Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Problem With Acetaminophen

user001

Recommended Posts

user001 Contributor
user001
Posted

I am pretty sure my brother has celiac disease, but he's in denial. He keeps asking me if I had symptoms that he has, but when I mention that it's just a blood test to see if he may have it, he's like- I don't know. He has;

Vitamin D deficiency (that's all he knows of, that's all that was tested)

Brain Fog

Gastro Intestinal Issues, heartburn daily

 

Recently he was having a weird itching and burning sensation in his hands and feet and had to visit the ER. He had hurt his knee and been taking Acetaminophen regularly for a few days, the doctors attributed this reaction to the drug. He stopped taking it and hasn't had a problem since. I was curious to know if this is something common for people with celiac disease, I have recently started taking Acetaminophen instead of ibuprofen when I had aches, So I was curious. I am certain he has celiac also, but is refusing or procrastinating on getting tested.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I have never read a single Pub Med article or seen anything in the hundreds of celiac-related article/books I have read during the last 4 years that discusses tylenol as being a "problem for celiacs".

 

Sounds like a simple adverse reaction to the medicine. 

user001 Contributor
user001
Posted
  • Author

Thank you Irish. I had trouble searching for this. 

LauraTX Rising Star
LauraTX
Posted

As Irish said, it just sounds like he has an allergic sensitivity to the medicine.  Totally separate from Celiac.  Of course, being the sibling of someone with Celiac disease and all those symptoms definitely points to the need for him to get tested.  I also have a sibling who has random GI issues and she just forgets when I tell her she needs to be screened.  At some point I am just going to coax her into giving me permission to make her a GI appt with my doctor and drag her in there since she tends to not get around to things.  I am just waiting for her to be able to financially do it.  Perhaps you could do something like that with your brother?  Get him in to see your doctor who you already know is good.

Georgia-guy Enthusiast
Georgia-guy
Posted

While a back up what Irish said, I have not seen any publications on studies or research saying a link, I also have issues with acetaminophen. I get the itching/ burning sensation.....but I also have my heart rate skyrocket with just a 200mg dosage of Tylenol. I do not know why, and doctors can't explain why, but I can't have acetinophen, injected steroids (anaphylactic shock), or Vimovo (given to me for "idiopathic joint pain" if I remember correctly, have to check the records).

psawyer Proficient
psawyer
Posted

Acetaminophen has been my go-to pain reliever for over a decade. If it was a problem for folks with celiac disease, I would know it by now. You may have an issue with acetaminophen that has nothing to do with celiac disease.

user001 Contributor
user001
Posted
  • Author

I think it might be because he has been planning on changing jobs and just made the switch recently so maybe he's waiting for benefits to kick in.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Qwerkeelady Newbie
Qwerkeelady
Posted

Call the manufacturer. There are some meds that have gluten. I use a generic acetaminophen that does not have gluten. Advil doesn't have it either, but I have found several brands of ibuprofen that do, so it's possible that there is a generic Tylenol that has it. Better safe than sorry, so I always call and check. I have found a variety of meds that DO have gluten, but none of the packaging showed it.

user001 Contributor
user001
Posted
  • Author

I tried to buy ibuprofen today and realized none of them were labeled gluten free! Not the generic or the name brands. I thought that was strange because up till today, I have seen that label on medicines and vitamins pretty frequently. I did buy my tums though because they were on sale and clearly labeled gluten free!

user001 Contributor
user001
Posted
  • Author

Oh, I also wanted to note that I was not curious about him being glutened from the medicine, I was wondering if its some allergic reaction that was common for people with celiac disease, I thought it might be possible because of how it is processed through the body or something. I really haven't ever taken it till recently, so I was curious to know if this was something common because if so, i shouldnt take it. Irish answered this for me though.

GFinDC Veteran
GFinDC
Posted

Seems the FDA is working on label changes for acetamenophen related to skin reactions.

