Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pure Oats - A Question For Those Who React


cristiana

Recommended Posts

cristiana Veteran

Hello All

 

I realise that most celiacs can tolerate pure oats but I wondered for those of you that can't (apparently 10% of us?) what your symptoms are.  I am trying to figure out if that is what is wrong with me at the moment. Having consciously avoided oats since my diagnosis I ate about 100g in two days last weekend and initially I had terrible abdominal distension and belching and since that has died down, from about midday everyday, I feel very uncomfortable, like my stomach is really sore.  Also mild C.  I'm just wondering how long this will last, if it is down to the oats.  I had a similar thing happen in the summer and I think it took about a month to shift, but at the time I put it down to NSAIDs, now I'm not so sure some oats didn't sneak in somewhere and cause the same reaction.

 

Thanks

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heatman Rookie

I seem to get the same reaction I get to gluten with oats (headache, body ache, fatigue) although more mild. It took me a while to figure it out (as it does with every glutening!). Your symptoms sound like you could be reacting to the increase in fiber. But, if your hunch is its the oats then it doesn't hurt to give them up. They're much easier to avoid than corn and rice, that's for sure. I hope you're feeling better soon.

ravenwoodglass Mentor

By 'pure' oats you do mean oats that are certified as gluten free right? If they are not the are likely contaminated.

I also react about the same as I do with gluten. Been a real long time since I tried them. Reaction was bad enough for me to decide to just live without them.

If you are not sure it is the oats you could drop them for now and try again when you are feeling better. If it happens again you will know that oats are a no for you.

cristiana Veteran

Hello - thanks so much, both.  Yes ravenwoodglass - certified gluten-free oats.    I might try to stay away from them until at least February, after my next blood test.  As you say, heatman, at least they are easy to avoid than other stuff.  I have been really shaken by this reaction, if indeed that is what it is - worse than the last time I had gluten by mistake.  It is a bit hard to tell at this time of year what is really going wrong because there are so many gastric bugs doing the rounds, too.  I saw a post on another site where someone was complaining when they ate oats three days later they got severe burning in the duodenum area, that sounds just like me - it didn't take immediate effect.  Oh well - time will tell.  Thanks so much again.

ceceliac Apprentice

Hello, i read that oats are still being studied for the reactions they cause in some celiacs. Here in argentina oats are not safe for celiacs, the foods are labelled SIN TACC, that means in spanish without wheat, oats, barley or rye, anyway i think thats because of CC..

cap6 Enthusiast

Hello, i read that oats are still being studied for the reactions they cause in some celiacs. Here in argentina oats are not safe for celiacs, the foods are labelled SIN TACC, that means in spanish without wheat, oats, barley or rye, anyway i think thats because of CC..

I have also read that same thing, although I don't remember where so can't quote the source but it was just a month or so ago.  Also they can be difficult to digest.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,488
    • Most Online (within 30 mins)
      7,748

    Debruary
    Newest Member
    Debruary
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.