one who gave it to him, unfortunately. People should realize that it can and does happen.