 

Open Original Shared Link

 

You could also check ask a patient Open Original Shared Link

Georgia-guy Enthusiast
Georgia-guy
Posted

Advil doesn't have it either,

Per the manufacturers of Advil, phone call earlier this month: "Advil TABLETS are gluten FREE. Advil LIQUIGEL AND CAPLETS and some other formulations are NOT gluten free. At this time, we can only guarantee that our TABLETS are safe for those with celiac and gluten sensitivity."
psawyer Proficient
psawyer
Posted

"We can only guarantee" -- we only test those ones, and so will not make a statement that would potentially make us liable for an error by a supplier. This is a standard CYA legal disclaimer, and should not be taken to mean that there is actually any gluten in the product.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,345
    • Most Online (within 30 mins)
      7,748
    Nana3
    Newest Member
    Nana3
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      This Roller Coaster Ride Needs to Stop

      By Ginger38 · Posted

      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods. Unfortunately my suspicions are correct. When I eat gluten-free foods -like Schar breads or rolls, or the crackers, including when I stay in my carb limit,  my sugar spikes and just sits there.. .it won;t even come back down for hours. So in the end it drives my overall glucose and A1C up. I can't really even eat oats or things like that. Cereal is very iffy. Gluten free pizzas, gluten free nuggets, and things like that majorly spike my sugar as well, again, even when staying in my carb limits. I already feel so limited on foods because of the diabetes so of course, when medical people and family and friends are like just go eat gluten, I have been like oh okay - maybe it is all in my head and hey its way cheaper to eat gluten and tastes wayyy better...and then I end up right back where I am today,. MISERABLE, just laying around in pain, spending all day in the bathroom, having accidents related to diarrhea, constant tremors, heart rate issues, chest pain etc. and I forgot about these terrible painful canker sores in my mouth right now, I can't even hardly eat or drink or swallow they hurt so bad.  Not being able to feel like I can eat gluten free is extremely frustrating. I had some great recipes and substitutes for things, and was at a decent place with all that, until the diabetes went crazy out of control, so gluten-free living seems to not be an option for me. However, eating gluten when I truly still believe I am celiac -just misdiagnosed- does NOT seem like a wise idea. I am honestly scared  I am going to get deathly ill from all this or something. I even asked my GI doctor, more like begged, if he would please just label me as celiac and tell me I was for sure (like he did before) so I could get the support I truly need. No such luck. He just keeps saying but your tests were okay 🙄 My family went to an arcade and pizza/pasta buffet yesterday - obviously I didn't want to miss out spending time with my family and my mom spent money paying for my meal/buffet - and I was hungry, so of course I ended up eating pizza and pasta that was not gluten-free, because they don't offer any gluten-free options, and then my brother and others want to ask can you eat that or are you supposed to, and I am like well no, and I will definitely pay for it. They think it is hilarious when I say things and then make comments, like how it is so fun to go out with me especially places like that because I am not supposed to eat but I just do it anyway and say I will pay for it 😥 just seems everywhere I turn it is pointless and I have no support 
    • Wheatwacked
      Am I celiac or not?

      By Wheatwacked · Posted

      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said McCarthy ... “There are now very few patients with infections, and asthmatics who are coming off medications are staying off of them. ... A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; ... Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL;
    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      This Roller Coaster Ride Needs to Stop

      By Scott Adams · Posted

      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary depending on where the samples are taken and how many are collected. It’s also true that celiac disease exists on a spectrum, and many people have serious symptoms and immune responses without yet showing classic biopsy damage. Managing diabetes alongside suspected or confirmed celiac disease is incredibly tricky, especially when healthcare providers don’t work as a team to support your whole health. You shouldn’t be forced to choose between controlling your blood sugar or protecting your gut and immune system. A well-planned gluten-free diet can be both nourishing and diabetes-friendly, especially with guidance from a knowledgeable dietitian who understands both conditions. It’s also deeply concerning that your symptoms—neurological issues, severe fatigue, GI distress, rashes, and more—are being dismissed. You’re not just describing discomfort; you’re describing a level of illness that’s life-altering, and your instincts that something is seriously wrong are absolutely worth trusting. You know your body better than anyone. You deserve a team that listens, believes you, and helps you build a realistic, sustainable path to healing. Whether it’s celiac disease, non-celiac gluten sensitivity, or something else, you have every right to go gluten-free permanently if that’s what makes you feel functional. Many people never get a “perfect” diagnosis but reclaim their health by honoring their own experience and choosing a path of least harm. You are not crazy, you are not weak, and you are not alone. Keep advocating for yourself—you and your daughter both deserve a healthier, more stable life.
    • Wheatwacked
      Am I celiac or not?

      By Wheatwacked · Posted

      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
×
×
  • Create New...