Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Ttg But Negative Antireticulin?

Lissa283

Recommended Posts

Lissa283 Rookie
Lissa283
Posted

I had a positive ttg (12.6) but a negative antireticulin...the rheumatologist said I have celiac disease....does this sound right??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Yes.  :(  The reticulin tests were not that reliable and missed too many celiacs.  Not many labs still use them.  The tTG IgA is the most common tests with a specificity to celiac disease of 95%.  Most likely you have celiac disease.

 

How do you feel about that diagnosis? Does it seem to fit?

 

Welcome to the board.  :)

Lissa283 Rookie
Lissa283
Posted
  • Author

I have tons of symptoms and they all fit the celiac picture. I've been off gluten for 2 days and already feel more energetic.

nvsmom Community Regular
nvsmom
Posted

That's probably a match then.  :( Welcome to the club.  ;)

 

Are they planning on doing the endoscopic biopsy to confirm the diagnosis?  If so, you'll need to be eating gluten in the 2-4 weeks prior to the procedure so you may not want to go gluten-free yet if you are having it done.  Many celiacs find it really tough to go back on gluten after starting to feel better.

 

The biopsy is not necessary for a diagnosis though - I skipped it. If you and your doctor are comfortable with the diagnosis, then definitely stay gluten-free.

 

I hope you continue to feel better. If you experience any withdrawal symptoms in the next week or so, just remind yourself that it only last a couple of weeks.  Best wishes.  :)

Lissa283 Rookie
Lissa283
Posted
  • Author

That's probably a match then.   :( Welcome to the club.   ;)

 

Are they planning on doing the endoscopic biopsy to confirm the diagnosis?  If so, you'll need to be eating gluten in the 2-4 weeks prior to the procedure so you may not want to go gluten-free yet if you are having it done.  Many celiacs find it really tough to go back on gluten after starting to feel better.

 

The biopsy is not necessary for a diagnosis though - I skipped it. If you and your doctor are comfortable with the diagnosis, then definitely stay gluten-free.

 

I hope you continue to feel better. If you experience any withdrawal symptoms in the next week or so, just remind yourself that it only last a couple of weeks.  Best wishes.   :)

I don't think i'm going to do the biopsy. I can't wait another 6 weeks to find the answer when it's probably true.  I feel just too terrible most days.  I think I may just go gluten free and have my labs rechecked and see if there is improvement.

nvsmom Community Regular
nvsmom
Posted

Good luck with the diet!  :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,572
    • Most Online (within 30 mins)
      7,748
    lizz Z
    Newest Member
    lizz Z
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.