Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Stop The Immune Attack?

Seeking2012

By Seeking2012
in Coping with Celiac Disease

Recommended Posts

Seeking2012 Contributor
Seeking2012
Posted

How do I stop the effects of being glutened after I've already been glutened? I want to stop the fatigue, achy muscles, tiredness, foggy brain right in their tracks after I've been accidentally glutened. How do I do that? Any vitamin? Supplement? Medication? Herb? Tea? Anyone know of anything that does this? Desperate for the answer.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Serielda Enthusiast
Serielda
Posted

How do I stop the effects of being glutened after I've already been glutened? I want to stop the fatigue, achy muscles, tiredness, foggy brain right in their tracks after I've been accidentally glutened. How do I do that? Any vitamin? Supplement? Medication? Herb? Tea? Anyone know of anything that does this? Desperate for the answer.

I can say avoidance is the best method, eg eat at home to have better control of what is in your food. It took me awhile to do that but in my town we have a gluten free allergen free restaurant I <3. ! but after having to retool my diet getting rid of other grains I can't really go there. But as of once the problematic food item has been eaten, I go for kombucha for probiotics and avoid foods that could cross react.. I tend to eat lighter foods and grab as many zzzz's I can. plus peppermint tea helps chill me out. I wish there was a way to soften and shake it immediately, but alas nein, sadly.

Seeking2012 Contributor
Seeking2012
Posted
  • Author

I can say avoidance is the best method, eg eat at home to have better control of what is in your food. It took me awhile to do that but in my town we have a gluten free allergen free restaurant I <3. ! but after having to retool my diet getting rid of other grains I can't really go there. But as of once the problematic food item has been eaten, I go for kombucha for probiotics and avoid foods that could cross react.. I tend to eat lighter foods and grab as many zzzz's I can. plus peppermint tea helps chill me out. I wish there was a way to soften and shake it immediately, but alas nein, sadly.

 

I am determined to find an answer. I shall keep looking. I've contacted several organizations and will be getting in touch with Dr. Alessio Fasano's office on monday to see if they know of anything. I know about his medication for blocking the effects of zonulin but I'm not about to go on medication for the rest of my life. I need something that can be taken on an as-needed basis when accidental gluten exposure occures.

Serielda Enthusiast
Serielda
Posted

Hope you get a good answer, when/ if you do please share. Lord knows less pain is awesome.

MNMAC Apprentice
MNMAC
Posted

Try to accept the fact that you will not feel very good but DO NOT let this take over all your thoughts. Find something to keep you busy and try to live instead of letting all your fears take over.

beth01 Enthusiast
beth01
Posted

I think you are searching for something that right now just does not exist. Time is the only thing. You can keep well hydrated, some use things like Dicyclomine ( helps with cramping), anti-nausea meds, pepto, immodium. There is no magical pill. Sorry.

notme Experienced
notme
Posted

I am determined to find an answer. I shall keep looking. I've contacted several organizations and will be getting in touch with Dr. Alessio Fasano's office on monday to see if they know of anything. I know about his medication for blocking the effects of zonulin but I'm not about to go on medication for the rest of my life. I need something that can be taken on an as-needed basis when accidental gluten exposure occures.

zonulin is still in clinical trials, i think.  it's being tested as a preventative, anyway, so you would already have had to take it prior to getting glutened.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

How do I stop the effects of being glutened after I've already been glutened? I want to stop the fatigue, achy muscles, tiredness, foggy brain right in their tracks after I've been accidentally glutened. How do I do that? Any vitamin? Supplement? Medication? Herb? Tea? Anyone know of anything that does this? Desperate for the answer.

 

Looks like you are going to need a time machine.  But in the  meantime, until you get your own personal TARDUS try:

 

Pepto Bismol

Aspirin

Lots of water

Eat plenty of easy to digest foods and take digestive enzymes.

Some people think activated charcoal helps if it is taken right after the glutening.

Try some probiotics too.

Okra and marshmallow root might help a little.

Anything that coats or soothes the gut is worth a try I guess.

I think it helps to keep eating food, rather than stop eating.

Another maybe help is L. glutamine.

The best thing tho is a really nice big box of wine...  lasts for a little while.

  • 2 weeks later...
Seeking2012 Contributor
Seeking2012
Posted
  • Author

Reporting back with nothing to report. So far, I have found a whole lot of nothing. This is unacceptable. I will continue looking.

julissa Explorer
julissa
Posted

wow, something to dream about

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748
    Rockette47
    Newest Member
    Rockette47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.