Help With Test Results

[Zebra007]

Hi, I have had the following blood work done and I wonder if you could possibly  help me with the results, its in Spanish to complicate things further! I was never formally diagnosed with Gluten intolerance and I have been Gluten free now since around Sept 2014, the guy that I spoke with o the phone  today indicated that this showed that I do not have Gluten intolerance, although he did explain it could be wrong and that a biopsy is the definitive test really.  Problem is he was telling me this over the phone in Spanish and so I couldn't really grasp what he was saying ha ha! and now I see the word indeterminado

 

Inmunologia                                               Resultado            Unidades          Referencias

Analisis

 

Inmunoglobulina A                                       246                   Mg/dL                  70-400

Transglutaminasa 1gG                                  0.9                    U/mL

Negativo < 12 U/mL Indeterminado

12-18 U/mL Positivo > 18 U/mL

Transglutaminasa                                                                    U/mL

tisular 1gA                                                       1.6

Negativo < 0 - 15

Positivo > 15

 

Alergias   

Inmunologia                                                   39.5                  UI/mL                     ND - 87             

 

 

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[cyclinglady]

Well, from the test results it looks like you do not have celiac disease, but the test could be invalid if you have been gluten free. (Your signature states that you have been gluten-free since sept. 2014.). When was the blood drawn? Also, this was an incomplete panel, but again, if you were gluten free you would most likely still get a negative result.

I open others can add their opinions.

Remember, I am not a doctor!

[Zebra007]

Thank you cycling lady...that is exactly what I thought, and the blood test was done yesterday.  I have stuck firmly to a Gluten free diet.  Not sure what to think now.

 

 

I am waiting on some results for Mast Cell and my GI wanted to do these tests as well.

[ravenwoodglass]

You have to be eating gluten for the test to be accurate. If you want a diagnosis of Celiac then you need to get back on gluten for a couple of months and then retest. 

[Zebra007]

I knew that for some tests you needed to be eating Gluten, but for this  particular test my GI indicated that we might pick up some sort of measurement...I cant go back to eating Gluten, but really I do wish I had done things in the right order because I really really wanted to know without doubt.

[nvsmom]

I knew that for some tests you needed to be eating Gluten, but for this  particular test my GI indicated that we might pick up some sort of measurement...I cant go back to eating Gluten, but really I do wish I had done things in the right order because I really really wanted to know without doubt.

Your GI may be incorrect.  The tissue transglutaminase (tTG IGA) test can remain positive in some celiacs for many months after going gluten-free, especially if they have other health issues like thyroiditis, but in many others, their tTG IgA returns to normal within weeks of going gluten-free.  

 

Are you planning on staying very strictly gluten-free in the long run?  Sounds like it.  If so, you don't "need" a diagnosis to go gluten-free and treat suspected celiac disease or non-celiac gluten sensitivity (NCGS), for which there are no blood tests.

[Zebra007]

I see, thanks.  I will continue going gluten-free as I know I am gluten intolerant, it just would have been nice to have had it confirmed. I didn't ask my GI for the blood test, he wanted it because I am struggling at the moment with many allergies/problems and I think he wanted to be able to get a clearer picture of what was going on.

 

I am so sad that I didn't listen to my body years ago.  I used to say to my husband "There is something wrong with bread!! every time I eat it I end up with a bloated stomach"  it sounds ridiculous now... I honestly didn't realize that there was something wrong with me, not the bread!

[BlessedMommy]

I have to stay gluten free, because eating gluten for testing could be fatal for me(due to the nature of my symptoms), so I've been gluten free for 5 years now. It'd be interesting to know if I had celiac disease, but I can't even imagine eating gluten for 2-3 months straight. I had a TIA while on gluten for only 10 days, so I'm guessing that a full blown stroke could be in the works, if I did a full length gluten trial.

Most people who know me well understand my situation and know that cheating isn't an option and it's gotten easier with time. As far as doctors, I cannot afford to go to them anyway. I may eventually do bloodwork to check my nutrient levels, though.

[Zebra007]

BM..TIA, that sounds terrible, I had to look that one up!  I  think your right that you could possibly end up having a major stroke if you did a full length gluten trial...

 

For myself I went through a tricky period with GERD, and its hard to find the words to express the misery that can cause, its a wretched condition to have, and I had to make some big changes to kick that to the curb, and going gluten-free was one of them, and so I would never want to risk having that return, plus of course I have other illness issues.