Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Test Results

Zebra007

Recommended Posts

Zebra007 Contributor
Zebra007
Posted
Hi, I have had the following blood work done and I wonder if you could possibly  help me with the results, its in Spanish to complicate things further! I was never formally diagnosed with Gluten intolerance and I have been Gluten free now since around Sept 2014, the guy that I spoke with o the phone  today indicated that this showed that I do not have Gluten intolerance, although he did explain it could be wrong and that a biopsy is the definitive test really.  Problem is he was telling me this over the phone in Spanish and so I couldn't really grasp what he was saying ha ha! and now I see the word indeterminado
 
Inmunologia                                               Resultado            Unidades          Referencias
Analisis
 
Inmunoglobulina A                                       246                   Mg/dL                  70-400
Transglutaminasa 1gG                                  0.9                    U/mL
Negativo < 12 U/mL Indeterminado
12-18 U/mL Positivo > 18 U/mL
Transglutaminasa                                                                    U/mL
tisular 1gA                                                       1.6
Negativo < 0 - 15
Positivo > 15
 
Alergias   
Inmunologia                                                   39.5                  UI/mL                     ND - 87             
 
 
© 2015 Microsoft Terms Privacy & cookies Developers English (United States)
 
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Well, from the test results it looks like you do not have celiac disease, but the test could be invalid if you have been gluten free. (Your signature states that you have been gluten-free since sept. 2014.). When was the blood drawn? Also, this was an incomplete panel, but again, if you were gluten free you would most likely still get a negative result.

I open others can add their opinions.

Remember, I am not a doctor!

Zebra007 Contributor
Zebra007
Posted
  • Author

Thank you cycling lady...that is exactly what I thought, and the blood test was done yesterday.  I have stuck firmly to a Gluten free diet.  Not sure what to think now.

 

 

I am waiting on some results for Mast Cell and my GI wanted to do these tests as well.

ravenwoodglass Mentor
ravenwoodglass
Posted

You have to be eating gluten for the test to be accurate. If you want a diagnosis of Celiac then you need to get back on gluten for a couple of months and then retest. 

Zebra007 Contributor
Zebra007
Posted
  • Author

I knew that for some tests you needed to be eating Gluten, but for this  particular test my GI indicated that we might pick up some sort of measurement...I cant go back to eating Gluten, but really I do wish I had done things in the right order because I really really wanted to know without doubt.

nvsmom Community Regular
nvsmom
Posted

I knew that for some tests you needed to be eating Gluten, but for this  particular test my GI indicated that we might pick up some sort of measurement...I cant go back to eating Gluten, but really I do wish I had done things in the right order because I really really wanted to know without doubt.

Your GI may be incorrect.  The tissue transglutaminase (tTG IGA) test can remain positive in some celiacs for many months after going gluten-free, especially if they have other health issues like thyroiditis, but in many others, their tTG IgA returns to normal within weeks of going gluten-free.  

 

Are you planning on staying very strictly gluten-free in the long run?  Sounds like it.  If so, you don't "need" a diagnosis to go gluten-free and treat suspected celiac disease or non-celiac gluten sensitivity (NCGS), for which there are no blood tests.

Zebra007 Contributor
Zebra007
Posted
  • Author

I see, thanks.  I will continue going gluten-free as I know I am gluten intolerant, it just would have been nice to have had it confirmed. I didn't ask my GI for the blood test, he wanted it because I am struggling at the moment with many allergies/problems and I think he wanted to be able to get a clearer picture of what was going on.

 

I am so sad that I didn't listen to my body years ago.  I used to say to my husband "There is something wrong with bread!! every time I eat it I end up with a bloated stomach"  it sounds ridiculous now... I honestly didn't realize that there was something wrong with me, not the bread!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted

I have to stay gluten free, because eating gluten for testing could be fatal for me(due to the nature of my symptoms), so I've been gluten free for 5 years now. It'd be interesting to know if I had celiac disease, but I can't even imagine eating gluten for 2-3 months straight. I had a TIA while on gluten for only 10 days, so I'm guessing that a full blown stroke could be in the works, if I did a full length gluten trial.

Most people who know me well understand my situation and know that cheating isn't an option and it's gotten easier with time. As far as doctors, I cannot afford to go to them anyway. I may eventually do bloodwork to check my nutrient levels, though.

Zebra007 Contributor
Zebra007
Posted
  • Author
BM..TIA, that sounds terrible, I had to look that one up!  I  think your right that you could possibly end up having a major stroke if you did a full length gluten trial...
 
For myself I went through a tricky period with GERD, and its hard to find the words to express the misery that can cause, its a wretched condition to have, and I had to make some big changes to kick that to the curb, and going gluten-free was one of them, and so I would never want to risk having that return, plus of course I have other illness issues.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748
    V Arnold
    Newest Member
    V Arnold
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...