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How To Stop The Immune Attack?

Seeking2012

By Seeking2012
in Coping with Celiac Disease

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Seeking2012 Contributor
Seeking2012
Posted

How do I stop the effects of being glutened after I've already been glutened? I want to stop the fatigue, achy muscles, tiredness, foggy brain right in their tracks after I've been accidentally glutened. How do I do that? Any vitamin? Supplement? Medication? Herb? Tea? Anyone know of anything that does this? Desperate for the answer.

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Serielda Enthusiast
Serielda
Posted

How do I stop the effects of being glutened after I've already been glutened? I want to stop the fatigue, achy muscles, tiredness, foggy brain right in their tracks after I've been accidentally glutened. How do I do that? Any vitamin? Supplement? Medication? Herb? Tea? Anyone know of anything that does this? Desperate for the answer.

I can say avoidance is the best method, eg eat at home to have better control of what is in your food. It took me awhile to do that but in my town we have a gluten free allergen free restaurant I <3. ! but after having to retool my diet getting rid of other grains I can't really go there. But as of once the problematic food item has been eaten, I go for kombucha for probiotics and avoid foods that could cross react.. I tend to eat lighter foods and grab as many zzzz's I can. plus peppermint tea helps chill me out. I wish there was a way to soften and shake it immediately, but alas nein, sadly.

Seeking2012 Contributor
Seeking2012
Posted
  • Author

I can say avoidance is the best method, eg eat at home to have better control of what is in your food. It took me awhile to do that but in my town we have a gluten free allergen free restaurant I <3. ! but after having to retool my diet getting rid of other grains I can't really go there. But as of once the problematic food item has been eaten, I go for kombucha for probiotics and avoid foods that could cross react.. I tend to eat lighter foods and grab as many zzzz's I can. plus peppermint tea helps chill me out. I wish there was a way to soften and shake it immediately, but alas nein, sadly.

 

I am determined to find an answer. I shall keep looking. I've contacted several organizations and will be getting in touch with Dr. Alessio Fasano's office on monday to see if they know of anything. I know about his medication for blocking the effects of zonulin but I'm not about to go on medication for the rest of my life. I need something that can be taken on an as-needed basis when accidental gluten exposure occures.

Serielda Enthusiast
Serielda
Posted

Hope you get a good answer, when/ if you do please share. Lord knows less pain is awesome.

MNMAC Apprentice
MNMAC
Posted

Try to accept the fact that you will not feel very good but DO NOT let this take over all your thoughts. Find something to keep you busy and try to live instead of letting all your fears take over.

beth01 Enthusiast
beth01
Posted

I think you are searching for something that right now just does not exist. Time is the only thing. You can keep well hydrated, some use things like Dicyclomine ( helps with cramping), anti-nausea meds, pepto, immodium. There is no magical pill. Sorry.

notme Experienced
notme
Posted

I am determined to find an answer. I shall keep looking. I've contacted several organizations and will be getting in touch with Dr. Alessio Fasano's office on monday to see if they know of anything. I know about his medication for blocking the effects of zonulin but I'm not about to go on medication for the rest of my life. I need something that can be taken on an as-needed basis when accidental gluten exposure occures.

zonulin is still in clinical trials, i think.  it's being tested as a preventative, anyway, so you would already have had to take it prior to getting glutened.

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GFinDC Veteran
GFinDC
Posted

How do I stop the effects of being glutened after I've already been glutened? I want to stop the fatigue, achy muscles, tiredness, foggy brain right in their tracks after I've been accidentally glutened. How do I do that? Any vitamin? Supplement? Medication? Herb? Tea? Anyone know of anything that does this? Desperate for the answer.

 

Looks like you are going to need a time machine.  But in the  meantime, until you get your own personal TARDUS try:

 

Pepto Bismol

Aspirin

Lots of water

Eat plenty of easy to digest foods and take digestive enzymes.

Some people think activated charcoal helps if it is taken right after the glutening.

Try some probiotics too.

Okra and marshmallow root might help a little.

Anything that coats or soothes the gut is worth a try I guess.

I think it helps to keep eating food, rather than stop eating.

Another maybe help is L. glutamine.

The best thing tho is a really nice big box of wine...  lasts for a little while.

  • 2 weeks later...
Seeking2012 Contributor
Seeking2012
Posted
  • Author

Reporting back with nothing to report. So far, I have found a whole lot of nothing. This is unacceptable. I will continue looking.

julissa Explorer
julissa
Posted

wow, something to dream about

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