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Managing Nausea From Glutening

jddh

By jddh
in Coping with Celiac Disease

Recommended Posts

jddh Contributor
jddh
Posted

Folks, can we talk about nausea relief?

Nausea is my #1 symptom and I am tired of just riding it out during those times I gluten myself.

I've been experimenting with ginger tea (simmer slices of ginger for 10-15 minutes) and it seems to be somewhat helpful. In fact, I tried putting a piece of ginger in my mouth and slowly chewing it and that helped too.

Wondering about the efficacy of gravol, since it's ideally introduced to the system before nausea starts. Of course, also have to make sure the pills themselves are gluten-free.

Tried the wrist pressure points; not a lot of relief there.

Does anyone have any other methods that work for them?

Thanks for your time and thoughts.

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MJ-S Contributor
MJ-S
Posted

Would pepto bismol help? For me the nausea is a function of gas, and pepto bismol helps, if only temporarily.

cyclinglady Grand Master
cyclinglady
Posted

Would pepto bismol help? For me the nausea is a function of gas, and pepto bismol helps, if only temporarily.

Nice tip. Just be sure no one has an allergy to aspirin (I do!).

My old doc would recommend old fashioned baking soda, but used only occasionally. it would be best to find the cause though.

jddh Contributor
jddh
Posted
  • Author

Can Pepto help with indigestion into the small intestine? I thought it was essentially purposed for the stomach. I tend to get sick a couple hours later, ie. ostensibly when food is on its way out of my stomach.

 

Gas is definitely present :) Thanks for your thoughts.

cyclinglady Grand Master
cyclinglady
Posted

Wow! You really might have a non-functioning gallbladder. Here is a link to an interesting article about gallbladder issues and the fact that not everyone has classic symptoms. Plus, it is strongly linked to autoimmune disorders like celiac disease. My symptoms came and went for years.

Open Original Shared Link

Have you researched ox bile? That might relieve your symptoms until you get to a GI. I have no experience with it. But I happily take thyroid from a pig!

blueshades Newbie
blueshades
Posted

I just had the worst headache and what really helped was taking an allergy med and lying down for a while.

I took Telfast which i normally use for hayfever but it did help and i noticed after an hour the headache pain was gone even though it was still there. :)

 

 

CathyO Rookie
CathyO
Posted

My nausea hits hard and fast, and is severe.  I have a prescription for Zofran.  That's about the only thing that stops it when it is vicious. 

 

I also drink Aloe Vera Juice. I use Georges Fractionally Distilled, and drink 2-4 ounces a day. It's made a huge difference.

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beth01 Enthusiast
beth01
Posted

Look up Quease Ease if you want to stay away from the meds, they work.  I use pepto and it helps or if it is really bad I fall back on an anti nausea script.  Dramamine also helps with nausea but it can make you sleepy, so be careful.

 

I second cycling lady, get your gallbladder checked out. I also had a fecal impacted appendix that I carried around for more than four months, not sure how long before, but that made me very nauseous.

jddh Contributor
jddh
Posted
  • Author

Can Zofran or Dramamine take action once the nausea has hit, or is it meant to be taken as a prophylactic? Drowsiness sound just fine—if either relieved nausea and let me sleep more, I would consider myself lucky :)

 

Really interesting stories about gallbladder issues. How were you diagnosed? I have an ultrasound coming up (too far away; calling every couple days trying to fit in someone's cancellation); hoping that would catch gallstones or swelling. Also pancreas, spleen, and all those other terrifying things the internet will give you unreliable information about...

beth01 Enthusiast
beth01
Posted

They will both help with the nausea after the fact.

 

When my gallbladder was bothering me, it was inflamed and no stones.  I had an ultrasound for that.  They took out my gallbladder that day.  It seems that most of us that have gallbladder issues are more due to inactivity or inflammation. I believe there is a scan (HIDA?) or something along those lines, I am not to familiar with them but hopefully someone who is will chime in.  I think it tests out the activity in the gallbladder.

 

Hope you get to feeling better soon and they can get you in sooner for your US.

CathyO Rookie
CathyO
Posted

Zofran helps once the nausea has hit, for me.  It's sublingual, so no trying to swallow liquid or keep something down. 

 

Once that's taken effect, the aloe helps soothe things.

 

I had my gall bladder removed 35 years ago, so my personal experience is outdated with today's technology.  My husband just had his removed last month.

His surgeon said that in his experience, men and women present differently with gall bladder issues.  Women can suffer for years without any clear diagnosis. When men end up with gall bladder issues, they go bad quickly and they go "really bad" and "get gnarly" (I laughed at his technical term) quickly.   My husband developed gangrene within 24 hours and was miserable. 

