Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Facebook Friends Posting About Cutting Wheat Out

BlessedMommy

Recommended Posts

BlessedMommy Rising Star
BlessedMommy
Posted

If a Facebook friend posts that they've developed a wheat sensitivity and are looking for more rice based recipes, is it at all appropriate to post any gentle suggestion for them to go get celiac tests before removing wheat? Or would they be considered unsolicited advice?

 

It's just hard for me to watch other people remove gluten before (or go gluten light) without getting tested because I know all too well the problems with that approach. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beth01 Enthusiast
beth01
Posted

I would give advise and go from there, whether it's taken or not is for another day lol

psawyer Proficient
psawyer
Posted

I would give advise and go from there, whether it's taken or not is for another day lol

Yes. You can lead the horse to water, but they have to want to drink.
BlessedMommy Rising Star
BlessedMommy
Posted
  • Author
Here's what I posted:
 
"I'm sorry that wheat is making you sick! No fun! As a good first step, it's a good idea to rule out celiac disease via blood test, as it can be similar in symptoms to wheat or gluten sensitivity and can cause serious long term problems if untreated. 
 
Secondly, of course, I'm always glad to pass along recipes. Are you looking for any specific ones? What kind of dishes did you make that you're looking for replacements? I've been gluten free for 4 1/2 years and it definitely gets easier over time. :)"
SMRI Collaborator
SMRI
Posted

If people are asking for help, it's not unsolicited advice.  Chances are she did not know how the testing worked or whatever.  I think what you wrote was fine.

IrishHeart Veteran
IrishHeart
Posted

You did a very good thing! (just do not be upset if they do not follow through with testing, ok?)

 

I used to get myself all crazy when family and friends did not follow through and one day I just let it go.

 

If they need me/want any further advice, they know I'll be here for them.

 

"You can lead the horse to water, but you can't hold his head under".--Steven Wright.

SMRI Collaborator
SMRI
Posted

You did a very good thing! (just do not be upset if they do not follow through with testing, ok?)

 

I used to get myself all crazy when family and friends did not follow through and one day I just let it go.

 

If they need me/want any further advice, they know I'll be here for them.

 

"You can lead the horse to water, but you can't hold his head under".--Steven Wright.

 

I hear you---still trying to get our oldest son to get tested!!!!!  He was tested in 3rd grade for growth issues,  very, very bottom of normal range, has canker sores all the time, spends a lot of time in the bathroom, lots of eczema, etc. along with major allergy issues.  He could be fine but he needs to be tested

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

Thanks everybody! She did not seem bothered in the least by what I wrote, but completely skipped by the testing part that I mentioned and asked for my favorite bread recipes. That's alright. Everybody has to make their own choices.

 

I just know, that for me, I started cutting out wheat before I was even aware that I should've been tested for celiac and I wished that I would've known then what I know now. Luckily, I know how to live 100% gluten free and therefore hopefully avoid any complications from possible celiac, but it pains me to see people cutting things out of their diet when I know that they most likely aren't going to bother buying certified gluten free oats, avoiding CC, doing a kitchen purge, being careful with restaurants, etc.

SMRI Collaborator
SMRI
Posted

Maybe follow-up with a recipe or two and a comment about how you wished you would have been tested before going gluten-free because of the problems you had and your kids "are having" doing a gluten challenge--I know the kids are ok but just to emphasize the reality of going back on gluten.

GottaSki Mentor
GottaSki
Posted

I usually keep it general on peeps FB posts and then private message them with the specific tests they should have done and why.

Unless of course peeps are b%$@#ing about the gluten free people or how tired they are of hearing the word gluten...then I tend to lecture a teeny tiny bit on their thread ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,866
    • Most Online (within 30 mins)
      7,748
    Jan Exum
    Newest Member
    Jan Exum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.