Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help - Fistula - Gluten Sensitivity


SMS123

Recommended Posts

SMS123 Newbie

Hi,

I have a rare condition I guess (as I do not know what is going on) and need your help. Please read my post.

6 months back I got abscess on lower back\upper buttocks. There was hard swelling around abscess area. It popped on multiple places on the swelling and started discharging blood and pus.

After 5 months on antibiotics, my doctor said it was fistula and did a fistula surgery. He scraped all the hard tissue, closed fistula tracks and placed a seton.

3 weeks after surgery, swelling came back. It popped on multiple places and started discharging. This time only blood.

I was getting buring sensation in anus after BM ( before and after surgery). After surgery, I went gluten free and the burning sensation stopped. I was surprisesed!

I am thinking that my strange swelling on buttocks is also some kind of food related allergy.

Please advise.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome! Sorry that I do not have any answers for you. The best thing would be to research celiac disease to determine if any of your symptoms apply. Here is a link to the University of Chicago's celiac center:

Open Original Shared Link

This is the actual list of tests:

-tTG IgA and tTG IgG

-DGP IgA and DGP IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

I wish you well.

kareng Grand Master

I think you should be hounding your doctor about this! From what i have heard, fistulas can be hard to heal. Unfortunately, 1 surgery and some antibiotics may not do it. Have you been evaluated for Chron's? I think fistulas are associated with it?

GFinDC Veteran

Hi,

 

Fistulas can happen sometimes in Crohns patients.  The fact that you had symptom reduction on a gluten-free diet is good to know.  Some people with Crohns go gluten-free and have improvements.  It is possible to have both celiac disease and Crohns at the same time.

 

There are some tests for food intolerances, but not many.  Sometimes the best test is what your body tells you by it's reactions.  A food elimination diet can help pinpoint foods that cause reactions.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

    2. - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

    3. - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

    4. - Scott Adams replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    5. - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,570
    • Most Online (within 30 mins)
      7,748

    Chanty
    Newest Member
    Chanty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
    • Scott Adams
      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from casein sensitivity. IgG food panels, including yeast, are generally considered markers of exposure rather than proof of clinical intolerance. Aged cheeses like Irish cheddar are typically gluten-free, though they do contain casein and natural cultures. If symptoms are strong and repeatable, it may be worth working with a gastroenterologist or allergist to sort out true allergies, intolerances, or other GI conditions rather than assuming multiple cross-reactive immune triggers.
    • Scott Adams
      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are typically bound with food-grade binders, and if any starch were used in manufacturing, it would not remain in the finished water at measurable or biologically active levels. Plain water itself does not contain protein, and gluten is a protein. Major beverage companies also have strict allergen control programs, and gluten would need to be declared if intentionally added. If symptoms are occurring consistently after certain products, it may be worth discussing with a physician to explore other potential triggers, but at this time distilled water is not considered medically necessary for people with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.