 

They used a CT scan and an ultrasound to diagnose his.  So, I'd think those tests will show any issues.

jddh Contributor
jddh
Posted
  • Author
Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.
cyclinglady Grand Master
cyclinglady
Posted

Get a HIDA scan. It testes for functionality. An ultrasound or even a CT will look for just stones. I was just over 40 and I was a female but never fat. My symptoms were atypical. I had problems starting when I was sixteen. But it took an infection and a doctor to finally order a HIDA scan to find my non-functioning gallbladder even though it is a family curse (dad is one of seven and six siblings had their GB out). My Aunt had her GB out at 19, she did not have to suffer for years! So, it can hit at any age.

Celiac disease can impact your liver and pancreas too. I would not doubt that you have celiac disease.

CathyO Rookie
CathyO
Posted

 

Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.

 

 

I had my gallbladder out when I was 28, so I was young, too. 

 

I wasn't clear about the aloe vera, sorry.  I drink 2 ounces every day, generally just once a day.

On days I have any issues .... nausea, diarrhea or its cousin constipation, queasiness, etc. .... I drink 2 more ounces.

 

I have GERD of "epic proportions" according to my gastro doc.  I take Dexilant in the morning and Ranitidine at night.

It's been about 8-9 months now of that combination, and it's worked well for me.

I have a wedge pillow that helps elevate my head, but with the medication combo working well I've not been using it for a while.

 

I figure the aloe vera juice's cost is cheaper than all the medical bills ... especially since it helps.  :rolleyes:

That's how I rationalize it.

beth01 Enthusiast
beth01
Posted

Another thing, if you are having problems keeping anything down and worry about losing the anti nausea meds. the do make phenegren suppositories. They work wonders.

jddh Contributor
jddh
Posted
  • Author
How about metoclopramide? New doctor gave me a script, but also gave "fair warning" about some small incidence of prolonged (> 3 month) use causing involuntary muscular spasming, occasionally irreversible.
 
Yikes! That stuff got black-labelled since I was given some back in around 2006. I used it a bit back then and my muscles still work fine...
 
Still, I have plenty to fret about as is. Not sure I want to get into it.
beth01 Enthusiast
beth01
Posted

I personally didn't like the metoclopramide, I don't think it works as well as the others.

  • 4 months later...
jddh Contributor
jddh
Posted
  • Author

I'm still dealing with this and I wanted to note some successes:

 

1. Domperidone. Similar mechanism to reglan/metoclopramide. Not available in the US, but it is in Canada. I found it to be helpful, though not a perfect cure.

 

2. Cannabinoids: I live in an area where medical cannabis dispensaries are easy to come by, and I can confirm some definite symptom relief using very small amounts of cannabis. I got a high-potency tincture, which is suitable for administering tiny doses throughout the day as needed. I am able to use this during work, etc, which is to say if done right, you can get symptom relief without getting stoned.

mynxr Rookie
mynxr
Posted

 

Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.

 

I would be careful with the Omeprazole and use Prilosec instead.  There is a great website, www.glutenfreedrugs.com  If the drug is listed, it's gluten free.  Omeprazole, is not listed but Prilosec is.  I used to take Omeprazole and would get ill not long after taking any of my drugs that contained gluten.  When I switched from the generic ones that contained gluten to the brand which didn't, I could tell a huge difference.  I'm one of those Celiac patients that vinegar makes ill when it's distilled from wheat.  Another thing is natural vanilla flavoring.  It is made with vodka.  I have to make my own vanilla flavoring so that I don't get sick.  So, what I'm trying to say, is yes, I'm hyper sensitive but I got that way from three years of hidden gluten exposure after being diagnosed.

luvs2eat Collaborator
luvs2eat
Posted

My youngest daughter has had a medical marijuana 'scrip for years for symptoms like nausea and vomiting and to help stimulate her appetite when she was confined to only 5 foods she could tolerate.. She lives in Oregon, lucky girl. She once walked into a dispensary w/ her trash can in her hands and begged them to help her w/ the severe nausea. They sat her down and gave her a lozenge. Within minutes, she was better. I don't know if you're in one of those enlightened states, but the dispensaries are filled with really knowledgeable people.

  • 2 weeks later...
Chibiehotaru Newbie
Chibiehotaru
Posted

I also use Zofran. It doesn't eliminate the nausea but makes it tolerable for me. Good information in the posts above. Thanks everyone!

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