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Bizarre Brain Symptoms?

DontEatFrenchFries

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DontEatFrenchFries Apprentice
DontEatFrenchFries
Posted

Hello Celiac Community,

 

I've been lurking for awhile and I'd like to ask you guys since many of you have similar experiences to me.

 

I've had celiac since I was 12 and for the past 9 years my symptoms were pretty mild and typical gastro issues with only 1 incident of pancreatitis and 1 incident of vomiting. Since I got it young, I was never that good at staying gluten free and cheated a lot.... well not anymore.

 

My symptoms have gotten super weird. I now get a red itchy rash if I eat even the smallest amount. But most recently I ate some fries (which never gave me issues as a kid) and woke up in the middle of the night screaming in pain and disoriented and talking absolute nonsense. I don't remember anything, my BF told me about it.

 

Has anyone else experienced anything like this? This is totally new and weird to me and I've been gluten free for a long time....

 

Thank you!!

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cyclinglady Grand Master
cyclinglady
Posted

Check out the DH section of this forum. Lots of photos and suggestions which basically say, "NEVER EAT GLUTEN!" The rash can get worse with each accidental glutening. It is pretty awful.

Fries can be easily cross contaminated. I would also check out our Newbie 101 thread under our "Coping" section for a refresher course.

As far as your brain stuff, gluten definitely can damage the brain. Research is just uncovering the extent of how gluten impacts celiacs. Sounds like you had a night terror. My toddler used to get them. Freaky for those who witness them. I also used to sleep walk, but that ceased in my 30's. But I am not a doctor, so who knows what happened to you!

Welcome to the forum!

BlessedMommy Rising Star
BlessedMommy
Posted

I get neurological symptoms from gluten. So it can very definitely affect the brain! 

cahill Collaborator
cahill
Posted

Gluten can affect the brain ,,, gluten ataxia

I also have neurological symptoms when ingesting soy

DH ( Dermatitis Herpetiformis) is a skin rash that only celiacs get.

 

Welcome to the forums :) 

MomBTired Newbie
MomBTired
Posted

Yup and yes. My son eats the littlest bit of gluten, breaks out with DH and itches like crazy. I don't know where you live but you need to be careful about eating fries out. They share fries in the vats with gluten stuff. My son is safe here at a few restaurants for fries. Chick Fil A is safe, Red Robin and at home, most Ore Ida types are gluten free

  • 2 weeks later...
cristiana Veteran
cristiana
Posted

Definitely.   Migraines visual and painful migraines - thankfully now a thing of the past.  Brief episodes of waking up with what is called hympompic hallucinations when the disease first became active ten years ago - weird, but apparently even 'normal' people get them too!  Episodes of finding it hard to find the right word for something - that still hits me every few months.  Normal brain scans.  All very odd but not when you are a celiac, bizarre brain symptoms do sometimes appear to strike!

julissa Explorer
julissa
Posted

I also get brain symptoms. dizzy, brain fog, feel stupid like i can't put 2 words together. 

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caro7 Newbie
caro7
Posted

I also have migraines aura's and am unable to read words or remember names of simple things, very scarey.  I don't get them real often since going gluten free.  If this happens again I think you should mention it to your Dr. just to be on the safe side. Also I found that I could not eat chocolate,banana's .  It could be you need to keep a food diary for a while.  Good luck

LiveLoveLaugh04 Newbie
LiveLoveLaugh04
Posted

Hi, sorry to hear about these problems. 

 

I have read that french fries that we can buy at McDonald's or other fast food joints, including frozen french fries bought at grocery stores, can contain gluten. I love fries so I make my own. 

 

Also, the rash could be caused by milk. I am not 100% sure but I feel that I get it when I drink milk and eat sweet gluten-free food. 

 

Good luck!

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