Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Bother With An Endoscopy?

KristaM

Recommended Posts

KristaM Newbie
KristaM
Posted

I know nothing about Celiac's. My blood test was 'quite positive' and I have been referred for an endoscopy, but I have no major symptoms and would prefer to go gluten-free instead. Thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

An endoscopy is not needed for recovery, and if you are sure that it is celiac disease, then you can skip the endoscopy if you wish - it is a personal decision.

Some like to have the endoscopy so they know their starting point in case they do not improve in a timely manner. I skipped the biopsy because my blood tests were very conclusive and I was prepared to go gluten-free or life based on that. It really is up to you. :)

Good luck!

KristaM Newbie
KristaM
Posted
  • Author

Thanks! My husband finds it hard to believe that one blood test can test for Celiacs and I'd hate to go gluten free if I didn't need to... But I think I need to talk to my GIM doctor more to weigh my options. Others do say that the blood test pretty much confirms it and her words were that it was "quite positive"

SMRI Collaborator
SMRI
Posted

Which blood tests and what were your numbers though?  I would think that "quite positive" is a done deal though.

LauraTX Rising Star
LauraTX
Posted

If you are able to get a copy of the blood test report, we can help you interpret how quite positive it is.  But your doctor is probably correct on that.  If there is any doubt in your mind, get the endoscopy done.  It will help you solidify the diagnosis, and also diagnose how bad the Celiac damage is so you kind of have an idea if it is going to take a long or shorter time to heal up.  If you go gluten-free now and change your mind later, you will have to consume gluten again for the endoscopy to be accurate, so it is best to knock it all out of the way now, and eat through the remaining gluten foods in your pantry.  

KristaM Newbie
KristaM
Posted
  • Author

TTG Iga Ab: Your Value 41.9, Standard Range <=3.9

Thank you!
Krista

 

SMRI Collaborator
SMRI
Posted

I guess if it were me and I was not having any symptoms, I would want the endoscope for a baseline just in case there are problems down the road.  They put you under light sedation and it's a fairly quick procedure.  Other than fasting, you do not have to do any prep work for the procedure like you would for a endoscopy.  I'm curious what prompted the testing if you were not having symptoms?  And, like Karen said, if more testing were needed later, going back on gluten is much harder than having the test done now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KristaM Newbie
KristaM
Posted
  • Author

OK, I'm going to go ahead with the endoscopy. Thanks, everyone!

I guess if it were me and I was not having any symptoms, I would want the endoscope for a baseline just in case there are problems down the road.  They put you under light sedation and it's a fairly quick procedure.  Other than fasting, you do not have to do any prep work for the procedure like you would for a endoscopy.  I'm curious what prompted the testing if you were not having symptoms?  And, like Karen said, if more testing were needed later, going back on gluten is much harder than having the test done now.

BoJonJovi Newbie
BoJonJovi
Posted

I was diagnosed at 53. I thought I had no symptoms until I went gluten free. I then realized I had many issues but gastro issues were not in the mix. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,113
    • Most Online (within 30 mins)
      7,748
    J CARUCCI
    Newest Member
    J CARUCCI
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.