Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When To Test.


SGWhiskers

Recommended Posts

SGWhiskers Collaborator

I have Celiac disease so we've kept my daughter gluten free until testing would be reliable for her. Fortunately, we have an awesome support system and several gluten free friends. However, I've forgotten how old she needs to be for reliable test results. I'd rather err on the side of over cautious.

So, how old should kids be before testing is pretty consistently reliable?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I have not found any set ages in my limited research. The older the better, though. I would consider testing before she starts school. No one wants to be deal with being sick and going to school.

I waited a year before I tested my kid (13 years old), but that was due to all the healthcare reform. We are self-employed and even though we could afford insurance, getting it was difficult! She never stopped eating gluten and had no symptoms. With two of us, we think she is doomed, but we are ever hopeful!

StephanieL Enthusiast

When DD started preschool we gave her gluten in home for a few days to be sure she didn't have a horrible reaction to it. Then when she started I knew she would get getting gluten containing snacks at school on a daily basis.  At the winter holiday break we had her tested.   She is now in K and since they don't have the same snack she is back to being gluten free except when we go out to eat.  We chose to have a gluten-free house for all the kids to keep DS safe (he's the oldest).  We have a younger kid who we are planning on the same approach with.

SGWhiskers Collaborator

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

nvsmom Community Regular

Toddlers are the hardest to test.  Usually they say 2 and under is tricky.

 

If she resumes eating gluten, remember that she'll need to be retested every two years for life.  It might be safer to just keep her gluten-free until she wants to test.

StephanieL Enthusiast

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

nvsmom Community Regular

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

 

True. Because you don`t need the accommodations yet, there is no rush to test now if you don`t want to.

 

I`m in Canada, and homeschooling too, and up here they generally trust whatever the parent tells them.  For instance, my boys attend classes with the local public school board through the homeschool program. My oldest has a tree nut allergy, mild asthma, and a gluten sensitivity which I suspect is celiac disease but his one and only test (two years ago) was negative, but I have just told them he has those helath issues and celiac disease - they did not ask to see any proof at all.

 

I have no idea how it works in colleges, but I probably won`t have my kids in rez - most kids don`t use that up here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748

    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.