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Waiting For My Test Results...

Jeevie

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Jeevie Newbie
Jeevie
Posted

I am trying to patiently wait for my TTG results. I have been sick for several years. I have had iron deficiency that hasn't responded to supplements or iron iv, joint pain, fatigue, bloating, unexplained weight gain, CRP is high at 28, negative RF, ANA, ENA. My doctor told me he doesn't know what's wrong with me and to just live with it. In my opinion, it seems like doctors just don't want to be the one diagnosing a patient and prefer other doctors do it. I have paid for a lot of tests out of pocket and went to the USA to get them done as in Canada, it takes forever to see a specialist (sometimes up to 8 or 9 months) and family doctors are limited in what tests they can order. 

 

I went to a walk in clinic due to joint pain being so bad. The doctor immediately gave me a requisition to be tested for Celiac. Researching online, I didn't realize that celiac can mimic other autoimmune diseases. But its hard waiting for the test results. 

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cyclinglady Grand Master
cyclinglady
Posted

I hear you! I am waiting for some glucose tests! I am hoping that I have improved greatly!

Anemia was really my only symptom when I went for a routine colonoscopy consult. Doc suggested celiac disease. I was shocked because my hubby has been gluten-free for 13 years. What are the odds?

Docs never bothered about the anemia since I had a genetic anemia already and I was menstruating! Anemia resolved with supplements for good in about six months. Glad to be able to talk without gasping!

Let us know where you stand.

nvsmom Community Regular
nvsmom
Posted

Waiting really is awful! Going gluten-free was almost easier than not knowing. Hang in there.

I have a lot of joint pain too. There are a fair number of us that experienced joint pain with this disease. It's good that you were tested. Be aware though, that the tTG IgA can miss 5-25% of all celiacs - it's not a perfect test. It is often a good idea to get all the tests done so you do not get missed (DGP IgA, DGP IgG, EMA IgA, tTG IgG, total serum IgA control test, and possibly the older AGA IgA and AGA IgG).

If the test comes back negative, you might want to pursue more testing, including the endoscopic biopsy. If you can't get any more tests done, then go gluten-free for 6 months to a year to see if it helps. Joint pain is often one of the slower symptoms to reverse. You may need to give it a year or three.

Best wishes. Let us know the results!

user001 Contributor
user001
Posted

Waiting is horrible, but finally having answers is great! Good luck to you.

 

Joint pain is terrible. I have very bad arthritis in many places, especially my lower back and that will unfortunately never be reversible but I do have more good days than bad days recently. Today it rained in NJ, so a pretty bad day.

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