Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Always Ask For Special Handling Of Your Food?


BlessedMommy

Recommended Posts

BlessedMommy Rising Star

Do you instruct restaurant staff each and every time about proper handling of your food to avoid CC? Or do you waive the speech in some circumstances? What about restaurants that have an extensive gluten free program and a dedicated prep space and have been certified by the GIG? Do you still ask for special handling of your food each time?

 

What about items (like smoothies or Wendy's frosties) that aren't likely to get CC'ed in the first place?

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

There is a restaurant with the best gluten-free menu in the Dallas/Fort Worth area, it is ran by a family half of which are Celiacs.  I just say "gluten-free" there and I know they have it.  There is a dedicated gluten-free bakery that I also ask no questions at.  I will order something like a Wendy's frosty as-is, because there really are no precautions to take.  At Chik Fil A, I will have them tell the kitchen staff to use clean utensils if I am inside the restaurant.  If I am in drive-thru, I do not add special instructions to my order, because you are an A-hole if you do that when you are in a timed drive thru, in my opinion. Chipotle I will ask them to change their gloves and not touch the inside of the bowl.

 

Anywhere else that is sit down and has a gluten-free menu, I will do the whole spiel each time unless they demonstrate their knowledge and practices to me first.  Outback and Mellow Mushroom are good examples.  After I order from the gluten-free menu, I will throw in, "Even though the ticket says gluten-free on it, can you go ahead and let the kitchen staff know I am Celiac so they can use clean practices to keep me from getting sick?"  or a variant of that.  I am a silent Celiac and will not conclusively know if I have been glutened, so I try to make sure my bases are covered.  I try to stick with trusted places and limit my eating out.  I also limit myself by getting sick of eating at the few Celiac safe places near me, haha!

chocominties Rookie

I barely ever eat out.  So there's that ...

 

I do go to Chipotle quite a bit (once a week = quite a bit).  I always figure the chance of cc from having my bowl on the same surface as someone's tortilla wrapper isn't that great, but if I see Skippy playing with the tortillas (whyyyyy do they do that?  PLAY WITH THE CORN TORTILLAS--THEY'RE JUST AS FUN) I will always ask for a change of gloves.  If it's more of a sit down place, I make my needs known. 

 

On the rare occasion that I get actual fast food (usually Wendy's) I just cross my fingers and hope they didn't put bread on my potato. 

Adalaide Mentor

It always depends on the place for me. In N Out is the most common place I go. There they list it as a wheat allergy on the ticket so now when I order I just tell them I have a wheat allergy (even though that isn't accurate) and that's that. I know in my local joint that I am safe. I do have to get into a whole thing if I decide I want the fried onions though, which I don't do often because it turns into a "thing" and I have to wait a ridiculous amount of time for my burger. When we go out to a local Brazilian steakhouse I don't say anything other than to ask for the allergy "menu" which tells me what is and isn't safe. If you're familiar with Brazilian steakhouses it makes sense, you don't order food, they just bring around meat on skewers. It is like heaven. Even the rolls are gluten free. :D There is a GIG certified pizza place that I go to and I don't do anything other than order. I only go there during off peak hours though because a pizza joint just isn't equipped to handle us safely during peak hours. Another pizza place (30 minutes away :() has a separate gluten free kitchen and brings the pizza to your table sealed. Again, I simply order.

 

There are plenty of times though that I do get into things. A local BBQ joint that we like, I just remind them because they have a thing with putting huge rolls on the plates. I'll order a Frosty without saying a thing, but ask details every time I want a Frosty and fries. Places like Outback and other similar joints I get into a whole thing. And I will always walk out if I'm uncomfortable with anything, from the words out of the server's mouth to the look on their face. My health is too important to worry about offending someone. I always call ahead if there isn't a clear gluten free menu online so having issues is rare. I don't just walk into a place and expect them to be able to serve me safely without my research first.

BlessedMommy Rising Star

Thanks for your replies!

 

When I got smoothies at McDonald's yesterday, I did mention avoiding CC briefly and I wondered if I could've skipped that, since a smoothie is unlikely to be CC'ed. But, I suppose in theory if a person handled burger buns and then made a smoothie, there could be some risk.

SMRI Collaborator

Thanks for your replies!

 

When I got smoothies at McDonald's yesterday, I did mention avoiding CC briefly and I wondered if I could've skipped that, since a smoothie is unlikely to be CC'ed. But, I suppose in theory if a person handled burger buns and then made a smoothie, there could be some risk.

 

Do they make their smoothies on their blizzard machine or how?  Often McD's is my ONLY choice of a place to eat and I need some safe go-to foods there!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,285
    • Most Online (within 30 mins)
      7,748

    Kenny Waites
    Newest Member
    Kenny Waites
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.