Nabisco gluten-free Crackers Or Wendys Cause Of First Glutenin

[indianaharlegirl]

Hello everyone I dx myself as celiac 5 days ago and I just had my first glutenig by either Wendy's chili and/or frosty and/or nabisco gluten-free sea salt crackers. I talked to mgr at Wendys who said the chili and frosty mixes r prepackaged and they add their gluten-free hamburger to the chili. I'm pissed bc I can't figure out the culprit. Any thought? The crackers could be made on same line w soy but the chili could be cross contaminated. I had cheddar cheese on the chili.....any thoughts?? thanks This has been overwhelming and I dread dealing w derm this week when I try to explain that I KNOW I'm celiac and just need him to biopsy the area near these legions while they are still here and do the complete blood test!! You guys are a life saver!! Thx!!

[kareng]

It is really hard to say.  You don't know if you have Celiac - so it may not even be gluten? Might be something else you ate that day?  If you have only been gluten-free for 5 days, it really may not be gluten  - 5 days isn't enough time to get yourself back to "normal".

 

You  need to eat gluten and have fresh lesions to get them diagnosed for DH.

[cyclinglady]

I think you need to research more and you can share with your derm. Here is a link to the University of Chicago's celiac website:

Open Original Shared Link

Then search through this forum under the DH section. It clearly explains how the doc should biopsy for celiac disease. This is critical!

YOU HAVE TO BE CONSUMING GLUTEN TO GET ACCURRATE TEST/BIOPSY RESULTS!

[mamaw]

I agree with the other posters, you need more solid info & need testing.... don't jump on the celiac truck just yet , there are many illness/ diseases that can mimic celiac....and vice versa. Plus for correct testing you need to be eating gluten.......

A side note twelve years being celiac..... I never was glutened by Wendy's chili or frosty....I don't put cheese on it ..... shredded cheese can have wheat flour on it to keep it from sticking together, don't have any idea about Wendy's cheese.. I would guess it is okay....

Did your derm doc do a biopsy for DH?

[kareng]

I agree with the other posters, you need more solid info & need testing.... don't jump on the celiac truck just yet , there are many illness/ diseases that can mimic celiac....and vice versa. Plus for correct testing you need to be eating gluten.......

A side note twelve years being celiac..... I never was glutened by Wendy's chili or frosty....I don't put cheese on it ..... shredded cheese can have wheat flour on it to keep it from sticking together, don't have any idea about Wendy's cheese.. I would guess it is okay....

Did your derm doc do a biopsy for DH?

 

 

I have never seen a shredded cheese with wheat flour.  I am curious what brand has that so we can warn people? edit - It seems to be a persistant internet myth so it would be good to have some real examples.  -Wheat flour gums up and sticks when wet. A restaurant might add some to the cheese if its being made into a sauce (as a thickener) - but that wouldn't be a fast food place.

 

 But... as some Wendy's workers have told me, they didn't fell confidant that the cheese wasn't cc'd - it was left with no lid next to where they assembled burgers.  Not all Wendys may have that set up.

[mamaw]

Kraft  & Sargento  are  safe  shredded  cheese  .... but  I  doubt  one of those  is used  in a fast food  joint....I  venture to guess  they use  a  cheap  brand  of  shredded  cheese   ........ where  more  generic  junk  is added...for looks & taste.  

anti-clumping  agents used by cheese mfg's  include powdered cellulose , potato starch, or calcium carbonate.  powdered  cellulose can be made from a gluten grain usually  wheat...with the  new  laws  that  should  be listed as  such....

 

cellulose  is a  ingredient  I look at  closely  when  purchasing a product....the  new  laws  should  be  helpful  but  is  all mgf's  on  board  yet?

 

Kareng  sorry I guess  I  didn't  explain  &  should  have  used  the  word  cellulose  instead  of  wheat...another thought  is  people 's   alarm/ radar  goes off  when they see the word  WHEAT but cellulose  they may just  pass  over...

[squirmingitch]

Crystal, I TOLD you that you HAVE to be eating gluten -- a full gluten diet --- right up through testing. That means you HAVE to be eating gluten for the dh biopsy. You can NOT go gluten free yet. You will get a negative on the dh biopsy or on celiac blood work.

[indianaharlegirl]

Squirmingitch: I'm back on gluten bc ur right that's the only way i will get dx. Derm very condescending and saidits eczema and that it is for sure not DH which she claims are like big cold sores and bc mine aren't blistered anymore but crusting over its not dh. Prescribed 5 creams which I'm not wasting $ on. To gasteo 2morrow. Will see if he will at least run blood test. Ate half a box of wheat thins and nothing happened?! This problem is very bizarre but I'm so tired and weak I can barely walk to the kitchen.. thanks for the support!! Crystal.

[squirmingitch]

Reactions aren't always immediate -- neither the gut kind nor the dh kind. It might take 3 days or even a week. As far as dh goes -- it can wax & wane at will eating gluten or not so it's really impossible to gauge if you've gotten into some gluten or not. So the derm wouldn't do a biopsy? You still have your appt. for UC? The derm is an ass. DH takes many forms & she sin't aware of that. She's looking at the tip of the iceberg not the whole thing. 

 

Hang in there. Please let us know what happens with the gastro.

[Nikki2777]

My reactions prior to diagnosis were not consistent.  I remember eating a bagel the day before my positive result and having no reaction.  When they did the endoscopy on me, the doctor said the damage to my cilli looked like it was in patches.  My Celiac was caught relatively early, so my suspicion (and I have no science to back this up) is that the patchiness is what allowed the bagel to get through with no problem that time while on another day, I'd have a reaction.  Not seeing a reaction from the wheat thins may not mean anything either way.