Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Anxiety (Related And Not)


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi guys,

 

Putting this in here since the "behaviour" forum doesn't get much traffic.

 

Lately (past month or so) I've been having some bad axiety, panic attacks, depression, etc. All the fun stuff. This was a big symptom for me before I wen't gluten free, and got much much better once I did. Over the past few years, when I did get an attack I could usually link it back to something I ate, or an actual stressful event.

 

However, lately there's nothing I can point to and know, yes, that's what it was. I do have a few gluten-related possibilities: My boyfriend and I recently moved in together, and while my BF still brings gluten into the house, it's mostly frozen things that go straight into the oven, and he's super careful cleaning up, washing hands, no kissing, etc etc. It is possible that I'm getting low-level cc from something, but it would be pretty minor.

 

Also, I often feel low-energy, slightly depressed, a bit gittery and get worked up easily after a glutening, but it's usually a single incident and is done, and there's always some kind of stomach thing to go with it. The past while has not felt like that. I've also considered that something could be up with my thyroid, though my doctor (who I saw last week) thinks everything looks fine.

 

So, I am facing facts: this is a serious mental health issue, and I've asked to see a psychiatrist. This is a huge step for me, since I've dealt with depression/anxiety in some respect for most of my life. I've just blamed it on gluten for the past few years. The problem is our guts and our brains are so connected: If I eat something bad, it makes me depressed, which in turn makes me feel bad (a lot of nausea lately).  It sucks. It's interfering with my work and my life, and as much as I will do my best to eat right, sleep, meditate, exercise, socialise, and all the good things, I'm going to need some help.

 

Anyway, has anyone else gone through this? Celiac affects our mental health, but maybe it's not the sole reason for it? Any advice for coping? I'm taking this all one day at a time.

 

Thanks a bunch!

 

Peg
 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran

Hi Peg

 

My sympathies - I have had dreadful anxiety that was bad just before diagnosis, then as my iron and B12 levels normalised it was much better. Personally, I am very grateful I found the book by Paul David and would recommend it to anyone with anxiety.  You may want to read his blog first just to see the approach he takes but as far as I can make out it works and I am told some GPs recommend it to their patients here in the UK.

 

Open Original Shared Link

 

But my anxiety came back this summer.  When I have it it brings the most ridiculous phobia with it which I won't share here but take it from me, it is a real pain.  I started to read Paul's book again and I learned was that  I was experiencing a temporary setback, and I am thinking that might be what you are suffering (Paul's book deals with those).   In my case I think that I was very worried about a project with a deadline I didn't think I'd make and an impending trip overseas that I wasn't really looking forward to.   Those issues got my adrenalin going and I think that is what brought my anxiety back.    It was helpful to deal with those other issues and slowly it all ebbed away again.

 

I think we celiacs are prone to anxiety from what I have read and I have also learned that for some, once your body knows how to go there, it can go back quickly! 

 

Maybe some other people will have some tips, but I wish you well.

w8in4dave Community Regular

Funny you post this, I had an anxiety attack last night. I was driving home and there was a white out snow storm. I was fine till I had to go over the high level bridge. My body was just shaking! I was still 1/2 hr away from home. After getting off the high level I was really shaking! It was hot in the Jeep but I was still just shaking. I was still shaking when I got home. Sat down and relaxed and slowly I stopped shaking. Today I can still feel the effects. I don't think mine had anything to do with what I ate. But I have never done that before. It makes me think of my dog who has separation anxiety he shakes like that also.

cyclinglady Grand Master

First, can you get your antibodies re-checked for antibodies -- just to rule out cross contamination? Then ask to have B-12 or folate levels checked. Those deficiencies are very common in celiacs and have been linked to depression, etc.

Pegleg84 Collaborator

The really irritating thing is I'm anxious about anything. I get anxious, and then I worry about how that anxiety will affect things, not the other way around.

 

I'm trying to up my b12, being super careful with what I'm eating, etc etc. Iron would be a good idea too. Getting out in the sunshine when it's out. November hit me hard this year, but now it's snowing and that's actually cheering me up a bit. But this is more than a seasonal thing.

 

I do also think that we're kind of prone to it. I was more or less fine for a few years and now, bam! Depression kind of runs in our family even though we don't really talk about it. We also (as a society) don't often talk about the fact that depression/anxiety isn't just about being sad/worried. It's an underlying tension that's there even when you're feeling ok. It's an instability. Today I'm doing ok, but I've got this slightly neurotic shakiness that makes me feel I could just break down at any moment. It's very unnerving.

cyclinglady Grand Master

I am glad that you are seeking help. It would be nice if your MD could check your nutritional levels before prescribing medication though as we all know that celiac disease can affect the brain.

Hope you are feeling better soon.

RMJ Mentor

Moving in together is wonderful, but a pretty big life change. Could it be causing you stress?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,118
    • Most Online (within 30 mins)
      7,748

    Shiwaji
    Newest Member
    Shiwaji
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.