Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Nutritionist Is Helping Me


FruitEnthusiast

Recommended Posts

FruitEnthusiast Enthusiast

I finally found a healthcare professional who is helping me get better!!! She's the Nutritionist on the Celiac/GI team at UCLA (but I see her through her private practice for a lower fee). She has Celiac herself (I'm NCGI) and was willing to do sessions over the phone until I was well enough to make it into her office. Maybe she could do the same for someone who lives too far away to see her in person.

 

First she resolved my severe C problem which seems like a miracle after struggling with it for 5 years, (and after seeing 5 different Doctors). She thought my C problem was helping to cause my food intolerances, not just the other way around.

 

Now she's helping me re-introduce new foods into my very limited diet one at a time, in very small amounts (like 1/4 cup at a time). She explained that eating a normal size portion of a new food can cause a reaction just because my body is no longer used to it, when very small amounts to start can be ok, then can be gradually increased. So, I'm testing foods one at a time, and some of them are working out for me. Lots more testing to do, but each new food I can eat gives me a little more freedom.

 

Never give up... there is always answer :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Know you have been struggling so this is great news.  Hope you get to add back in some favorites soon. 

mamaw Community Regular

Is  it possible  for you  to go in depth  on what  she  did to help  your C? Many  on here suffer  with the issue & live  where   no doctor  seems  to have  any great  answers....you are  so  fortunate to  have  a  doc  available to help.... 

FruitEnthusiast Enthusiast

Know you have been struggling so this is great news.  Hope you get to add back in some favorites soon. 

 

Thank you :)

FruitEnthusiast Enthusiast

Is  it possible  for you  to go in depth  on what  she  did to help  your C?

 

Sure. It seems that many people who suffer with C have a problem with having enough moisture in their colon, even though they drink enough water. She told me she had helped others like me, and it helped me too. She suggested supplements that bring water into the colon. She had me take one called Triphala in the morning that contains fruits from India. Then at night she had me take Magnesium Citrate capsules. I have also read that many people tend to have a Magnesium deficiency which can cause C, but I'm not sure if that was part of my problem or not.

 

I was already taking Miralax which works the same way, but is a synthetic powder. I still take it along with the things she recommended. I hope to discontinue the Miralax and stick with the natural supplements as my body gets used to working better on it's own.

 

Technically all of these supplements that bring water into the colon are called "osmotic laxatives", but I think that's misleading because they don't contain any stimulants so they are not habit forming. They just give the body the moisture it needs to do it's job.

 

Hope that helps. If you're interested in more detail than that, please feel free to send me a message directly.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748

    TDeb
    Newest Member
    TDeb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.