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Gluten-Free Label Rule To Take Effect, But Its Use Won't Be Mandatory - Los Angeles Times


Scott Adams

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Los Angeles Times

Starting Aug. 5, packaged foods such as Rudi's breads that claim to be gluten free will be encouraged to carry a label with more information. Starting Aug. 5, packaged foods such as Rudi's breads that claim to be gluten free will be encouraged to carry a label ...

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Adalaide Mentor

"From his perspective, Fasano says, goals that remain are discovering a "safety net" treatment, a complement to a gluten-free diet for people who inadvertently are exposed, and to find a way to prevent the disorder."

 

Should we band together and buy the man a cape? Green, the color of our ribbon... right?

LauraTX Rising Star

"From his perspective, Fasano says, goals that remain are discovering a "safety net" treatment, a complement to a gluten-free diet for people who inadvertently are exposed, and to find a way to prevent the disorder."

 

Should we band together and buy the man a cape? Green, the color of our ribbon... right?

 

Yes!!

Georgia-guy Enthusiast

I'm slightly confused, what exactly does the new labeling law require??

But on the flip side, "Additionally, gluten-free diets have become "fashionable," ... but also has meant that real medical problems are sometimes treated lightly, Fasano says." <---I love that statement! So true! I don't know how many times in 2 months I have had people say something to me along the lines of "I don't eat much gluten either" like they think I'm on the "fashionable diet"....ummmm....a diet is temporary and by choice, what I'm on is called a "medical neccisity lifestyle to stay healthy".

SMRI Collaborator

When I met with my nutritionist last week we were talking about the cavalier attitudes, especially in restaurants, about people that need to be gluten-free.  When I ate at Olive Garden the other day, I told the waitress I needed gluten-free and she said "no croutons, right"...which was good.  The salad arrived with obvious crouton crumbs.  I still wasn't "officially" gluten-free so I didn't say anything, but I won't eat there any more because of that.  I told my nutritionist I'm just going to tell people I have a gluten allergy because allergies people "get", not so much Celiacs and what it does.  She said she also tells people to think of Celiacs as a "peanut allergy" for your intestines. While you don't go into anaphylaxic shock from eating gluten, your intestines do and you need to treat your food like that.  I've explained that to two people so far and it's a bit of a light bulb moment for them when they hear that.

 

I also fear that with the new labeling requirements that companies will not put on the gluten-free label, even if it is, to prevent lawsuits....

psawyer Proficient

I also fear that with the new labeling requirements that companies will not put on the gluten-free label, even if it is, to prevent lawsuits.

This is already the case, and has been for years. The new law may help, because now there is a legal definition of "gluten-free," whereas in the past, it meant whatever the plaintiff's lawyer could convince a jury it meant.
SMRI Collaborator

I was just at the grocery store--thought I was safe with frozen veges--nope,  "May have come in contact with....all of the top 8 allergens"....ok, so cop out CYA or true?  


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    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
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