Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recovery Happens. Believe It!

squirmingitch

Recommended Posts

squirmingitch Veteran
squirmingitch
Posted

In 2 months I will have been strict gluten free for 3 years. I have dermatitis herpetiformis, the skin presentation of celiac disease (for those of you who don't know me). 

 

I have good news to report. I am 5'1" and celiac disease had me down to 93 (at times 90) pounds. After going gluten free I would weigh myself & get depressed that I was not gaining weight. This went on for literally years. I did know not to expect much the first year so I wasn't that concerned & it didn't bum me out too much during that first year. By the end of year 2 though, it was getting pretty depressing every time I stepped on the scale & I hadn't gained anything. I got tired of seeing the same thing every time I stepped on the scale so I just quit weighing myself. Just about the last month or two, I noticed my jeans felt a bit tighter than they had been. I screwed up my courage the other day & stepped on the scale. 103. I thought it was an apparition. I Have weighed myself every day for 4 days & it always turns up 103! It's REAL!!!!!! FINALLY, FINALLY!!!!!!!

Ha,ha,ha,ha,ha! If this keeps up, I'm going to have to get a new wardrobe because of weight gain for the very first time in my life (I'm 57)! :lol:  :lol:  :lol:  :lol:  :lol:

 

Also, my bp had been steadily inching up in the years before I found out I have celiac disease. Well folks, my blood pressure is now back to so normal there probably aren't many people in the world who have such normal bp. 

 

I've told you the things that can be measured. The other things like fatigue & gas, bloat, migraines, depression, etc., etc., etc...... have all resolved.

 

I do still have the rash. It is a billion times improved but I still get itchies here & there; rarely ever blisters any more. This is a humongous improvement. Those who know me, know what I'm talking about. I had the rash bad. It's just going to be a long time for me before I'm completely free of any vestige of the rash but I can certainly live with the state of it now. 

 

I have been reading in this forum thread after thread where you "newbies" are chomping at the bit for permanent improvement. I wanted to post this to let you know it really & truly WILL happen for you but it is not something that happens in mere months, nor in 6 months, nor in a year necessarily but it WILL happen. Some take longer than others. Just stay the course and know that one day it will be YOUR day to write a post like this.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Awesome reminder to hang in there and stay patient.  :)  Here's to your good health!! :D

1desperateladysaved Proficient
1desperateladysaved
Posted

Oh, what good news!   I step on the scale daily too and find a new low nearly every day.  It is so strange when different things finally begin to happen.  I remember those days in the beginning when I just wanted to measure my bloated waist and have it go down!  I just wanted something to be visible that someone besides me could see.  NOW these things are happening, though I have felt much better for over a year.  I am so glad for you to be experiencing measureable change and hope that squirmyitch will one day be able to change her name!  I posted before and after pictures elsewhere, and would like to post them on Celiac.com using only my code name.  However, so far my attempts have failed!

 

Dee

.

bartfull Rising Star
bartfull
Posted

:D  :D  :D

 

Squirming, you have been one of the most informed and helpful people here on the board. You may never know how many people you have helped, but they know. You deserve perfect health and it's so good to see you well on the way. :wub: (((((HUGS))))) :wub:

cyclinglady Grand Master
cyclinglady
Posted

Congratulations!

I am really happy that your rash has improved. You are an inspiration for all folks with celiac disease, but even more so for those with DH!

squirmingitch Veteran
squirmingitch
Posted
  • Author

Awwwww, you guys are getting me all teary eyed but there's a huge smile on my face at the same time.

 

((((((((HUGS))))))) to all of you!

 

Happy healing! :)

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

I love reading posts like this!  Glad you are improving, and always a great reminder that good things will happen in time  :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Yay Squirmy : )

moosemalibu Collaborator
moosemalibu
Posted

Wonderful to read -  am still a newbie myself and sometimes find myself getting impatient. Great reminder as well as hope! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    2. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    3. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

    4. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that...
    5. Maggieinsc
      - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

      Thanks for the prompt reply. Interesting that blood test could be caused by other things. I am sure Dr Fincher will get to the bottom of it. I know he ate nowhere near that amt of gluten before the endoscope. Always interested in any new info abt celiac. U can not trust what is said on fb- That would be a piece of bread a day. He didn't even make that...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748
    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Gut nutrition supplements?

      By xxnonamexx · Posted

      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      Gluten free Yogurt suggest

      By Jane07 · Posted

      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.