Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiacs


jennrnua

Recommended Posts

jennrnua Newbie

Hi everyone. I was diagnosed with hypothyroidism 6 weeks ago, started on levothyroxine and assumed all would be good again. Boy was I wrong. My Obgyn found my hypothyroidism but I switched to my family practice doctor and his CRNP. After weeks of blood draws and an ultrasound, it seems as though I have Hashimotos Thyroiditis which apparently has a strong connection with Celiacs and the symptoms are so similar it's crazy. My stomach hurts more than it feels good now, I have a headache almost all the time (but I do have a cold I haven't been able to kick for 3 weeks.) I also developed mild but super itchy bumps/rash about three weeks ago on my hands, forearms, feet, shins and buttocks, thought it was poison oak until today when I learned about rash you can get with Celiacs. I have a lot of the classic symptoms too, but most of those also occur with thyroid disease. What do I do from here, I am lost and beyond tired of going to doctors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

You just might have celiac disease. Only one way to know for sure is to get tested. Here are the tests to ask for:

Complete Celiac Blood Panel

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EMA IgA

total serum IgA - a control test

AGA IgA and AGA IgG - less reliable older tests

endoscopic biopsy - make sure at least 6 samples are taken

Good luck! Keep eating gluten until all testing is complete.

SMRI Collaborator

6 weeks is not enough time for your thyroid levels to work out.  It can take a year or so of going back and forth with blood draws and adjusting levels, sometimes more.  It would be nice if it were a quick fix though.  At your next appointment I would ask for the Celiac testing.

nvsmom Community Regular

I agree with both of the previous posts, get the full celiac blood panel done and be patient with the thyroid problems.  Changes in thyroid meds need a good 6 weeks to affect your system and the tests.  You might still need some med tweaking.  Plus, when I started on Synthroid, my body was thrown for a loop and I felt pretty badly for a while; increased hair loss, fatigue and pain showed up and while I can't be sure the new meds caused it, it was quite the coincidence otherwise.

 

Good luck with the tests.  Remember not to go gluten-free before testing is complete... And welcome to the board,  :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.